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Serfr
Regular Member


Date Joined Jan 2014
Total Posts : 256
   Posted 5/8/2018 3:22 AM (GMT -6)   
How has your life changed?

If I woke up in the middle of the night and my room was on fire, I would have to sit on the side of my bed and watch it burn for a minute until my dizziness subsided.

Never thought I would say this but sweets, breads and dairy are repulsive to me.

I used to walk along the edge of my woods and pick up the trash. Today a giant piece of styrofoam blew into it and will stay there until the next owners are brave enough.
Tried abx and iv abx for 2 yrs, now trying herbs; Chronic Tonic (bottled) CSA formula, JK, Houttunia, Andrographis, Cats Claw, Oil of Oregano
Sx Aug '13-
Extreme fatigue, dizziness, head pressure, 1 seizure, ringing ears, crawling sensations everywhere, throat pain, groin pain, very cold hands/feet, joint pain, sole pain, body/muscle spasms, teeth/gum pain, constipation, depression, panic attacks

Serfr
Regular Member


Date Joined Jan 2014
Total Posts : 256
   Posted 5/8/2018 6:49 AM (GMT -6)   
I hired a landscaper crew to mow my lawn, because im too sick, They told me I was their 2nd house of the day so far. I stumbled like a drunk out of my house and told them "one little bug bite did this to me. Be careful out there. I didnt catch it early, and my life is ruined because of it. New England is ground zero for ticks." my wife told me i scared them during a beautiful spring day like a crazy person, but what am i supposed to do, not say anything?
Tried abx and iv abx for 2 yrs, now trying herbs; Chronic Tonic (bottled) CSA formula, JK, Houttunia, Andrographis, Cats Claw, Oil of Oregano
Sx Aug '13-
Extreme fatigue, dizziness, head pressure, 1 seizure, ringing ears, crawling sensations everywhere, throat pain, groin pain, very cold hands/feet, joint pain, sole pain, body/muscle spasms, teeth/gum pain, constipation, depression, panic attacks

Kitkate
Regular Member


Date Joined Jun 2014
Total Posts : 148
   Posted 5/8/2018 7:49 AM (GMT -6)   
I've had two miscarriages since this whole thing began. I've lost time as well and have been dealing with a lot of fear and anxiety. This sucks. I do eat better now and am more aware of my body (how can I not be as it's constantly in a state of inflammation!).

Noah2112
Regular Member


Date Joined Dec 2017
Total Posts : 56
   Posted 5/8/2018 8:06 AM (GMT -6)   
I've been more fortunate than some people dealing with Lyme long term, I was diagnosed 7 months after symptoms started and my LLMD says I'm a pretty mild case. My main symptoms are muscle fatigue, tingling in the extremities and face, and the occasional ringing in the ears (which has gone away with treatment, mostly). For the most part I've lived my life normally through all of this, especially since starting treatment in January and after beginning to see improvement.

The biggest change has been limiting myself to light activity because of my muscle fatigue. I can still jog a mile, but if I push it and run as fast as I used to before all of this I'll be sore for days. But if I take it slower and jog at a moderate pace I'm alright. My doctor and I are hoping that by the end of the year we'll be able to get rid of the last of my symptoms, with continued antibiotics. I wish each of you luck in recovering as well!

sierraDon
Regular Member


Date Joined Aug 2016
Total Posts : 184
   Posted 5/8/2018 8:13 AM (GMT -6)   
yes, this disease impacts in a profound way.

i used to love the outdoors it was such a large part of my life, and care free...mountain biking, hiking, fishing. now it freaks me out to go in my back yard.

i am confident that this fear and/or 'fight or flight' mentality will pass, but it will take a while. and it just reaffirms that i will have to forever be vigilant for my own health and that of my family.

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 5/8/2018 8:51 AM (GMT -6)   
Kitkate said...
I. . . am more aware of my body (how can I not be as it's constantly in a state of inflammation!).


Me too. For 9 years now. I notice every little change in my body and it always sets me on high alert and alarm bells are ringing.

The first 6.5 years I didn't know what I had. Doctors couldn't find anything wrong me. After a while, I just told them I chronic illness, that something happened to me in 2009 and my body was never normal again after that.

Notime4lyme
Regular Member


Date Joined Dec 2017
Total Posts : 273
   Posted 5/8/2018 11:36 AM (GMT -6)   
I think I've learned a lot. I think I've had it easier than some because I've had a very supportive family. Hopefully I've learned to be more patient... That's why I called myself Notime4lyme. But I guess I've gotten used to having Lyme for the most part...sort of. I've had it for 9 years at least.

I used to be too scared to go in my backyard, but now I just go out and check for ticks really carefully afterwards.
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