Only 45KD off reactive

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Mdjnmd
New Member


Date Joined Apr 2018
Total Posts : 3
   Posted 4/20/2018 6:26 PM (GMT -6)   
I need some help, have been ill for 18 months now and been tested for everything under the sun including Lyme at the beginning. My new neurologist suggested I get rechecked because I have all the symptoms of Lyme disease. The results were all negative the first time around and now they show 45 KD igg reactive. What does this mean? Should I be concerned since nothing else has been proven and now this is the first time something came up as a positive result, what should I be looking for and where do I go from here?

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2293
   Posted 4/20/2018 6:42 PM (GMT -6)   
Hi and welcome to our forum,

Sorry you have been going through all of this, you will find many members here that have had a similar experience.

Many people test negative for Lyme but have been clinically diagnosed by a Lyme Literate MD or NP.

Testing can be unreliable, however there are some labs that are much better at testing for Lyme and co infections than others.

Igenix and DNA connections are the better ones for testing.

This is the info I have on Band 45:

45 cross-reactive for all Borellia (sometimes people with Lyme who have
this band positive also have the co-infection Ehrlichiosis)

You should seek out an llmd as I am not a medical expert.


If you arnt seeing a Lyme Literate MD or Lyme Literate Neurologist already we can help you find one here.

You would have to enable your email in your profile and the start a new post"Seeking an LLMD in such in such area" then members can respond withrecomendations.

You can also email Girlie or me and we can check our list for your area.

you can do a llmd search at ilads.org/ilads_media/physician-referral/

Lymedisease.org also has a physician search.


We do encourage all new members to read our "New to Lyme" start here thread at the top of the subject page.

It has great info on Lyme, detoxing, testing and more.

Take care and I wish you the best of healing.

Mdjnmd
New Member


Date Joined Apr 2018
Total Posts : 3
   Posted 4/22/2018 5:20 PM (GMT -6)   
And if I have had this in my system for a year and a half should I be concerned?

G-Ju
Regular Member


Date Joined Apr 2018
Total Posts : 50
   Posted 4/22/2018 5:57 PM (GMT -6)   
Right now, it's about getting answers and treatment.

Go to this site (below), and fill in your information. They'll send you a list of Lyme Literate Doctors in your area. They're pretty fast.

http://ilads.org/ilads_media/physician-referral/

Cberg
Regular Member


Date Joined Jul 2017
Total Posts : 52
   Posted 4/22/2018 7:11 PM (GMT -6)   
When I first starting treating my lyme I had zero bands , after treating for 6 months , I have 41 , 30 and 45. I know none of them are specific but at least I know something is happening

Mdjnmd
New Member


Date Joined Apr 2018
Total Posts : 3
   Posted 4/23/2018 4:49 PM (GMT -6)   
My doctor just called and said all is fine. Should I get a second opinion?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 4/23/2018 5:11 PM (GMT -6)   
Mdjnmd said...
My doctor just called and said all is fine. Should I get a second opinion?


Yes, but you may need to see a LL Dr. (unless the Dr. you're seeing IS LL)


Otherwise, you will be getting answers from Dr.'s who don't really know enough about lyme testing/symptoms...etc.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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