Advice on positivity

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Regular Member

Date Joined Apr 2018
Total Posts : 22
   Posted 4/29/2018 8:05 PM (GMT -6)   
Hi all, I'm new here and am dealing with a Lyme relapse after being well for 1yr. I really am struggling with my emotions and feelings this go round. I'm feeling so sick and tired of being sick and tired, which I'm sure all of you can relate too. I just want to feel normal and would love any advice with helping to stay positive.

I'm treating with herbs, homeopathics, essential oils, acupuncture and magnet therapy. What I would like to know is: are there online support groups out there that are supportive AND uplifting and positive? I realize how nice it is to commiserate with others who are going through a similar experience and it's highly important to have that....but the last couple groups I had joined were so negative I had to leave them for mental sanity tongue

What are some things that have helped all of you cope and stay positive? I know there is a light at the end of this tunnel, as I was there last just seems a bit dark right now smile

Veteran Member

Date Joined Aug 2017
Total Posts : 2040
   Posted 4/29/2018 9:14 PM (GMT -6)   

I'm so sorry to hear about your relapse. I've read quite a few posts in the last week from others who relapsed. You may want to read some of their posts.

I joined this forum last August after months of researching online. I'd visited other forums, too, and some of them were quite dark and cynical. I found this forum to be both positive/encouraging and knowledgeable/informative. Both are equally important to me.

Regularly reading and responding to posts on this forum has helped me more than anything else.

Being outside in clean, fresh air enjoying natural beauty is always a mood booster for me.

Forum Moderator

Date Joined May 2014
Total Posts : 33927
   Posted 4/29/2018 10:58 PM (GMT -6)   
Welcome, OnwardJeeves!

Sorry about your relapse.

I’d say for the most part were a positive group here - lots of support and also sharing of knowledge.

I hope you find this to be true, too! smile
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Regular Member

Date Joined Mar 2018
Total Posts : 386
   Posted 4/30/2018 7:01 AM (GMT -6)   
Hi OnwardJeeves. I'm sorry to hear that you've relapsed. As WalkingByFaith mentioned there have been a number of threads on this recently and it's hard not to feel a little bit down about the future when you think of this as a possibly life long struggle.

I definitely find this group to be a positive and inspiring place. Just thinking of how much effort all of the members are willing to put in to contribute despite their own struggles really inspires me. It also reminds me of the optimism and hope of my early days on the internet when forums seemed to bring disparate people together to share ideas and information. It's a nice feeling in a world that otherwise feels a little crazy online.

On the days when the fatigue is particularly bad I tend to get very emotional and down. I try to remind myself that this too shall pass and in a day or two I'll be back to my bad but manageable norm. I'm not always that good at it so I try to get out for a walk if I can.

Mostly I try to focus on the positive. I think a lot about some of the older relatives and friends that I've been fortunate to have in my life as I now realize how much strength it took in their later years to deal with all manner of ill health with grace. I try to think of how much more I appreciate every little thing these days; I feel more present in my life, in my body, and more compassionate to those around me. Just as my illness is invisible to others, I know that everyone I meet is likely working through something that consumes their whole being as well. I try to not let lyme be the thing that defines who I am. Not always easy though.

And yeah, the biggest upside is that I'm quite rigorous now about maintaining a positive environment. I try to stay away from all things negative. I used to let myself get sucked into that. No more.

Wishing you much optimism on your recovery Onward.
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

Regular Member

Date Joined Apr 2018
Total Posts : 22
   Posted 5/1/2018 5:56 PM (GMT -6)   
Thank you all for your responses and for your suggestions, so appreciatedsmile

Regular Member

Date Joined May 2017
Total Posts : 33
   Posted 5/2/2018 10:28 AM (GMT -6)   
There's a few things to keep me going. The first and most important is knowing that this is temporary and one day this disease will be something of the past, nothing but a distant memory. Second is knowing how much you will learn and grow from this experience. And lastly when you do regain your health, i think most of us will have a greater appreciation for life in comparison to someone who has never lost their health. A lot of us did not realize how important our health was until we lost it. So when you do get your health back i think we will be able to fully appreciate that, more than someone who hasn't been what we've been through.

I think one of the greatest keys to life is finding opportunity in suffering. We were not put on this earth to experience pure joy/pleasure. Struggle is a very important aspect of life. I think the happiest of individuals have gone through very difficult times and have rose above to become greater versions of themselves.
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