HBOT & Herxing

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Hoagie
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Date Joined Jul 2017
Total Posts : 619
   Posted 4/25/2018 8:38 AM (GMT -6)   
Some of you may know that I stopped antibiotic treatment for now and am going to see a biotoxin illness doctor who specializes in mold and lyme on May 2nd. Since stopping abx about 5 weeks ago, I had made great strides and actually started having really good days.

I also started hyperbaric treatment 2 weeks ago. I felt really good after the 1st week of treatments. The Saturday following my first treatment was the best day I've had in 5-6 months. I apparently overdid it on that Saturday and never quite recovered, Actually, I started going slowly downhill the 2nd week. I felt pretty bad over this past weekend. I planned on incorporating 2 dives on Mondays and Fridays. But after the 2nd dive on Monday, I have been a wreck. What I'm experiencing is similar to a Flagyl herx. I called the HBOT clinic yesterday before my treatment was supposed to begin and told them that I was either herxing badly from the double treatment, or I may have experienced oxygen toxicity. But seeing as how I've had these symptoms before with abx treatment, I'm quite sure it's a herx. So, I took yesterday off and am going to speak to the HBOT safety officer in about an hour.

WBF - If you see this, I know that you and your family did hard shell HBOT. Did you or any of your children experience severe herxes? And if so, did you slow up on the dives?

Some info that may be helpful. They have me in the chamber at 2.35 ATA for 90 minutes, 5 days per week.

I just find it strange that I didn't start herxing really bad until after the 2nd week

1000Daisies
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Date Joined Apr 2016
Total Posts : 2438
   Posted 4/25/2018 8:50 AM (GMT -6)   
Hi Hoagie!
You asked WBF, but I'm the one with the family who has done both hard and soft chamber HBOT (I am rather unique because there are four of us in my family who have done HBOT, and I haven't met anybody else who has so many in the family who has done as much HBOT as we have). So, I can share our experience. smile I openly admit that I am not an expert - just very experienced in my family with this!! smile

I've seen varying accounts of HBOT responses. For my Kid#1, he had some increased irritability after a couple of weeks of hard chamber HBOT. However, not much else until about a month after HBOT. Then, we noticed a huge improvement in his symptoms!
Kid#2 would be worse initially with home soft chamber HBOT. He had a much more difficult time handling it apparently.
Kid#3 doesn't seem to react much either way to hard or soft chambers (other than feeling better).
I, on the other hand, did several hard HBOT, and it triggered some serious heart issues. Therefore, I completely stopped (hard) HBOT. I do not react negatively to soft chamber HBOT and will continue using that in the future (I prefer soft chamber for me now).

I know somebody with neuro symptoms (dementia) who showed progress/benefit from his 40 rounds. I don't know how he is doing today though. I know somebody else who had severe neuro issues but didn't respond to HBOT like they had hoped (last I had heard).

I have also read that herxing is common around the 10 sessions mark, and that seems very close to where you are at! I know that you said that you thought that was strange, but from what I've read (albeit very little information out there), this is common! My HBOT technician said it greatly varies in his experience!

For hard chamber, some people do once per day (5x/week). Others have done it 2x per day for 5 days (10x/week). Honestly, we've done it both ways (prefer to do it 2x/day but our schedule wouldn't always allow that - eg kids in school, etc).

FWIW - we only did 1 hour at pressure (which is about 1 1/2 hours in the chamber when including compression/decompression times).

My initial thought it that the ATA and duration can vary for people. If you feel it's too much for you, you can take a break, reduce the ATA, and/or reduce the duration. If doing it 2x/day is too much, definitely go back to 1x/day. We have NOT done a strict schedule, as we did have to space it out if kids got a cold (too hard/uncomfortable to compress/decompress with a cold), our schedule, and various other reasons.

Definitely see what your HBOT technician thinks from his/her experience.

Keep us posted. And please let me know if you have more questions about our experience.

Thinking of you Hoagie!
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

Post Edited (1000Daisies) : 4/25/2018 8:54:07 AM (GMT-6)


WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1682
   Posted 4/25/2018 8:51 AM (GMT -6)   
Hi Hoagie,

I think that was 1000Daisies whose family did the dives.

Sorry you're herxing again. I had some good days last week after months of feeling bad. I greatly cut back on my Buhner herbs and supplements two weeks ago when gut went crazy. Looking back now, it was probably a GI herx. I was imagining all sorts of dreadful things were coming upon me. Since I cut back my protocol and reintroduced things slowly, at reduced dosages, and only twice a day instead of 3 times a day, I've had a number of better days. I overdid it, too, on the good days. It's so hard not to, especially with the nice weather we've had here.

Hope you figure out what to do about the HBOT. And let us know what the CIRS doctor has to say. I have that too from mold.

Hoagie
Veteran Member


Date Joined Jul 2017
Total Posts : 619
   Posted 4/25/2018 12:39 PM (GMT -6)   
Thanks and sorry Daisies and WBF. I know it was just recently that I discussed this with you Daisies. But what can I say? I'm in the middle of a pretty hefty herx. lol

I just got done with my session today. Hopefully the herx will begin to subside pretty soon. The tech says that I should be ok and that the blurred vision happens sometimes during treatment but will get better. For now, we are going to stick to one dive a day. For my main issue, inflamed lesion on my brainstem, I feel this treatment is probably the best thing for me right now. The tech explained to me how this treatment will actually aid in the formation of new blood vessels and repair damaged ones allowing blood to get to that area and ultimately aid in relieving the inflammation in my brain. This is exactly what I need!

I know that most use HBOT alongside of abx. But, as for now, I am doing this as a lone treatment. I'm thinking of adding in some cat's claw & JK. But, I figure I'll just wait until I see what the CIRS doc says.

Post Edited (Hoagie) : 4/25/2018 12:42:44 PM (GMT-6)


1000Daisies
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Date Joined Apr 2016
Total Posts : 2438
   Posted 4/25/2018 9:55 PM (GMT -6)   
Hoagie said...
Thanks and sorry Daisies and WBF. I know it was just recently that I discussed this with you Daisies. But what can I say? I'm in the middle of a pretty hefty herx. lol

I just got done with my session today. Hopefully the herx will begin to subside pretty soon. The tech says that I should be ok and that the blurred vision happens sometimes during treatment but will get better. For now, we are going to stick to one dive a day. For my main issue, inflamed lesion on my brainstem, I feel this treatment is probably the best thing for me right now. The tech explained to me how this treatment will actually aid in the formation of new blood vessels and repair damaged ones allowing blood to get to that area and ultimately aid in relieving the inflammation in my brain. This is exactly what I need!

I know that most use HBOT alongside of abx. But, as for now, I am doing this as a lone treatment. I'm thinking of adding in some cat's claw & JK. But, I figure I'll just wait until I see what the CIRS doc says.


Hey Hoagie! I don't think most people necessarily use HBOT with abx. I've seen people do varying approaches. We usually were not doing HBOT with abx (but we've done so many that it did indeed vary for us).

Some people feel that HBOT should be done by itself, but I don't necessarily agree with that depending on the situation. I just read a book by a HBOT doctor, and he said HBOT is rarely used as a solo treatment for lyme. I tend to agree with that. But man, HBOT can be really powerful healing for some people.

Did you ever see that link I posted about the child who made an amazing recovery from hyperbaric oxygen? Truly inspirational!
/www.healingwell.com/community/default.aspx?f=30&m=3927119

Hoagie
Veteran Member


Date Joined Jul 2017
Total Posts : 619
   Posted 4/26/2018 12:19 PM (GMT -6)   
1000Daisies said...
Hoagie said...
Thanks and sorry Daisies and WBF. I know it was just recently that I discussed this with you Daisies. But what can I say? I'm in the middle of a pretty hefty herx. lol

I just got done with my session today. Hopefully the herx will begin to subside pretty soon. The tech says that I should be ok and that the blurred vision happens sometimes during treatment but will get better. For now, we are going to stick to one dive a day. For my main issue, inflamed lesion on my brainstem, I feel this treatment is probably the best thing for me right now. The tech explained to me how this treatment will actually aid in the formation of new blood vessels and repair damaged ones allowing blood to get to that area and ultimately aid in relieving the inflammation in my brain. This is exactly what I need!

I know that most use HBOT alongside of abx. But, as for now, I am doing this as a lone treatment. I'm thinking of adding in some cat's claw & JK. But, I figure I'll just wait until I see what the CIRS doc says.


Hey Hoagie! I don't think most people necessarily use HBOT with abx. I've seen people do varying approaches. We usually were not doing HBOT with abx (but we've done so many that it did indeed vary for us).

Some people feel that HBOT should be done by itself, but I don't necessarily agree with that depending on the situation. I just read a book by a HBOT doctor, and he said HBOT is rarely used as a solo treatment for lyme. I tend to agree with that. But man, HBOT can be really powerful healing for some people.

Did you ever see that link I posted about the child who made an amazing recovery from hyperbaric oxygen? Truly inspirational!
/www.healingwell.com/community/default.aspx?f=30&m=3927119


Thanks Daisies!

The way I feel right now, I would not be able to handle abx with the HBOT. I'm thinking about just doing 3 dives a week after next week. Mon, Wed, & Fri. It's really got my CNS in a tizzy right now. I had a dive this morning and I'm feeling better this afternoon than I have all week. But still feeling a bit herxy. I'll do another one tomorrow. I will do Mon and Tues next week. Then I take off and see my CIRS doc on Wednesday and will ask him what he thinks. Gotta manage these herxes.

I ran across an interesting article stating how "HBOT produces large amounts of ROS which are used by the body to brew 'poison' to kill invaders. This included aerobic and anaerobic bugs."

So, while HBOT works synergistically with abx, it also does a good job on it's own of killing pathogens.

hboinfo.com/hhi/lyme-co-infections-hate-hbot/

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2438
   Posted 6/11/2018 7:45 AM (GMT -6)   
Hi Hoagie! Just wondering how you are doing with HBOT lately? Also, if I recall correctly, you are living in your backyard due to mold in the house? How is that going for you too?

Hoping you are improving!!

Hoagie
Veteran Member


Date Joined Jul 2017
Total Posts : 619
   Posted 6/11/2018 8:49 AM (GMT -6)   
1000Daisies said...
Hi Hoagie! Just wondering how you are doing with HBOT lately? Also, if I recall correctly, you are living in your backyard due to mold in the house? How is that going for you too?

Hoping you are improving!!


Hi Daisies! Thanks for the thoughts.

I am just about finished. 2 dives left. I'm doing much better. I did 2 sessions early on in treatment and got blurry vision not even an hour after the 2nd dive. The doctor said this is not uncommon and should get back to normal after stopping HBOT. My walking and balance has improved. I believe this is in part of the mold tx and the HBOT.

I am still sleeping in the tent. The neighbors think I'm nuts. We are still looking for a rental. Should hopefully be out of the house and tent within a couple weeks. The cholestyramine has been a savior.

How have you been...
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