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tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 4/20/2018 5:10 PM (GMT -6)   
Hello! So my desperation continues!! It's been 2 months of daily weird headaches (they come and go throughout the day with different intensity), extra blurry right eye, dizziness, nerve pain in spine, pins and needles in hands and feet and anxiety/panic. I haven't had a single day where I felt ok. I started treatment a little over a year and a half ago for Lyme and babesia. I can't say the treatment made a difference, even before treatment i'd have lots of good and bad days, but never a stretch like this!! My tests show babesia is still active but never a positive for Bart. But I can't tolerate anything for Bart!! Rifampin sent me into massive panic and insomnia, Japanese Knotweed (only 40mg) caused sever nightmares and waking every hour in a panic, I can't get past a drop of MC Bar-1. I have no idea how I can treat this if I can't handle anything!! I'm beyond depressed! I have 3 kids so given up is not an option! I don't know what to do anymore!

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2122
   Posted 4/20/2018 5:22 PM (GMT -6)   
Sorry that you are still struggling and suffering so much with all of this.

Since you are sensitive to many of the treatments have you considered just trying to build up your immune system, using daily detoxing methods and just doing very light exercise daily..

maybe doing this for a while, and letting your body stabilize, could prepare you better for starting slowly again on some things in very, very low doses to see how you do.

Does your llmd offer any other suggestions to help

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 285
   Posted 4/20/2018 5:41 PM (GMT -6)   
I am so sorry to hear that things continue to be so bad for you tonyaraven. sad I have two kids at home too so I know how much stress this adds into the picture, just trying to be positive and level and get the basic stuff done without too much guilt.

I would definitely second goshawk's recommendations. I have heard that some LLMDs work on addressing the infections one at a time so maybe it's just not the time to be working on bart if you're still busy clearing babs. I _do_ believe, partially based on Buhner's assertions in his bartonella book, that simply supporting the body and making it 'inhospitable' through protecting the organs can be a safe and slow route to recovery. We all tend to focus on the anti-microbial herbs as a quick route to healing, but I do think we could heal just as well, albeit a bit more slowly, if we just focus on fortifying the castle so to speak.

Hoping some warmer weather and natural vitamin D helps soon. Hugs.
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

acarined
Regular Member


Date Joined Jul 2015
Total Posts : 175
   Posted 4/20/2018 8:48 PM (GMT -6)   
My current treatment for bart is vitamin D, beta glucan, zinc, copper, IR sauna, essential oils, and Buhner herbs. Listen to your body - change the approach if it isn't working for you.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 4/20/2018 11:42 PM (GMT -6)   
Tonya - just do the one drop of MC-Bar1 and if that's too much, then put the one drop in a glass of water and sip on it all day long...

See how that goes. If you do okay on it...don't increase...stay on that for a few weeks.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 4/21/2018 5:12 AM (GMT -6)   
Thanks everyone. I took lions mane for the first time yesterday (heard it was good for the nerves) and I don't know if that's what did it or if it's just what's going on with me, but 3 hrs later my headache got to the point that again i thought it was going to explode and the pain in my neck too. It's 4:10 in the am and it still hurts so badly and I just feel so awful! I don't know what's happening to me I have never gone through such horrific months like this and there seems to be no light at the end of the tunnelsad

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 4/21/2018 10:46 AM (GMT -6)   
tonyaraven said...
Thanks everyone. I took lions mane for the first time yesterday (heard it was good for the nerves) and I don't know if that's what did it or if it's just what's going on with me, but 3 hrs later my headache got to the point that again i thought it was going to explode and the pain in my neck too. It's 4:10 in the am and it still hurts so badly and I just feel so awful! I don't know what's happening to me I have never gone through such horrific months like this and there seems to be no light at the end of the tunnelsad


How much lion's mane did you take? Is it tincture form? What brand?

Lion's mane crosses the blood brain barrier and can dump spirochetes from the brain, according to the information provided on Beneficial Botanicals website. There's is the most potent 1:1 ratio and is the only brand Buhner recommends for lion's mane, presumably because it's the most potent. If you only took a few drops, though, I wouldn't think it would cause worsened symptoms.

I've never felt any reaction to it at all, but I was taking a weaker tincture from Woodland Essence. From what I understand, lion's mane has to be taken long term to have any healing effects. Healing nerves is a long, slow process.

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 4/21/2018 10:55 AM (GMT -6)   
I agree with goshawk. If you're having horrible reactions to everything, you may be better off temporarily focusing on detoxing (but don't overdo that either) and do everything you can to reduce inflammation. Try different supplements and see which ones help the most: curcumin, EPA/DHA, quercetin, Vit C, liposomal glutathione. Some of these make some people feel worse depending on what other issues they have (methylation/detox problems, sulfur sensitivity).

Quercetin and Vit C can also reduce histamine, so if histamine or mast cells may be part of your issues, those may be more helpful.

One of the strongest and fastest acting anti-inflammatories I've taken is a product called SPM Active by Metagenics. It's very expensive, but it did wonders for me.

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 4/21/2018 11:00 AM (GMT -6)   
And binders. Make sure you take binders to mop up the toxins.

Do everything you can to reduce inflammation from all angles including avoiding mold exposure, avoiding chemicals and fragrance, doing what you can to reduce impacts of stress, etc. Make sure you are moving your bowels daily and sufficiently.

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 4/21/2018 9:13 PM (GMT -6)   
Thanks so much as always for all your helpful advice! I'm going to look into that product you mentioned WalkingbyFaith. I'll keep you posted! Today has been another terrible head pain day, eye is getting even more blurry...really scary!! My MRI didn't show anything new, the same as 3 years ago...larger then normal white matter, which may occur with small vessel disease, vasculitis, migraines and demyelinating disease. I feel so very sad, I don't know how I can go on like this...it's too much!!
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