Felt Pretty Good, Now Downhill Again

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NicHostetler
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Date Joined Mar 2017
Total Posts : 622
   Posted 4/25/2018 2:51 PM (GMT -6)   
I’ve been in Vegas for work and now 3 weeks into bartonella treatment. Monday and Tuesday of this week I was feeling almost normal during the day. I had a drenching night sweat Monday night and woke up feeling kind of sick but not as bad as I normally did.

Then this morning I woke up and feel awful again. Back to how I felt before.

Is this typical when treating bartonella?

I thought I was FINALLY see some relief. It’s so depressing to be teased with what it feels like to have a clear mind and little to no dizzyness and then waking up with all my old symptoms (dizzyness, stomach aches, brain fog, fatigue, foot pain, headaches, heart palpitations, body aches).

It seems like once every couple months I have a good day but this seemed even more encouraging.

Is this a good sign? That maybe more good days are on their way? Or just typical ups and downs?

One other thing I’ve noticed since taking rifampin for 3 weeks is lots of muscle pains that I haven’t had before. I just always feel really sore. Lower back, shoulder blades and legs especially

BabsBunny
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Date Joined Mar 2017
Total Posts : 530
   Posted 4/25/2018 3:47 PM (GMT -6)   
The roller coaster is pretty typical. Sucks, doesn't it? I have a few days where I feel really good and start making plans and looking up... and it all comes crashing down again.

Generally though, you will find some improvement from your worst. The good days will last a little longer, the bad days won't be *quite* as bad. That's why I find it so important to track everything every day, so in the bad times I can look back and see that I AM making progress, it's just so hard to see when herxing.
Lyme, Babesia, Bartonella. Symptoms began 5/2016, didn't start treatment until 9/2016. Slow but steady recovery.

*twitch twitch*

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 4/25/2018 5:15 PM (GMT -6)   
I'm sorry, Nic. I know it's rough. I have a lot of the same symptoms, too, and I never know from one day to the next how I'm going to feel. I've had more good days in the past week and a half than I have had in months, but I've also had some really crappy days mixed in too, sometimes for 2-3 days in a row. I also tend to overdo it on the good days, which probably makes the bad days even worse.

Just know that in your misery, you are in good company. Hope things change soon and the pendulum swings in the other direction with more and more good days and the bad ones fewer and farther between. 😊

Notime4lyme
Regular Member


Date Joined Dec 2017
Total Posts : 276
   Posted 4/25/2018 7:30 PM (GMT -6)   
I'm always thinking I'm going to get better, start making plans, etc., until the next bad day hits, and then it seems like I'm back to the beginning. I think when you're treating, most of the time you can't help but kill some of the bad bacteria, so you must be getting somewhere. My problem is that I never seem to be getting anywhere fast, but I guess slower is better than nothing.

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 4/26/2018 9:09 AM (GMT -6)   
Notime4lyme said...
I'm always thinking I'm going to get better, start making plans, etc., until the next bad day hits, and then it seems like I'm back to the beginning. I think when you're treating, most of the time you can't help but kill some of the bad bacteria, so you must be getting somewhere. My problem is that I never seem to be getting anywhere fast, but I guess slower is better than nothing.


This sounds just like me. A year ago, I was having good days where I felt near normal and, like you, was ready to make plans on catching up with life and all the things I needed to do. I'd get up the next day and feel like I'd been hit by a truck. Now that I'm over 10 months into Buhner's protocols and after a long backward slide following 7 days of Augmentin in December for a sinus infection and then something weird with my gut 2-3 weeks ago, even on my good days now I feel nowhere near normal. It seems like recovery keeps slipping further and further away. I don't know why.

yancync
Veteran Member


Date Joined Nov 2015
Total Posts : 544
   Posted 4/26/2018 11:20 AM (GMT -6)   
Nic-sorry to hear that you're feeling ill again. I know DS cycled feeling really awful every 3 weeks and would have to stay home the entire week and I believe it had to do with the life cycle of Lyme which in men is 3 weeks/women with their monthly cycle from what I've read here. I'm not sure of the life cycle of Bart but if you have Lyme as well, it could be Lyme acting up.
Parent of teen DS w/ CDC+ Lyme test Nov 2015, late stage Lyme + mycoplasma (stubborn/lingering), bartonella, babesia. Currently treating with pulsed antibiotics, moving toward maintenance and headed into remission - no sick days this school year yet smile

Website I started: ParentsofLymeKids.com aka Lyme Disease 101 for Parents
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