A good description of lyme brain - in case close ones dont believe you

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astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5083
   Posted 4/21/2018 11:28 PM (GMT -6)   
This is an add/website but pretty much explains lyme brain:

/www.resultsrna.com/neurological-effects-lyme-disease/

I have yet to completely reverse my lyme brain. Yes its a lot better vs the cognitive wasteland in my skull before, but siblings still dont get it.

Word searching I hate the most, you cant cover it up. So I have learned to think ahead of time what I want to say, if its something that takes more than "automatic" thought/reply (like actual thinking).

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 377
   Posted 4/22/2018 10:20 AM (GMT -6)   
That was a good review.

Memory loss and word searching bother me too and the most frustrating part is that most people will say 'oh yeah, I have that too' and sure everyone does from time to time but its so much worse with lyme.

I'm always having to leave things out to remind me of things I want to do like a trail of bread crumbs all over the house. If both of my kids ask for a snack I have to take all the items out of the fridge first or I'll forget what they asked for. I used to feel like an articulate person but now I wonder if that part will ever fully recover.
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33848
   Posted 4/22/2018 11:55 AM (GMT -6)   
sandyfeet - mine is getting better...not quite there yet...but hopefully it will continue.


I went through a really bad period... I couldn't remember anything...

It's still perplexing to my husband...as he always relied on me to be the organizer, planner...etc.
And sometimes he seems surprised that I don't remember something he told me the night before.
It still hasn't really sunk in for him after a few years...

Actually for the first year or two...it wasn't so bad...it got worse after treatment started...I think because I didn't treat bart or babs for over a year...just lyme...and it must be one of those infections that affected my brain the most.

A year ago was really bad...
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5083
   Posted 4/22/2018 12:26 PM (GMT -6)   
I just forgot a sibs B-day. The one that does not and refuses to get this.

In my family, this is not forgotten. Since I'm over 50, I don't expect much for my B-day, but thats just me (just an age reminder now).
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in Jan 2016. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33848
   Posted 4/22/2018 12:38 PM (GMT -6)   
astroman said...
I just forgot a sibs B-day. The one that does not and refuses to get this.

In my family, this is not forgotten. Since I'm over 50, I don't expect much for my B-day, but thats just me (just an age reminder now).


My brother never recognizes my birthday. I just think it's a guy thing. (in general)

Doesn't really bother me.

I wouldn't worry about it. You can always take your sibling out for a belated birthday lunch (if you live close enough) That should redeem yourself.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 377
   Posted 4/22/2018 1:31 PM (GMT -6)   
I'm glad to hear your memory has improved Girlie. I definitely worry that it will be a permanent thing, I don't mind some physical aging but I do miss the regular use of my brain. I'm hoping it will improve as my sleep gets better again. Always something to look forward to at least. As it is every little bit of recovered energy or mobility is cause for celebration smile

Astro - I hope your sibling isn't the type to be miffed.
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

Kct
Regular Member


Date Joined May 2016
Total Posts : 219
   Posted 4/22/2018 2:34 PM (GMT -6)   
My Lyme brain has gotten worse, I have to go on STD and Maybe LTD if I cant get better. Anyone here get better with IV ceftriaxione, and or High dose Vit C ?

Dahlias
Veteran Member


Date Joined Jun 2017
Total Posts : 518
   Posted 4/22/2018 5:09 PM (GMT -6)   
Great description.
"This too shall pass. It might pass like a kidney stone, but it will pass."

borrelioburgdorferii
Regular Member


Date Joined Feb 2017
Total Posts : 246
   Posted 4/22/2018 7:24 PM (GMT -6)   
This is a good description.

My family doesn't seem to (siblings also) acknowledge that I have an IQ loss and other neuro-psych complications. I was supposed to be the smart one. Now they still lean on me like as if I'm still supposed to be strong and sharp.

I have experienced all of these symptoms more or less, and I can literally feel the encephalitis.

And to not be able to plan a normal day of productive activities is disheartening to say the least.
Tick bite/EM rash +10 years ago
Active, athletic, with past concussions.
1st known bite: tick infested area, flu, chills, fever, neuro symptoms.
Treat with ABX/herbs recently (2-5 years now).
Get symptom free with strict diet: paleo/keto/IM fasting
Have done Buhner's Protocol, Doxycycline, Amoxicillin, Supplements.
IgG via IgeneX 31-IND, 41++, 58+ (Sep-2016)
IgM via IgeneX 31+, 41-IND (Sep-2016)
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