How do you take care of yourself....

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Kalymika
Regular Member


Date Joined Mar 2018
Total Posts : 54
   Posted 4/28/2018 2:58 PM (GMT -6)   
How do you eat healthy when the fatigue is so severe that getting a glass of water wears you out?

I have a few leftovers in the freezer and some fresh fruit but I have no energy to really take on the diet I want to do - the one from the Swiss miracle book. I found these Evol gluten free freezer meals and they seem pretty natural. I'm thinking of asking people from church to help and buying them food to cook for me.

How did/do you handle health and nutrition when moving drains you?

And since I'm asking about self care, what else do you do for self care.

I've been doing foot soaks and actually enjoying pampering my feet and painting my nails. Also Epsom baths. Some art or collaging when I feel up to it. I'm a very earthy person and I'm not allowed in the sun, so it's really effecting my mood. My favorite thing is a walk in the woods or sitting in the grass to relax, so I do that for like ten minutes or so a day before I remember that i shouldn't be in the sun. I cover up, but I'm in Florida, and it's too dang hot...lol.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33848
   Posted 4/28/2018 3:06 PM (GMT -6)   
I listen to music a lot and meet up with friends.

I love Epsom salt baths - they are a good detox.

Why can’t you be in the sun?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 377
   Posted 4/28/2018 3:24 PM (GMT -6)   
I'm having one of those days myself Kalmika - just thinking and typing is a challenge today.

I guess I'm lucky that I don't usually have more than one really bad day at a time (rarely it will stretch to 3-5 days) so I try to rely on prep from other days. I try to focus on very simple healthy food, nothing complicated. Lots of my meals are a single vegetable. Chard lightly boiled as a soup, cauliflower roasted (riced with cabbage if I have energy, topped with other veggies if I'm having a great day), green smoothies which I make 2 days of at a time. I'll just throw a bag of thawed frozen vegetables in a blender and call it soup for a week. lol. I just try to make sure that I get the veggies and the other things I want in my diet first in whatever form I can manage. On really bad days I often feel nauseous and I'm not much up to eating anyway - I just try to respect a day of rest for my body knowing that tomorrow I'll likely be able to get back to eating well.

If you have some people who can help with meal prep could they bring you lots of soups and smoothies - things that you could just store in mason jars in the fridge and that are easy to grab. Adding chia to some left over smoothie makes a really lovely pudding too if your in the mood for some comfort food.

Self care is tricky. I'm busy most of the time trying to cope and be normal. I try to find time for some yin yoga if I can as it helps me get in touch with my body where it is right now although that's not really an option on bad days. Lots of detox baths, even short ones. Then I just try to remember that 'this too shall pass' and not get too down on myself. Getting outside is wonderful too. smile

Looking forward to other's thoughts.
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 377
   Posted 4/28/2018 3:26 PM (GMT -6)   
Ooh yes, music is essential. I have certain playlists that get me through 'getting things done' good day or bad smile

I'm guessing the sun is an issue for some antibiotics?
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33848
   Posted 4/28/2018 3:36 PM (GMT -6)   
sandyfeet said...
Ooh yes, music is essential. I have certain playlists that get me through 'getting things done' good day or bad smile

I'm guessing the sun is an issue for some antibiotics?


Yes, mainly doxycycline. Mino isn't as bad.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Dahlias
Veteran Member


Date Joined Jun 2017
Total Posts : 518
   Posted 4/28/2018 3:50 PM (GMT -6)   
I am feeling the same way about cooking. Plus guilt if I make some simple vegetables for myself and don't cook a big family meal like I always did. I always made healthy family meals from scratch -- now I cook a big batch of something when I can, and at other times, the teenagers get by on spaghetti, sandwiches, nachos, etc. (They really should start doing some cooking, for educational purposes if nothing else, but I have a hard time telling them to do things I'm not doing.) So much guilt.

A couple things that help a little:

I get some veggies delivered through Hungry Harvest. (You order a box of reclaimed produce -- great stuff that was going to be thrown away because it was the wrong size or something -- and they give produce to people who need it.) That saves time and energy from shopping. It also limits the need for decisions: I cook what's in the box. (Hopefully before it goes bad.)

I am also trying to take some short cuts. I love fresh green beans. I gave in recently and bought some that were already cut and cleaned, and it was so nice. Need to do that again. I have some that are NOT cleaned and cut in the fridge, and I have been looking longingly at them all week. Lol.
"This too shall pass. It might pass like a kidney stone, but it will pass."

Lyme, babesia, mycoplasma pneumonia. Diagnosed May 2017. Neuro symptoms began September 2017. Treating 11 months so far.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33848
   Posted 4/28/2018 4:01 PM (GMT -6)   
"but I have a hard time telling them to do things I'm not doing.) So much guilt."



I'm like this with my husband...how do I tell him to pick up after himself...like put his dishes in the dishwasher..not on the counter above the dishwasher....when some days I don't do anything around the house while he works?


I know I shouldn't feel guilty...but I do. I used to have such a tidy house...clean...and organized.
Looks like a tornado hit it now.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Dahlias
Veteran Member


Date Joined Jun 2017
Total Posts : 518
   Posted 4/28/2018 4:17 PM (GMT -6)   
Girlie said...
"but I have a hard time telling them to do things I'm not doing.) So much guilt."



I'm like this with my husband...how do I tell him to pick up after himself...like put his dishes in the dishwasher..not on the counter above the dishwasher....when some days I don't do anything around the house while he works?


I know I shouldn't feel guilty...but I do.


Yes, exactly this.

And I'm still raising kids. How can I teach them what I'm not doing? On the other hand, why can't I get them to help more?

Kalymika
Regular Member


Date Joined Mar 2018
Total Posts : 54
   Posted 4/28/2018 4:19 PM (GMT -6)   
Can't be in the sun from the abx. My skin gets heated and Burns and I get this weird rash.
Girlie said...
I listen to music a lot and meet up with friends.

I love Epsom salt baths - they are a good detox.

Why can’t you be in the sun?
cry cry

Kalymika
Regular Member


Date Joined Mar 2018
Total Posts : 54
   Posted 4/28/2018 4:30 PM (GMT -6)   
I've been teaching my oldest to cook, he's ten. So that helps on the days I have them. He helps with one meal a day and him and my toddlers help clean. But I do have the guilt for not cooking more home made meals like I used to or having energy to do crafts like I used to. I'm home full time now, running my own onlone business so hopefully being able to rest a lot will leave me with more energetic days with them. I was in school and having to drive an hour to class everyday was more draining then I realized.

The smoothies someone mentioned is a great idea. There is a produce stand down the street so I can get some great fresh stuff there and make more smoothies. That is perfect for when my ex had the kids and I don't want to cook.

I also agree with the music. Music is my muse. I'm not at person, but have been binge watching Netflix the past few days because of exhaustion. So if anyone knows any good series that would be appreciated.
I also like tedtalks on YouTube and listening to Abraham Hicks and other positive meditation and such.

I'm not having a really down day, I'm just tired and home and don't have energy to do much. I have to get a few hours of work in sometime today.

This Lyme journey is crazy. I look forward to the days to come when I get my normal energy and motivation back. I can't wait to feel like myself again.
Dahlias said...
Girlie said...
"but I have a hard time telling them to do things I'm not doing.) So much guilt."


I'm like this with my husband...how do I tell him to pick up after himself...like put his dishes in the dishwasher..not on the counter above the dishwasher....when some days I don't do anything around the house while he works?


I know I shouldn't feel guilty...but I do.


Yes, exactly this.

And I'm still raising kids. How can I teach them what I'm not doing? On the other hand, why can't I get them to help more?
cry

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 377
   Posted 4/28/2018 5:21 PM (GMT -6)   
I deal with a lot of guilt too. Less so about food as my children mostly eat simple things that I can prepare easily. I'm usually able to do all of the basic house care myself and on my really bad days they're awesome about helping out here and there. But I'm coming up on three years now of being sick enough that it affects what I can do - they're grade school aged and I sometimes wonder if they can really remember all the things we used to do together and that really brings me down some days. Sigh.

Definitely looking forward to feeling like myself again and hoping I can put thoughts of lost time behind me.
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33848
   Posted 4/28/2018 6:42 PM (GMT -6)   
Kalymika said...
Can't be in the sun from the abx. My skin gets heated and Burns and I get this weird rash.
Girlie said...
I listen to music a lot and meet up with friends.

I love Epsom salt baths - they are a good detox.

Why can’t you be in the sun?
cry cry


Are you on doxycycline? Will you be on the same abx when summer hits?

(or do you live in a State that is sunny all year round?)

Hopefully you're due for a change soon...
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5083
   Posted 4/29/2018 12:36 PM (GMT -6)   
The doxy equivalent and alternative to sun burn is biaxin.

Post Edited (astroman) : 4/29/2018 11:43:39 AM (GMT-6)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33848
   Posted 4/29/2018 12:55 PM (GMT -6)   
astroman said...
The doxy equivalent and alternative to sun burn is biaxin.



Never heard of that...you sure, Astroman?


I'm very sun sensitive (fair, freckles) and doxy was horrible -
mino is okay though.

Never had an issue with biaxin.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Kalymika
Regular Member


Date Joined Mar 2018
Total Posts : 54
   Posted 4/29/2018 6:50 PM (GMT -6)   
I'm in sunny Florida...lol.
I stopped the doxy on the 19th, but was still getting burning feeling and rash on the 25th. How long does it take to get out of your system?
Girlie said...
Kalymika said...
Can't be in the sun from the abx. My skin gets heated and Burns and I get this weird rash.
Girlie said...
I listen to music a lot and meet up with friends.

I love Epsom salt baths - they are a good detox.

Why can’t you be in the sun?
cry cry


Are you on doxycycline? Will you be on the same abx when summer hits?

(or do you live in a State that is sunny all year round?)

Hopefully you're due for a change soon...
cry
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