How to choose which clinic is best for treatment?

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Love Yourself
New Member


Date Joined Apr 2012
Total Posts : 19
   Posted 5/7/2018 1:41 PM (GMT -6)   
Hello all,


I’ve posted on her a few times before and I was hoping to get some feedback. smile


I became completely housebound with chronic Lyme disease 7 years ago. Right after I graduated college I moved across the country and that’s basically when everything went downhill for me. Then I just kept pushing myself until I got sicker and sicker and eventually I couldn’t even work anymore. My major symptoms are the exact symptoms from Chronic Fatigue Syndrome. Anyway, I’ve been seeing Dr. H in Hyde Park for the past 5 (or more) years and I’m not getting ANY substantial results. Ironically, I think he somehow was able to treat a lot of my coinfections, but overall I just seem to be getting worse. (I now use a wheelchair for mobility and I have the worst lyme neuro issues imaginable. I can NEVER think straight).


I’ve decided I’m going to switch treatment styles but I can’t decide on what to do. I do know that I’m going to take a break from oral antibiotics. I also know that I really want to focus on whole body healing. I’ve been looking into hyperthermia clinics as well as the Sophia Health Institute. I really like the extensive testing of the Sanoviv Hyperthymia clinic in Mexico (as well as the overall success rate for hyperthermia treatments seeming to be higher), but I’ve also always been drawn to Dr. K’s treatment approach.


As a random side note, my extreme neuro issues started when I started the vital plan (I literally feel like I’m drunk/on drugs ALL the time). I tried going off of it for over a month to rule it from being an allergic reaction, but they never subsided. I actually had a long red line going down my spine from the base of my head from that protocol/when my extreme neuro issues started last fall. I think the herbs in that protocol stirred up my neuro lyme.


I went on Buhner’s protocol after being on the vital plan for months (literally would not recommend the vital plan to anyone, the herb doses are extremely low and it was just a huge waste of time for me) in the hopes it would help my neuro lyme since the herbs seemed to be what caused it to fight back in the first place. I’m on it now and while my sleep has greatly improved, I still waiting for changes in my neuro symptoms while currently considering other treatments as well. I'm at the point where I'm researching clinics and trying to figure out what's best for me.

Post Edited (InsertAwesomeNameHere) : 5/7/2018 2:08:12 PM (GMT-6)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 5/7/2018 1:49 PM (GMT -6)   
Sorry you haven't gotten any results from your treatment. Question: What does Dr. H. say about that?

Also - have you tried IV antibiotics?

I haven't seen a lot of success with the hyperthermia treatments.

Have you considered the HANSA center?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Love Yourself
New Member


Date Joined Apr 2012
Total Posts : 19
   Posted 5/7/2018 2:12 PM (GMT -6)   
I haven't yet discussed it with Dr. H. I actually think I may stop going to him entirely (which is scary in itself because I know he's a really great doctor, but I'm just not getting any results at this point).


I have never tried IV antibiotics, but I use to want to. I previously had the option but chose not to due to the risks involved (I'm now regretting that decision).


I have considered the HANSA center previously. I'll look into them again! Have you heard good things about them?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 5/7/2018 2:20 PM (GMT -6)   
InsertAwesomeNameHere said...
I haven't yet discussed it with Dr. H. I actually think I may stop going to him entirely (which is scary in itself because I know he's a really great doctor, but I'm just not getting any results at this point).




So in the 5 years you've been seeing Dr. H. - it wasn't discussed - your lack of improving?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 5/7/2018 2:22 PM (GMT -6)   
InsertAwesomeNameHere said...
I haven't yet discussed it with Dr. H. I actually think I may stop going to him entirely (which is scary in itself because I know he's a really great doctor, but I'm just not getting any results at this point).


I have never tried IV antibiotics, but I use to want to. I previously had the option but chose not to due to the risks involved (I'm now regretting that decision).


I have considered the HANSA center previously. I'll look into them again! Have you heard good things about them?


I've heard mixed reviews...50/50

Some people have not gotten better, others' have but relapsed, and others' get well and stay well.


But, of all the treatment centers I've heard of - Hansa seems to be the better one IMO. They look at each individual and treat them based on their needs/weaknesses.
It's not a 'one size, fits all' protocol.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Love Yourself
New Member


Date Joined Apr 2012
Total Posts : 19
   Posted 5/7/2018 2:48 PM (GMT -6)   
My lack of improving has been continually discussed. I’ve been on numerous protocols (I’ve probably tried nearly all of his protocols at this point). I’m just not getting improvements being on antibiotics unfortunately. He has a new dapsone protocol which he’s gotten really good results with. I tried it last year and while I do feel like it helped me get some of my personality back, somehow my physical and cognitive symptoms are continuing to deteriorate.


My condition is so severe that I wasn’t even seeing his PA’s, only him. So, at this point I’m just trying my hardest to find an alternative that is tailored to the individuals needs, focused on whole body approach and doesn’t use oral antibiotics as the main treatment option since I don’t seem to be responding to them at all.


I’ll look into the Hansa center, thank you!

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1527
   Posted 5/7/2018 3:14 PM (GMT -6)   
i have a question, u say oral antibiotics and IV antibiotics, so your world of antibiotics seem to be split into apples (IV) and oranges (oral).

This cannot be more false. There are countless types of both oral and IV antibiotics. Some will not help you at all, some will greatly do, from both categories.

You said you are on oral antibiotics. May i ask what are these antibiotics ? And how long have u tried it ? U mentioned dapsone and u tried this last year. For how many months ? Do you know dr H trialed this on people for 6+ months and it has proven to be not enough ? Dapsone is used to treat leprosy (another chronic bacterial infection) but treatment duration is at least one year ....'


Also, have you tried combinations of 3-4 antibiotics ? What mixes?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 5/7/2018 3:28 PM (GMT -6)   
mpost said...
i have a question, u say oral antibiotics and IV antibiotics, so your world of antibiotics seem to be split into apples (IV) and oranges (oral).

This cannot be more false. There are countless types of both oral and IV antibiotics. Some will not help you at all, some will greatly do, from both categories.

You said you are on oral antibiotics. May i ask what are these antibiotics ? And how long have u tried it ? U mentioned dapsone and u tried this last year. For how many months ? Do you know dr H trialed this on people for 6+ months and it has proven to be not enough ? Dapsone is used to treat leprosy (another chronic bacterial infection) but treatment duration is at least one year ....'


Also, have you tried combinations of 3-4 antibiotics ? What mixes?


mpost - you know that she is being treated by Dr. H.??
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1527
   Posted 5/7/2018 3:35 PM (GMT -6)   
ah sorry, no.

then my reply is of no use sad
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