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Cberg
Regular Member


Date Joined Jul 2017
Total Posts : 50
   Posted 4/22/2018 4:00 PM (GMT -6)   
So I have tested positive on the elispot by armin labs
I have band 30, 41 and 45 on the cdc western blot
Igenex came back negative
I have chlamydia phenomia igg very high

Main symptoms are muscle twitching , dizziness and pain all around.

I go to a highly regarded llmd but can't seem to get on all meds she wants me on

Took doxy 300 mgs a day for 6 months

Supplements GFSE/NAC/VITAMIN B C D / nystatin 6 months

Now trying samento with ceftin and I HATE it. Samento or the new oil of oregano is really throwing my body for a loop.

Any thoughts on samento?

Thanks

auzzie
New Member


Date Joined Jan 2018
Total Posts : 3
   Posted 4/23/2018 12:25 AM (GMT -6)   
We are all different. Samento works well for me but then I can't take almost everything else for lyme except ACS200 silver but its pricey to take in the large doses you need.
Stop both the oil of oregano and the samento, for now.
What you have to do is introduce them again in smaller doses. You need to determine if you are herxing too much and killing the lyme too fast or if they are giving you an allergic reaction. They are both lyme killers and very effective ones so it might be too much too soon. In which case you should find a level for yourself from trial and error, where you are getting a more tolerable herx and then build from there and let them do their job in a way that doesn't stress you out.
Look up the allergic reactions to both of these. A small dose of anything I am allergic to gives me a pretty powerful reaction. If it is an allergic reaction then you can't take it it taxes your immune system too much. There are enough alternatives out there so you can try something else.
All the best you will be OK. It takes time and you are right you must listen to your body.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 4/23/2018 12:29 AM (GMT -6)   
CBerg - what are you doing to detox while on this treatment?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Cberg
Regular Member


Date Joined Jul 2017
Total Posts : 50
   Posted 4/23/2018 7:36 AM (GMT -6)   
Infared sauna, lemon juice and water , walking. I will try anything. Lyme has stole my lyme and made be very depressed.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 4/23/2018 12:20 PM (GMT -6)   
Cberg said...
Infared sauna, lemon juice and water , walking. I will try anything. Lyme has stole my lyme and made be very depressed.


Have you tried warm (not hot) epsom salt baths? They make me feel a lot better...although it doesn't last - maybe a few hours.

Another thing you might want to start taking is a binder. But, it needs to be taken a couple hours away from anything else (food, medications, etc.)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Cberg
Regular Member


Date Joined Jul 2017
Total Posts : 50
   Posted 4/23/2018 2:09 PM (GMT -6)   
What is a binder ? Thank you

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 4/23/2018 2:17 PM (GMT -6)   
Cberg said...
What is a binder ? Thank you


Activated charcoal, modified citrus pectin, bentonite clay, zeolite, cholestyramine (Rx), etc.
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