Long-time reader here, first-time poster.
A brief run-down of my story:
- Tick bite in August 2017, but didn't recognize it at the time/forgot about it
- Progressive onset of symptoms September - December 2017, began to suspect Lyme but had no proof (had forgotten about bite, test came back negative)
- Started Buhner protocol December 2017
- Remembered about bite February 2018, returned to PCP and got 1 month of antibiotics (amoxicillin)
- Some persistent symptoms after antibiotic treatment (fatigue, burning sensation in head, twitching muscles, occasional joint/muscle pains) - remained on low-dose of Japanese Knotweed which helped to alleviate.
My issue is as follows: As time wears on, I have been able to tolerate less and less Knotweed, to the point where 1/16 of a teaspoon, or 3 drops of tincture, is enough to give me chest pain and dizziness. (Prior to antibiotics, I had been taking up to 1.5 teaspoons 3/x day as part of the Buhner protocol with no issues).
I would normally be inclined to think that this means I don't need the Knotweed anymore, but when I stop completely, the fatigue, burning sensation in head (which also causes a horrible depressed feeling), twitching, etc. all returns. I am wondering if these lingering symptoms may be something other than Lyme (likely Bartonella).
My questions are as follows:
- Has anyone else stopped tolerating even small doses Japanese Knotweed after taking relatively large doses in the past? If so, did that mean your Lyme was resolved?
- Are there any good anti-inflammatory therapies similar to Knotweed that don't mess with your blood pressure/cardiovascular system?
I actually saw an LLMD a few weeks ago who is sending my blood off to IgeneX. I brought the Knotweed issue up with the doctor and she said she felt it was a herx, which I am very skeptical of - why would I suddenly herx on tiny doses of Knotweed (starting almost immediately after ingestion) after taking much larger doses in the past (and antibiotics for that matter) without having any of the same issues?
Any wisdom you all can offer would be greatly appreciated.