I'm struggling with treating Kid#2. Background: He was on abx for years proactively previously. Despite that, he seriously got so sick that he couldn't attend school regularly for nearly two years. He went from a fully functioning kid to not being able to go to school. We dropped the abx and switched to various herbals (and other things), and he slowly improved so much that he's back at school for most days this year (but still missed a fair share of days/partial days - but he does go the majority of the year). This is a huge improvement from prior years. BUT...
However, this past winter to current (starting in December), he's been slowly slipping backwards and getting worse overall - despite whatever I try. This past month has been pretty bad/difficult.
What does he have? Wish I knew. He tested positive for lyme, but I suspect babesia/bartonella to definitely be more of an issue. He didn't respond much to the lyme herbals that he was previously on. He improved more on the babesia/bartonella herbals in my opinion previously.
He is currently on babesia/bartonella herbals (and has been for quite some time - for nearly a year now?). He is on very low dose (we took a break in January) and only on 5 drops each now (been on higher previously).
He has previously responded well to antivirals, as this is apparently a big factor for him. However, he no longer appears to be responding to them anymore. NP suggested that we try the prescript
ion antivirals. I talked to our functional medicine doctor (LLMD), and he agreed we can try this too if we want.
We've done the heavy metal supplements and testing. He tests really low on all heavy metals and doesn't appear to be a concern so we moved on after we've done numerous cycles for that.
I've given anti-yeast supplements in the past (short term) and doesn't seem to make a difference in symptoms, but I'd like to try another round for longer.
We've done HBOT (hard and soft), but it doesn't seem to improve his symptoms. We will likely do another round this summer with soft chamber.
He's done numerous UVLrx but doesn't seem to be responding now to it. (Seemed to really help previously though although in an atypical way compared to others.)
I don't believe mold is an issue, but we do sometimes use the anti-mold medication for bad days and barely helps (if it at all).
Revisiting with our NP (we haven't seen in awhile) to get his opinion again on direction.
Probably dropping the Buhner herbals and switching to Byron Whiter herbals instead.
I'm leaning toward the prescript
ion anti-virals to give that a try.
I'm also thinking of doing an anti-parasite supplement that I haven't tried yet.
LDI has also been an option if we can't make progress.
If we go to a clinic/center, this would be the summer to do it (but I have concerns with doing so).
I'm at a loss of what to try next. I'm clearly missing something with him and haven't figured it out yet. Any feedback?
Well, after consulting with NP, we came up with a plan.
1. Byron White detox2 and anti-inflammatory formulas.
2. Anti-virals (prescript
ion and Byron White herbal formula).
3. Add in Byron White Babesia and bartonella formulas.
4. LDI if above does not help (but it's so very new).
I also have the Byron White adrenal formula. Maybe I should try that between steps 2 and 3. Wonder if that affects his moods/anger.
I listened to Byron White speak during the Chronic Lyme Disease Summit #3. I understood him to say that when people react to very low doses of the herbal formulas, that they are very toxic and to back up to address the detox and inflammation. He recommended the detox2 formula before doing the other types of specific herbals (like babs/bartonella/etc). Said he saw improvement from detox2/anti-inflammation (believe he said both?) first before even adding the other combo herbals. I thought that was hopeful (although we don't tend to react well to what works for others - but this makes good logical sense).
My Kid#2 doesn't respond to any detox methods, so it's discouraging. But I'm going to give this a try and see what happens!
open to other feedback!
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.
Post Edited (1000Daisies) : 5/20/2018 12:55:31 PM (GMT-6)