Feeling Like I am Turning A Corner, but Lower Back Pain?

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NicHostetler
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Date Joined Mar 2017
Total Posts : 647
   Posted 4/30/2018 8:39 AM (GMT -6)   
Ok, so first of all I have been on Rifampin and Zithromax for 3 weeks now. I still wake up during the night feeling terrible and also in the morning, but I have noticed throughout the day I am starting to feel a little better. I had enough energy this weekend to move out of my old apartment and into a house I just bought.

There were times when I just sat back and smiled and just enjoyed the feeling of having a clear mind and only a slight amount of dizziness.

Currently I feel very foggy and fatigued, but it's still early in the morning, we will see if I feel better in the afternoon. I hate talking about improvement because we all know how quickly it can slip out of our hands. Just knowing that I can feel that way though is very relieving to me!

Anyway, the main thing that is really bothering me is my lower back, lower than my kidneys I think. When I sit down I get lots of pain around my spin/and just left of the spin and then when I stand up I get lots of shooting pain all the way down into my tail bone.

I went to the chiropractor but it didn't help. I am not sure if it is muscle related or what but I cant seem to find relief unless i stand for a period of time. The bad thing is, I work an office job.

Has anyone else had this issue with bartonella and or lyme? Could it be from the Rifampin? It's a distraction at work because it hurts so bad. I have had it for a couple weeks not but at first it only hurt when I stood up around my tail bone, now it hurts even while sitting.

sierraDon
Regular Member


Date Joined Aug 2016
Total Posts : 292
   Posted 4/30/2018 8:44 AM (GMT -6)   
It sounds like your back more so than your kidneys/liver, but incidently i had crippling back pain in my kidney area on sunday. just got my blood test done, my liver enzyme was slightly off and some kidney markers elevated. i am on rifabutin for close to 5 weeks

you may want to get your blood work done just to be sure.

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 2041
   Posted 4/30/2018 9:10 AM (GMT -6)   
Yes. I've had various back pain with bartonella/Lyme. I'm pretty sure it's from inflammation. I've had it across the lower back, where I can't stand up straight. Had it across the middle back and would wiggle and squirm all day bending my back and shoulders around trying to crack the little bones deep inside that area.

One day recently when it was really bad, I mentioned it to the chiropractor. He felt of my back and said there was inflammation in several muscles. He said he could feel the heat in it.

I think it happens the most when I'm herxing or very toxic for other reasons.

Anti-inflammatories are the best thing fir inflammation. Tgere are a lot of them most of us typically use. I use tge standard stuff daily - fish oil, curcumin, quercetin, Japanese knotweed. Those don't prevent a lot of inflammation for me. The most potent thing I've ever used for that is SPM Active by Metagenics.

Anyway, try some ice packs in the sore areas and try to reduce the herxing / increase the detoxing. You know the drill. I usually have to back off treatment, as the drill doesn't seem to usually work for me.

Notime4lyme
Regular Member


Date Joined Dec 2017
Total Posts : 386
   Posted 4/30/2018 12:03 PM (GMT -6)   
I've had lower back pain off and on. I've heard that it could be adrenal fatigue, but I agree with WalkingbyFaith about inflamed muscles. For me it gets really bad if I'm in the car a lot.

borrelioburgdorferii
Regular Member


Date Joined Feb 2017
Total Posts : 246
   Posted 4/30/2018 12:22 PM (GMT -6)   
I had some pretty bad pain in the lower back area below the kidneys like you're saying. I had done a full day of chores that day and as I went to begin my sleep feeling very exhausted, I could barely stand for a minute without feeling this flaring pain in my lower back when I tried to stand. It wasn't like a normal back-pulled pain, it was more like a swollen nerve inflamed, and don't know if there are lymph nodes in that area but I tried to massage and work out the knots there.

...
then I slept about 16 maybe 18 hours the next day, no joke. (that is not a normal amount of fatigue for one day's work I know) And most of the inflammation went down since then.

Also if I take cholestyramine esp. with not enough water at night, I have mild to intermediate kidney pain and bladder pain while urinating the next day, I surmise it is toxins and bacteria fragments making their way out. I'm guessing some strain of Bartonella but haven't the fancy test for different strains yet, just know that co-infections in there are more likely than not.
Tick bite/EM rash +10 years ago
Active, athletic, with past concussions.
1st known bite: tick infested area, flu, chills, fever, neuro symptoms.
Treat with ABX/herbs recently (2-5 years now).
Get symptom free with strict diet: paleo/keto/IM fasting
Have done Buhner's Protocol, Doxycycline, Amoxicillin, Supplements.
IgG via IgeneX 31-IND, 41++, 58+ (Sep-2016)
IgM via IgeneX 31+, 41-IND (Sep-2016)

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 647
   Posted 4/30/2018 3:35 PM (GMT -6)   
Interesting, thank you all for the replies!

Now, of course, after posting that I was seeing improvement I totally am downhill today.. After 5ish days of feeling clear minded it sucks to be back down.

I'm really worried because I was feeling good when I was at the work conference in Vegas. Now feeling crappy again since I'm back in the office. I almost wonder if it's like environmental toxins or even like the water?

Why would I feel better when I was out of town and then feel terrible again when I came back?

Although there were other times I felt horrible while I was traveling so maybe its just coincidence and I am having a little flair or herx.

Just very depressing to get teased with the feeling of feeling normal and getting really excited only to be disappointed with a bad day.. hopefully I feel back to being better tomorrow.
Very sick starting around 07/2016
Started treatment 03/2017
Bixain & Cefdinir - 3 months - plateaued
Then Biaxin & Minocycline - 3 months - did not improve
Tinidazole - 500MG 2x a day - 2 weeks
Now taking:
Mepron 5mL 2x a day
Zithromax
Nystatin
Cats Claw - 30 drops 2x a day
Gou Teng - 30 drops 2x a day
CSA - 40 drops 2x a day
Japanese Knotweed - 40 drops 2x a day

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 2041
   Posted 4/30/2018 4:39 PM (GMT -6)   
Nic,

Try taking notes of where you went in relation to good days / bad days. Environmental toxins are really a big issue for me.

You also mentioned you moved. Be sure to check your new house for mold, leaks, humidity/moisture including attic, crawlspace or basement, AC unit and ductwork.

Check to make sure the bathroom and kitchen exhaust fans are vented all the way through to the outside through the roof and not into the attic space where they will cause mold (like in my house).

When you go to the office, look around. Do you see any brown water stains anywhere especially ceiling tiles. Look at the AC vents. Are they dirty, rusty, or splattered with brown/black spots? In the bathroom and around water fountains, are there any signs of water leaks, black grime along the baseboards?

Go outside for breaks and lunch. When you come back in the building, does the air feel clean or does it feel stale? Does your face, lips, mouth, gums, eyes, scalp, or lungs burn or tighten up when you get inside the office (or the house)?

It's easier to gauge indoor air quality if you've been outdoors for a while (45 minutes to an hour) and are feeling comfortable and relatively symptom free. It would be harder to gauge after driving to work breathing exhaust fumes from the traffic or mold from your vehicle AC.

Bad times while out if town could also be from mold or other environmental toxins in different places like airports, on airplanes, in restaurants, while site seeing, etc.
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