Need Help Interpreting Western Blot

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ZBrink
New Member


Date Joined Apr 2018
Total Posts : 4
   Posted 4/20/2018 12:57 PM (GMT -6)   
Recent results from LabCorp:

IgG P41 Ab. Present
IgM P23 Ab. Present

The infectious disease doctor says I do not have Lyme. What do these results mean?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32557
   Posted 4/20/2018 2:28 PM (GMT -6)   
Hi ZBrink - welcome!

While those don't represent a positive result...the IgM 23 band is Lyme 'specific' - only lyme causes that band to appear.


Most Doctors do not recognize lyme even IF there is a positive test result...unless they are lyme literate.

I am assuming you had a tick bite and/or bulls-eye rash and/or symptoms that indicate lyme disease...and that's what prompted you to do the test?


it's best if you seek out a LLMD. To find one, you can start a new thread: "Looking for LLMD in/near_____" and fill in the blank.
Then enable your email option so members can send you names privately. We don't post their names here for the Drs privacy/protection.

You can also contact ILADS for LLMD names:

ilads.org/ilads_media/physician-referral/

...and you can contact me - I'll see if I have some options listed for your location.

We encourage all new members look through the information contained in the thread: "New to Lyme?..Start Here!" It's full of useful information.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

ZBrink
New Member


Date Joined Apr 2018
Total Posts : 4
   Posted 4/21/2018 8:01 AM (GMT -6)   
Girlie said...
Hi ZBrink - welcome!

While those don't represent a positive result...the IgM 23 band is Lyme 'specific' - only lyme causes that band to appear.


Most Doctors do not recognize lyme even IF there is a positive test result...unless they are lyme literate.

I am assuming you had a tick bite and/or bulls-eye rash and/or symptoms that indicate lyme disease...and that's what prompted you to do the test?


it's best if you seek out a LLMD. To find one, you can start a new thread: "Looking for LLMD in/near_____" and fill in the blank.
Then enable your email option so members can send you names privately. We don't post their names here for the Drs privacy/protection.

You can also contact ILADS for LLMD names:

ilads.org/ilads_media/physician-referral/

...and you can contact me - I'll see if I have some options listed for your location.

We encourage all new members look through the information contained in the thread: "New to Lyme?..Start Here!" It's full of useful information.


Thanks for the reply Girlie! No new rash or anything but I have been sick for years and tested positive via Western Blot back in mid 2014. I was treated with oral antibiotics twice within 1 year and did the Cowden Protocol for 10 months from 2015 into 2016. Got a little better back then but am now wrecked again.

As of April 2018 I am trying to take a new approach! Started with conventional doctors again a few weeks ago since health insurance covers them. The results I posted above were from my latest Western Blot from 04/2018. At this time, I cannot financially afford to roll the dice on tests and treatments which are not covered by insurance. I did however email ILADS yesterday for an updated list of Lyme Literate doctors in my area (Fairfax, VA).

Post Edited (ZBrink) : 4/21/2018 11:40:06 AM (GMT-6)


Hoagie
Veteran Member


Date Joined Jul 2017
Total Posts : 614
   Posted 4/21/2018 8:44 AM (GMT -6)   
What a tragedy our health system is. It is so extremely frustrating that people cannot get treatment for this disease due to financial restraints in this country. Our health system needs an enema.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32557
   Posted 4/21/2018 11:25 AM (GMT -6)   
Hoagie said...
What a tragedy our health system is. It is so extremely frustrating that people cannot get treatment for this disease due to financial restraints in this country. Our health system needs an enema.


And in my country - we have good healthcare but no LLMD’s to treat us - only LLND’s who are limited in what they can prescribe. (Plus ND’s visits aren’t covered in our healthcare unless you have extra insurance)


There is one LLMD in one Province but he’s got such a long wait list that he’s not taking names anymore.

It’s disgusting
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 277
   Posted 4/21/2018 2:14 PM (GMT -6)   
What province Girlie? I didn't think we had any in Canada. Last I heard the one doctor treating lyme in NS had to quit treating but that was a while back I think.

And I think BC is the only province that allows NDs to prescribe antibiotics is that correct?

It's a mess for sure.
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32557
   Posted 4/21/2018 3:22 PM (GMT -6)   
sandyfeet said...
What province Girlie? I didn't think we had any in Canada. Last I heard the one doctor treating lyme in NS had to quit treating but that was a while back I think.

And I think BC is the only province that allows NDs to prescribe antibiotics is that correct?

It's a mess for sure.


I heard that Ontario was going to allow the ND's apply for licensing to prescribe...but that was a few years ago...and nothing still.
So, yes just BC now.



We have one in Alberta

Here's a link to RateMD's. There's one bad review...but the rest are very good:

/www.ratemds.com/doctor-ratings/3644978/Dr-Ralph-Hawkins-Calgary-AB.html?page=2


I don't know how long he treats though...if he will continue after a year or two...I don't know anyone who has seem him.

Do you know about retired LLMD EM? What a wonderful man he is...I've spoken to him twice on the phone. He told me to get a lyme test done about 8 or 9 months before I actually did one. Should have listened to him and had it done right away.
He's a kind-hearted soul who is dedicated to helping people, and does seminars for Dr's who are wanting to learn about lyme disease.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 277
   Posted 4/21/2018 5:54 PM (GMT -6)   
Thanks Girlie.

No, I haven't heard of doctor EM - he sounds wonderful. We definitely need more lyme advocates in Canada. I feel so grateful that I am at least able to treat on my own following Buhner as otherwise I'd be in a terrible situation here. I can't imagine constantly crossing the border for treatment.

I hear you. I spent two years reading lyme websites and articles on and off when my symptoms would get bad wondering. And then, I'd just put it out of my head because that first elisa test at four weeks was negative. Sigh. So much lost time when I just thought I was bad at coping with normal life stuff.
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32557
   Posted 4/21/2018 5:57 PM (GMT -6)   
sandyfeet said...
Thanks Girlie.

No, I haven't heard of doctor EM - he sounds wonderful. We definitely need more lyme advocates in Canada. I feel so grateful that I am at least able to treat on my own following Buhner as otherwise I'd be in a terrible situation here. I can't imagine constantly crossing the border for treatment.

I hear you. I spent two years reading lyme websites and articles on and off when my symptoms would get bad wondering. And then, I'd just put it out of my head because that first elisa test at four weeks was negative. Sigh. So much lost time when I just thought I was bad at coping with normal life stuff.


Ernie Murakami is his name. He was treating lyme patients many years ago...and they basically forced him to retire.

www.cbc.ca/news/canada/british-columbia/b-c-doctor-urged-to-retire-because-of-zealous-approach-to-lyme-disease-1.774679


He's in his 80's now...but still going strong.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 277
   Posted 4/21/2018 6:05 PM (GMT -6)   
'"I feel sorry for those people [who have to go abroad], and I do whatever I can for them — to get them directed," Murakami said. "I get choked up, and I want to continue, but I can't. I have to face the consequences of being a pioneer in this field."'

It sounds like you were very lucky to have known him. It's stories like this that make me quite angry about the state of lyme in Canada. It also makes sense why doctors here are so reluctant to admit or even treat it too. It's very sad.
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

ZBrink
New Member


Date Joined Apr 2018
Total Posts : 4
   Posted 4/23/2018 7:38 AM (GMT -6)   
While I appreciate everyone who is wanting and trying to help, several people have completely hijacked my thread. I posted asking for assistance in understanding the results of my Western Blot and now everyone is talking about LLMDs in Canada.

I would ask that the moderator please remove the last several responses having nothing to do with my original post so that others who might read my post and have valuable input would be more willing to respond.

Thank you
EBV Positive - 10/2005
Lyme Positive (via Western Blot) - 07/2014

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 277
   Posted 4/23/2018 11:03 AM (GMT -6)   
Sorry about that ZBrink smile

How long were your two rounds of antibiotics? It seems strange to go from a positive result in 2014 to a much weaker result on the most recent blot. Is it possible that you're dealing with co-infections that might be further suppressing your immune system like bartonella?

What sorts of symptoms do you have?
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32557
   Posted 4/23/2018 11:43 AM (GMT -6)   
ZBrink said...
While I appreciate everyone who is wanting and trying to help, several people have completely hijacked my thread. I posted asking for assistance in understanding the results of my Western Blot and now everyone is talking about LLMDs in Canada.

I would ask that the moderator please remove the last several responses having nothing to do with my original post so that others who might read my post and have valuable input would be more willing to respond.

Thank you


Sorry your thread got hijacked - but it does happen on occasion.
I did also respond to your post about your test results and how to find a LLMD if/when you decide you want to go that route.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32557
   Posted 4/23/2018 11:48 AM (GMT -6)   
ZBrink said...
Girlie said...
Hi ZBrink - welcome!

While those don't represent a positive result...the IgM 23 band is Lyme 'specific' - only lyme causes that band to appear.


Most Doctors do not recognize lyme even IF there is a positive test result...unless they are lyme literate.

I am assuming you had a tick bite and/or bulls-eye rash and/or symptoms that indicate lyme disease...and that's what prompted you to do the test?


it's best if you seek out a LLMD. To find one, you can start a new thread: "Looking for LLMD in/near_____" and fill in the blank.
Then enable your email option so members can send you names privately. We don't post their names here for the Drs privacy/protection.

You can also contact ILADS for LLMD names:

ilads.org/ilads_media/physician-referral/

...and you can contact me - I'll see if I have some options listed for your location.

We encourage all new members look through the information contained in the thread: "New to Lyme?..Start Here!" It's full of useful information.


Thanks for the reply Girlie! No new rash or anything but I have been sick for years and tested positive via Western Blot back in mid 2014. I was treated with oral antibiotics twice within 1 year and did the Cowden Protocol for 10 months from 2015 into 2016. Got a little better back then but am now wrecked again.

As of April 2018 I am trying to take a new approach! Started with conventional doctors again a few weeks ago since health insurance covers them. The results I posted above were from my latest Western Blot from 04/2018. At this time, I cannot financially afford to roll the dice on tests and treatments which are not covered by insurance. I did however email ILADS yesterday for an updated list of Lyme Literate doctors in my area (Fairfax, VA).


It sounds like you didn’t treat long enough or perhaps didn’t treat the coinfections the first time around.
This is why you needs LL Dr if you’re going to treat with abx.

You don’t need to retest because you weren’t in remission the first time you treated.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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