Is This Normal for Lyme?

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Nicole4
New Member


Date Joined May 2017
Total Posts : 3
   Posted 4/26/2018 12:30 PM (GMT -6)   
Hey everyone!

Sorry if I've posted this before, my memory's really bad right now so no idea if I did!

I was diagnosed with Lyme about 3 years ago by my doctor, treated with antibiotics for 3 months, then told I must be better. I don't feel better so I'm pretty positive it's still Lyme but not 100% sure.

Right now a lot of me hurts-- particularly my head and neck, but not like a normal headache. Even my teeth hurt, and my jaw feels really achy. My arms are achy and my fingers hurt. My legs don't hurt today! 😁 But, it just changes depending on the day.

I have a ton of other symptoms too including occasional numbness, my eyes are really sensitive to the light at times, I get joint pain that moves around from one joint to another, I'm nauseous quite often, I eat as much as I can but never seem able to gain weight (I'm right at the border of being underweight). Sometimes the palms of my hands burn.

I faint on occasion but haven't for about a year. The last time I fainted when I woke up half my body was numb, my fingers were clenched tightly together, and I couldn't move them at all for about five minutes. I could feel the pressure of the fingers pressing together and genuinely thought I might break some of them because they were clenched so hard-- I don't think I'm strong enough to clench them that hard on my own, so it was really bizarre and scary!

Does that sound Lyme related to y'all? If it matters, I'm in my 20s.

I'd love any help/advice if you have any! At the moment I've given up on doctors because they've all just given me tons of expensive tests and haven't been able to help at all in the end.

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1680
   Posted 4/26/2018 12:34 PM (GMT -6)   
I'm thinking bartonella and possibly other stuff. If you only had 3 months treatment for Lyme, I'm guessing you weren't treated for coinfections.

BabsBunny
Veteran Member


Date Joined Mar 2017
Total Posts : 530
   Posted 4/26/2018 12:39 PM (GMT -6)   
It sounds exactly like what I've been through, so it's probably still Lyme or untreated coinfections.
Lyme, Babesia, Bartonella. Symptoms began 5/2016, didn't start treatment until 9/2016. Slow but steady recovery.

*twitch twitch*

Nicole4
New Member


Date Joined May 2017
Total Posts : 3
   Posted 4/26/2018 1:59 PM (GMT -6)   
BabsBunny said...
It sounds exactly like what I've been through, so it's probably still Lyme or untreated coinfections.


Did you treat yours with antibiotics? I've heard so many different things about treatment it's hard to know what to do.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32619
   Posted 4/26/2018 2:42 PM (GMT -6)   
Nicole - did you have another forum account? You mentioned posting before - but I don't see any other posts before today.

I just checked and it shows the account was created in 2017. Not sure what happened.


We do encourage our new members to read through the thread at the top of the page: "New to Lyme?...Start Here!"
Lots of information in there.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 4/26/2018 2:45:50 PM (GMT-6)


Nicole4
New Member


Date Joined May 2017
Total Posts : 3
   Posted 4/26/2018 2:45 PM (GMT -6)   
Girlie said...
Nicole - did you have another forum account? You mentioned posting before - but I don't see any other posts before today.


I don't think so, I just thought I might have remembered posting something before but couldn't find it. I probably just imagined it!

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2115
   Posted 4/26/2018 3:03 PM (GMT -6)   
Hi and welcome to our forum,

You may want to seek out a Lyme Literate MD or NP. They will be able to diagnostics you clinically by symptoms and also note that besides Lyme, ticks carry other co infections .

Since you are still having symptoms you still need treatment . Unfortunately Lyme doesn't always go away .

Many members here use ABX and also many use Herbals, Bee Venom therapy and rife.

Many use combinations of different treatments.

Well, ask questions and lean on us when you need support.

Lots of knowledgeable and caring members here on this forum.

Take care.

borrelioburgdorferii
Regular Member


Date Joined Feb 2017
Total Posts : 209
   Posted 4/26/2018 3:10 PM (GMT -6)   
You just described many of my ongoing symptoms say yes that's "normal" for Lyme (and Co)...

Why just today after an ill-advised sugar binge I had a fitful sleep and various parts of my body were numb and I awoke gasping for air. I have odd sensations in the soles of my feet, and my tongue down to my thyroid doesnt feel quite right.

As far as abx go, I've been officially "discouraged" from using abx and have a severely delayed if a marginal diagnosis now because this disease just doesnt exist as far as insurance co's and disability review panels are concerned.../s.

I have those inordinate aches and sensitivities you mention too, and yes they migrate from day to day, week to week much and often depending on diet. And some days, yeah I know some people joke around and say "everything hurts and I'm dying," but that's how I truly feel on the worst days.
Tick bite/EM rash +10 years ago
Active, athletic, with past concussions.
1st known bite: tick infested area, flu, chills, fever, neuro symptoms.
Treat with ABX/herbs recently (2-5 years now).
Get symptom free with strict diet: paleo/keto/IM fasting
Have done Buhner's Protocol, Doxycycline, Amoxicillin, Supplements.
IgG via IgeneX 31-IND, 41++, 58+ (Sep-2016)
IgM via IgeneX 31+, 41-IND (Sep-2016)
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