I was diagnosed in Feb. I've had symptoms for about
20 years. My skin is so ravaged from the Bart. They kept telling me fibro and "somatic" before my neuro found the lyme. I've been on abx since sometime in March, maybe the 13th. I can't really recall. I was on ampicillin and then doxy was added and I was switched on the 10th to azyth, bactrim and plaquenil because the bart is really bad. My dr is also doing glutathione infusions 3x a week, however I missed 3 doses when I started this regimen because my veins all blew. So I've been hydrating like crazy to prevent that.
I am going to be switched to IV at some point - which is better then destroying my gut. I have contemplated herbals and my llnd will do that, however I am a single mother of 3 under 10 and I currently can't work or attend school anymore. I have no family nearby. So, needless to say I'm anxious to become more functional ASAP.
I didn't know about
the cold showers. Will have to try that. I'm going to talk to my llnd about
detox methods also and what her plan of action is now. It's not that I'm against low and slow; but I would like to return to class next semester. I have some contract work I do from home, but I'm almost done with school and then I will make more money with an easier schedule.
I'm working towards the anti-inflamatory diet - just have to eliminate sugar now. Been slowly taking things out of my diet. I'm gluten free from celiac, so that one was easy. I'm also taking probiotics and using aloe water. My stomach doesn't really bother me much, thankfully.
I also ordered some activated charcoal earlier today.
My fear is having to go to the ER and end up baker acted. Thank you for sharing that you had to go to the ER. I'm going to have to adjust my plan so I can take it slower. I started the Bactrim again today and my anxiety is already increased again. I thought I was starting again tomorrow, but somewhere I lost a day between Thursday and now.
I'm so sorry you are going through this. I have recently went through this and ended up in the ER twice. It took me a good 2 to 3 weeks after my last Flagyl stint to get back to feeling "normal". I would get severe psych herxes. Anxiety and panic were the worst. But also, my movement would get very stiff and I'd get very confused. It was absolutely horrible. It was after the last episode that I decided to stop antibiotic treatment and look towards more natural protocols as I felt abx were doing me more harm than anything else. I also got face rashes and itching. Also bad GI issues.
Please do not try and tough through a bad herx. The best thing you can do is back off. Your body, and in your case and mine, our brains were being flooded with toxins that we can not get rid of properly.
I recommend an anti inflammatory diet along with your other detox methods. Also try ending each shower with straight cold water for at least a minute. If you can manage it, 3 minutes. The benefits of cold showers are well documented and really get your lymphatic system going. Work on GI health as well. Many people cannot handle heavy abx use and it causes leaky gut which can cause neurological symptoms to get worse.
When were you diagnosed with lyme and co's? How long have you been treating?
You got this. And you are not alone. I'm glad you are reaching out.