Dacarte - I’m not sure I want to feel good for 80% of the time - if 20 or ( or 10% or 30%)of the time we are symptomatic - I would think we still need treatment?
I want what the people I know (and have talked to) who are in remission have - they feel good everyday - there’s no ups and downs - wondering how they will feel day to day.
They aren’t symptomatic 5 days a month.
I don’t see it to be an unrealistic goal.
(I’m distinguishing symptoms from leftover ‘damage’)
I share your perspective on this. I don't buy in too much to the "residual damage" explanation, although I'm sure it's true in some cases. I am inclined to believe that many people accept that theory too readily because their quality of life has reached an acceptable level, and they are tired of treatment and the herxing or side effects they have from it. They're ready to be done.
I would not be surprised if those folks would have significant increases in symptoms of coinfections if they suddenly switched to high doses of some potent treatment for those infections, especially if it's treatments they haven't done before.
I think a good bit of lingering symptoms is actually lingering coinfections as opposed to any "residual damage." Residual damage wouldn't cause herxing or increased symptoms in response to treatment. I also don't think residual symptoms would randomly come and go like Lyme/co symptoms typically do. Just my opinion.Well, I'm not saying that there won't be residual damage for some people...eg - I don't know if my collagen will ever come back...doubt it...but that's not an ongoing symptom...I'm not losing anymore.
But things like twitching, memory issues...sore feet....etc. things that I would call symptoms - I wouldn't want to have them happening 5 days per month.
I have days where I am almost asymptomatic...I figure if that can happen here and there....then it can happen every single day. Lofty goals? maybe.
And I do know people who are asymptomatic...they don't wake up one day and have symptoms...a few days per month.
"I think a good bit of lingering symptoms is actually lingering coinfections as opposed to any "residual damage." Residual damage wouldn't cause herxing or increased symptoms in response to treatment. I also don't think residual symptoms would randomly come and go like Lyme/co symptoms typically do. Just my opinion."
I agree. with the randomness....and flares especially on targeted treatment.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi