DNA Connexions test

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Ollyrolly
New Member


Date Joined Dec 2014
Total Posts : 5
   Posted 4/24/2018 9:44 PM (GMT -6)   
Does anyone know if the Lyme panel from DNA Connexions is reliable? My daughter's PANS doctor recommended it.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32672
   Posted 4/24/2018 10:36 PM (GMT -6)   
Olly - forum members are having good results with it.

Does the Lyme panel include Bart, and Babesia?


People are recommending to do exercise and/or get a massage prior to taking the sample to move the bacteria out of tissue into the urine. ( and wait an hour before collecting the sample)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 622
   Posted 4/25/2018 8:03 AM (GMT -6)   
It’s hard to say. As with every lyme and co test, it’s not perfect. I’m pretty sick and the first time it showed nothing. They told me that it means i 100% dont have lyme or coinfections even though i had a positive western blot.. so i retook the test and it came back positive for bartonella.

Or fourm memebers had the same experience, one time all negative and then the next positive for one or more infections. I’ve also seen where completely healthy people come back with lots of positives.

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2438
   Posted 4/25/2018 9:14 AM (GMT -6)   
NicHostetler said...

Or fourm memebers had the same experience, one time all negative and then the next positive for one or more infections. I’ve also seen where completely healthy people come back with lots of positives.


Nic - just curious, but why would healthy people even think to take this test in the first place? I'm not criticizing, but I'm curious on their thinking???

I wish we could take this test. I think it would be good information for us. I'd love to take the test now that Kid#1 is doing well (what would it show if anything?), but I just can't justify the cost at this point.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 4/25/2018 10:13 AM (GMT -6)   
1000Daisies said...
NicHostetler said...

Or fourm memebers had the same experience, one time all negative and then the next positive for one or more infections. I’ve also seen where completely healthy people come back with lots of positives.


Nic - just curious, but why would healthy people even think to take this test in the first place? I'm not criticizing, but I'm curious on their thinking???

I wish we could take this test. I think it would be good information for us. I'd love to take the test now that Kid#1 is doing well (what would it show if anything?), but I just can't justify the cost at this point.


Nic,

I was wondering the same thing. What healthy people had positive DNA Connexions testing?

Even if healthy people were tested and were positive, why would that be a surprise? It doesn't mean the test results are falsely positive. We all know that there are people who get Lyme and bartonella or any of the other infections and are either totally asymptomatic or quickly recover and have no lingering symptoms. It would be no surprise at all if healthy people are walking around with these bacteria in their bodies. There is something else involved, most likely immune dysfunction that may have multiple genetic/environmental drivers, that makes the sick ones sick. It likely depends as well on the amount of bacteria transmitted, how virulent it is, how many infections are transmitted together and their synergistic impacts on the host, etc.

Post Edited (WalkingbyFaith) : 4/25/2018 10:39:56 AM (GMT-6)


WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 4/25/2018 10:33 AM (GMT -6)   
Ollyrolly,

I will share my experience and what I was told by my Functional MD.

I had a Labcorp Western Blot that was IGG positive for Bands 41 and 66, which was CDC negative.

I had an Igenex Western Blot that was IGG positive for Bands 58+, 41++, 39 Indeterminate; IGM positive for Bands 58+, 41+, 39 Indeterminate. Overall result was negative. Doctor said even though Igenex determined it was negative, it could still be positive. When I asked how I could find out, she suggested the DNA Connexions test. She told me that if the test from DNA Connexions came back positive, it was a 100% accurate (no false positives), but if it came back negative that would not prove that I did not have it. It would only mean no DNA of the bacteria they test for was found in my sample.

I had the DNA Connexions test, which came back positive for Borrelia burgdorferi F7 and Ehrlichia chafeensis.

Then the doctor did a number on me and said she didn't know if I had "active" Lyme or not. She was convinced all my symptoms were from CIRS/mold. I did not agree, as I knew my medical history and the CIRS/mold without Lyme did not make sense. Lyme made TOTAL sense, especially with the positive result for ehrlichia. Because I tested positive for ehrlichia too, I never doubted the positive Lyme test results. I knew that if I had ehrlichia, then I surely had Lyme.

At that point, I started researching Lyme and coinfections on my own and realized I'd had definite symptoms of bartonella and possibly babesia since early childhood. (NOTE: Bartonella and babesia did NOT show up on my DNA Connexions test.) Since I've had bart streaks and stretch marks since childhood, I have no doubts I have bart. I parted ways with the doctor and began treating myself with Buhner's protocols. I started last June and any progress has been very slow for me, but I do believe in the herbs and in Buhner's work. I believe that I'm struggling so much due to the fact that I've had these infections for a lifetime (48 years old now), and I have other issues playing into this, including genetics and mold exposure.

Hope this helps.

G-Ju
Regular Member


Date Joined Apr 2018
Total Posts : 39
   Posted 4/26/2018 8:00 PM (GMT -6)   
I mailed my DNAConnexions test out on April 11, 2018. I haven't heard what the results are yet, but I have a feeling my doc has them by now. My next appt is May 7th. I'll repost with my results when I get them.

My initial blood tests showed Reactive bands for IgG 41, 58 and 66, which meant I was negative based on CDC requirements, even though I was symptomatic.

LLNP did some additional blood tests that included a C6 Peptide, and it came back positive. The DNAConnexions should shine some light on my specific strains. I sure hope it comes back with some good information. My doc says she likes DNAConnexions better than IGeneX, but it costs twice as much. $500! I believe IGeneX is about $250.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32672
   Posted 4/26/2018 8:21 PM (GMT -6)   
G-Ju said...
I mailed my DNAConnexions test out on April 11, 2018. I haven't heard what the results are yet, but I have a feeling my doc has them by now. My next appt is May 7th. I'll repost with my results when I get them.

My initial blood tests showed Reactive bands for IgG 41, 58 and 66, which meant I was negative based on CDC requirements, even though I was symptomatic.

LLNP did some additional blood tests that included a C6 Peptide, and it came back positive. The DNAConnexions should shine some light on my specific strains. I sure hope it comes back with some good information. My doc says she likes DNAConnexions better than IGeneX, but it costs twice as much. $500! I believe IGeneX is about $250.


$250 is just for the Lyme WB

If you were to test for Lyme and coinfections via Igenex it would be way more than $500.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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