Great Interview from CIRS Doctor

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Hoagie
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Date Joined Jul 2017
Total Posts : 614
   Posted 5/1/2018 4:24 PM (GMT -6)   
He treats mold and lyme. I've got an appointment with him tomorrow. I have high hopes with him.



/www.youtube.com/watch?v=tuXjpfeosps

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32619
   Posted 5/1/2018 5:07 PM (GMT -6)   
Good luck, Hoagie!

Hope your appt goes well - keep us posted - okay?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1680
   Posted 5/1/2018 6:17 PM (GMT -6)   
Hoagie,

Hope it goes well. Have you been evaluated/treated for CIRS previously?

Hoagie
Veteran Member


Date Joined Jul 2017
Total Posts : 614
   Posted 5/1/2018 6:19 PM (GMT -6)   
Thank you Girlie. Thanks to forum member loutucky for telling me about this doctor.

Hoagie
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Date Joined Jul 2017
Total Posts : 614
   Posted 5/1/2018 6:23 PM (GMT -6)   
WalkingbyFaith said...
Hoagie,

Hope it goes well. Have you been evaluated/treated for CIRS previously?


This will be my first time. I have a feeling I may have to pick up and leave my house. We'll see. I'm pretty convinced mold is my primary problem. I have the gene and exposure. I think the lyme infection just made everything worse.

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1680
   Posted 5/1/2018 6:46 PM (GMT -6)   
Hoagie said...
WalkingbyFaith said...
Hoagie,

Hope it goes well. Have you been evaluated/treated for CIRS previously?


This will be my first time. I have a feeling I may have to pick up and leave my house. We'll see. I'm pretty convinced mold is my primary problem. I have the gene and exposure. I think the lyme infection just made everything worse.


Were you the one who had your house renediated? Did it not work? We're trying to make a decision about that now. We've been living with relatives for a year and a half.

My biggest fear though is if we sell it and move, we could still end up in the same situation. I have chemucal sensitivities, too, pretty bad and that further complicates things for me.

Hoagie
Veteran Member


Date Joined Jul 2017
Total Posts : 614
   Posted 5/1/2018 7:49 PM (GMT -6)   
WalkingbyFaith said...
Hoagie said...
WalkingbyFaith said...
Hoagie,

Hope it goes well. Have you been evaluated/treated for CIRS previously?


This will be my first time. I have a feeling I may have to pick up and leave my house. We'll see. I'm pretty convinced mold is my primary problem. I have the gene and exposure. I think the lyme infection just made everything worse.


Were you the one who had your house renediated? Did it not work? We're trying to make a decision about that now. We've been living with relatives for a year and a half.

My biggest fear though is if we sell it and move, we could still end up in the same situation. I have chemucal sensitivities, too, pretty bad and that further complicates things for me.


Sorry to hear that WBF.

I did have remediation done. But from what I've been reading, it most likely wasn't enough.

Our bathrooms are very poorly ventilated. Mold has shown up a couple times on the ceiling of both bathrooms. Both times we sprayed with concrobium and painted over the stains with Killz paint and primer. But it comes back. I have read that that the ceiling should just be replaced.

We recently had the hvac unit fully replaced due to mold in the air handler and uv air purifiers installed in the air handler. We also had the crawlspace remediated for mold as well. However, the subflooring under one of our bathrooms had sustained some pretty hefty damage from a leaky commode. So it was sprayed with antimold botanicals, but not replaced.

I feel there are probably all kinds of spores in our carpet due to the hvac blowing it throughout our house for who knows how long. I fogged the entire house with Benefect. Air tested 3 rooms with a machine I rented from a mold company. The tests came back with a very low mold count per cubic meter. Which is good. But I have since discovered that air testing is extremely unreliable. The best test to use is the ERMI test. You get dust samples from your carpet and a lab analyzes it. So, now I have to scrape up more money to do that. And if that test comes back with a high rating, we are moving elsewhere. Our health is way more important than the loss we'd take on the house.

God will provide.
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