I have only seen dr j on my first visit. Then np's. My next appt is with Kim because KL left.
I wasn't sweating when she took me off the babs meds just an increase in my tachycardia symptoms. I started sweating as soon as the week after that appt. So I am curious to see if this new pa puts me back on babs treatment or wants to start maintenance.
I am not sure what you mean by persister protocol. I have done the whole gamut I think. What is the persister stuff.
I am currently on 2 weeks off 3 and that is when things seem to go south for me.
Thanks so much for reaching out to me. I look forward to your response if you have time.
I havent done a herb protocol solely herbs. I have herbs mixed in somewhat with what my llmd is doing but I would say no its mostly antibiotics with some herbs they use too. Not much. I am considering doing buhrner if they kind of give up on me.
I met a man today on my daily walk who has had lyme. He feels he was infected with it as a child. He only did herbs with a naturopath and says he feels fantastic. No lyme symptoms at all. With my lyme brain I didn't think to as who he saw until we parted ways. I will walk that same trail a few more times around the same time of day to see if we meet up again. Otherwise, I know someone else on the trail who is his neighbor and I may ask her to get that info for me the next time I see her on the trail. God works in mysterious ways...didn't think about herbs for my treatment till yesterday and today I meet a man who comments on my thyroid scar (he had his thyroid removed like me-same sort of situation) and then tells me he had lyme too. Whaaaatttt????? I'm sure we were meant to meet.
So have you been seeing KL then? Is that the one who said you're going on maintenance?
She's who i had for my initial consult.
I heard KF is very good. Do what you have to do to keep going - tell her about
the sweats right away...and don't mention that KL said you need to go on Maintenance...although it's most likely in notes that KF will read.
I doubt if you've done persister protocol yet. It's fairly newish. It involves Dapsone and/or Daraprim (or both - sorry I can't remember).
Maybe only Dr. J. does that protocol...
Did you ever do Rifabutin for bart (instead of Rifampin)?
What I've mentioned are all meds that Dr. J. prescribes...and if you haven't tried them...then it's worth a discussion about
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi