Hi! If anyone could help me decide on whether or not to go the abx route! I'd be very grateful
I noticed a variation on the classic lyme rash two years ago and had a fever at the same time (neck pain)... went to the doctor's and five weeks after seeing the rash got antibiotics. However, my doctor gave me a low dose of doxycycline (100 mg per day where recommended is at least 200 mg) for ten days.
Also, at the time I was already suffering a severe burnout and so my immune system wasn't at its best...
Since then I've never recovered from the burnout and developed some extra symptoms, but fatigue and sleep problems have stayed consistent. I did get much worse after the rash appeared, fatigue wise, and since then developed these sort of 'attacks' during which my brain feels inflamed / really weird and I start shivering because it's so uncomfortable. I have recently been tested again for Lyme and tested positive on an LTT test (in Europe).
My doctor now wants to give me antibiotics intravenously because there could be a chance that the lyme is still active. However, I really don't want to do it if the lyme is already gone from my body and all of my symptoms are still from burn out or chronic fatigued syndrome or something like that, because I'm worried that high doses of abx will take a heavy toll on me body. I really don't want to get any worse at this point!
Does anyone have some sage advice for me? :p
What are the odds that the lyme survived the first course of antibiotics and is the reason that I never got over the burnout fatigue/sleeping problems?
And does anyone have experience with the toll that IV antibiotics can take on your body?
Well, you were under -treated and 200 mg per day is still not enough - it should be 400 mg daily and also 10 days isn't nearly long enough. Should have been minimum 6 weeks or until symptom free plus 4 weeks.
So you do need more treatment - but it doesn't necessarily mean IV abx.
You weren't symptom free.
IV abx are easier on your GI, but there are some risks and inconvenience with them.
Is this a LLMD? Or is it the same Dr. who undertreated you the first time?
EDIT - I just read your second post and you did say you have a LLMD.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
Post Edited (Girlie) : 4/21/2018 3:05:39 PM (GMT-6)