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Alicethenut
Regular Member


Date Joined Jul 2017
Total Posts : 21
   Posted 5/9/2018 5:05 PM (GMT -6)   
This is the second ipad I have broken because of bartonella rage, I’m so tired of this, when I get even a little frustrated I want to hurl every object near me. How do you all deal with this? I feel like a toddler with no control of my emotions or actions.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32559
   Posted 5/9/2018 5:40 PM (GMT -6)   
Alice - Are you currently treating? Have you discussed this with your Lyme Doc?


...also, are you detoxing...particularly taking something for the brain/CNS?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

borrelioburgdorferii
Regular Member


Date Joined Feb 2017
Total Posts : 209
   Posted 5/9/2018 8:51 PM (GMT -6)   
If it is any consolation I have these sorts of rage feelings. (I attribute it to a heavy detox load, after a cheat-day of eating/drinking mostly everything I wanted, whereas I usually do ok with keto/paleo).

I had one during a trip to the drugstore, they were out of my favorite body wash, it was the last thing on my list, and everything else was picked over and I didn't get the discount or quantity I wanted of those either. The car ride was weird, halos and reflections, feeling like my eyes wouldn't focus or were wall eyed or wanting bug out in two different directions, couldn't make much eye contact, weird impulses. So I felt a rage-quit low key legit angry feeling (like a toddler wanting to throw something) about not getting all the items on my list checked off (!) I had to make the list to remember 4 things to get in the first place, and like I said they were completely out of one thing I needed and I had strange intrusive thoughts and myopic attention at the same time if that makes sense.

And this is on low doses of Trintellix (Vortioxetine 5mg) which sorta mellowed me out enough to make the trip in the first place.

It's like I am almost full-on autistic with these symptoms which is why I don't like to go out much. And if I get weird reactions or the wrong sort of attention, I usually mention the word "autism" at some point in the conversation which sometimes betters my interactions if I happen to see the same cashiers, workers or manager again.

But I definitely don't like being like this, it's a depressing and angst-ridden way of living.
Tick bite/EM rash +10 years ago
Active, athletic, with past concussions.
1st known bite: tick infested area, flu, chills, fever, neuro symptoms.
Treat with ABX/herbs recently (2-5 years now).
Get symptom free with strict diet: paleo/keto/IM fasting
Have done Buhner's Protocol, Doxycycline, Amoxicillin, Supplements.
IgG via IgeneX 31-IND, 41++, 58+ (Sep-2016)
IgM via IgeneX 31+, 41-IND (Sep-2016)

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1519
   Posted 5/10/2018 2:39 AM (GMT -6)   
Alicethenut said...
This is the second ipad I have broken because of bartonella rage, I’m so tired of this, when I get even a little frustrated I want to hurl every object near me. How do you all deal with this? I feel like a toddler with no control of my emotions or actions.


yoga, meditation, etc... i think this is something that can be easily controlled with such techniques.
i would also be worried about responsibility. just because u have bartonella does not mean u can get away with rage. on the contrary, you need to work more to keep yourself together. but there is a hi risk that, since you know you have bart and since you know this may lead to rage, you will lower your bar and allow yourself to do things that you would not if you would just know u were healthy ....

so be careful, the mind is always playing tricks on us. get some meditation lessons (or use youtube and try yourself), they will help you enormously. breathing lessons are the easiest.

Alicethenut
Regular Member


Date Joined Jul 2017
Total Posts : 21
   Posted 5/10/2018 3:43 AM (GMT -6)   
mpost said...
Alicethenut said...
This is the second ipad I have broken because of bartonella rage, I’m so tired of this, when I get even a little frustrated I want to hurl every object near me. How do you all deal with this? I feel like a toddler with no control of my emotions or actions.


yoga, meditation, etc... i think this is something that can be easily controlled with such techniques.
i would also be worried about responsibility. just because u have bartonella does not mean u can get away with rage. on the contrary, you need to work more to keep yourself together. but there is a hi risk that, since you know you have bart and since you know this may lead to rage, you will lower your bar and allow yourself to do things that you would not if you would just know u were healthy ....

so be careful, the mind is always playing tricks on us. get some meditation lessons (or use youtube and try yourself), they will help you enormously. breathing lessons are the easiest.



Thanks for the terrible advice!

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1519
   Posted 5/10/2018 4:12 AM (GMT -6)   
Alicethenut said...

Thanks for the terrible advice!


sorry, just trying to help. i have had rage too at some point during this disease, i think i know quite well how it feels like sad

i no longer have it. i'd say antibiotic treatment is the best thing to improve it long term.

Notime4lyme
Regular Member


Date Joined Dec 2017
Total Posts : 272
   Posted 5/10/2018 9:05 AM (GMT -6)   
I had really bad rage the first few years I had Lyme. I broke my hair brush twice from throwing against the wall. I probably broke a lot of other things, but I can't remember because for me the rage attacks seemed to come with amnesia or something- I wouldn't remember what I did or said when I was angry, but unfortunately everything else did.

When I feel angry it really helps me to write my angry thoughts down in a journal, or listen to music or read an uplifting book. Sometimes it helps to go for a walk. Sometimes I sort of say to myself that I feel really angry, but I try to take my energy I'm spending being angry and do something that might help myself or other people instead of being angry.

And I try to avoid triggers. If I tend to feel angry after going certain places I know it probably mold or something environmental. Also for me watching certain movies or TV shows gets me all riled up, but I'm not sure that that's Lyme rage.

Rare Squirrel
Regular Member


Date Joined May 2018
Total Posts : 38
   Posted 5/10/2018 10:26 PM (GMT -6)   
The problem with rage is that it isn't rational so rational advice is not going to help. It's like walking up to a toddler during a tantrum and telling him he isn't being rational and expecting him to sit up and say, oh ok, and then just stop. And I'm sorry but with all the just plain over the top BS we have to deal with having these diseases every single day, YES WE CAN ABSOLUTELY GET AWAY WITH RAGE AND ARE ENTITLED TO IT! You wouldn't tell someone with cancer that they need to stop whining about it and grow up would you? That's the equivalent of telling someone to swallow their feelings and never let them show. Doesn't sound very healthy to me.

Yes people can use meditation and other methods to try to cut down on the attacks of rage, but when they happen, they happen and there is no reason for anyone to make us feel bad about them happening! I'm sure that wasn't your intent, but that is how it came across and was a bit like adding insult to injury. I'd be more worried about someone NOT having rage when they have all of this going on and are living in a world that seems determined to keep us unsupported and suffering!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32559
   Posted 5/11/2018 12:12 AM (GMT -6)   
Alicethenut said...
mpost said...
Alicethenut said...
This is the second ipad I have broken because of bartonella rage, I’m so tired of this, when I get even a little frustrated I want to hurl every object near me. How do you all deal with this? I feel like a toddler with no control of my emotions or actions.


yoga, meditation, etc... i think this is something that can be easily controlled with such techniques.
i would also be worried about responsibility. just because u have bartonella does not mean u can get away with rage. on the contrary, you need to work more to keep yourself together. but there is a hi risk that, since you know you have bart and since you know this may lead to rage, you will lower your bar and allow yourself to do things that you would not if you would just know u were healthy ....

so be careful, the mind is always playing tricks on us. get some meditation lessons (or use youtube and try yourself), they will help you enormously. breathing lessons are the easiest.



Thanks for the terrible advice!


What have you tried so far? Do you do anything for detoxing your brain?
Are you currently treating? Which infection?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32559
   Posted 5/11/2018 12:13 AM (GMT -6)   
Rare Squirrel said...
The problem with rage is that it isn't rational so rational advice is not going to help. It's like walking up to a toddler during a tantrum and telling him he isn't being rational and expecting him to sit up and say, oh ok, and then just stop. And I'm sorry but with all the just plain over the top BS we have to deal with having these diseases every single day, YES WE CAN ABSOLUTELY GET AWAY WITH RAGE AND ARE ENTITLED TO IT! You wouldn't tell someone with cancer that they need to stop whining about it and grow up would you? That's the equivalent of telling someone to swallow their feelings and never let them show. Doesn't sound very healthy to me.

Yes people can use meditation and other methods to try to cut down on the attacks of rage, but when they happen, they happen and there is no reason for anyone to make us feel bad about them happening! I'm sure that wasn't your intent, but that is how it came across and was a bit like adding insult to injury. I'd be more worried about someone NOT having rage when they have all of this going on and are living in a world that seems determined to keep us unsupported and suffering!


Well, as long as you don't hurt anyone...it's okay to vent.

What have you tried for it?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4427
   Posted 5/11/2018 6:01 AM (GMT -6)   
mpost said...
Alicethenut said...
This is the second ipad I have broken because of bartonella rage, I’m so tired of this, when I get even a little frustrated I want to hurl every object near me. How do you all deal with this? I feel like a toddler with no control of my emotions or actions.


yoga, meditation, etc... i think this is something that can be easily controlled with such techniques.
i would also be worried about responsibility. just because u have bartonella does not mean u can get away with rage. on the contrary, you need to work more to keep yourself together. but there is a hi risk that, since you know you have bart and since you know this may lead to rage, you will lower your bar and allow yourself to do things that you would not if you would just know u were healthy ....

so be careful, the mind is always playing tricks on us. get some meditation lessons (or use youtube and try yourself), they will help you enormously. breathing lessons are the easiest.


Wow, really comforting words! No wonder we have not heard back from Alicethenut anymore.

How about getting to the "root" cause of lyme rage which I suffered from instead of saying "just because u have bartonella does not mean u can get away with rage."

I didn't have bartonella but I had rage. It was not my fault and I could NOT help it. The root cause of my rage was due to an overload of ammonia caused by the die-off's from lyme bacteria (all types). I became "rage-free" after taking Neuro-Antitox CNS/PNS Formula to bind up the ammonia in my brain and body.

Denise
12 years well ~ used Dr. Jernigan's protocol from his book about Biological Medicine (used Borrelogen, Microbojen and Neuro-Antitox).

I still detox even though healed and drink Green Vibrance. I come back to help others for others helped me when I was sick. Pay it forward! smile

http://javuviews.wordpress.com/2013/04/24/how-i-became-better-from-chronic-lyme

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32559
   Posted 5/11/2018 11:14 AM (GMT -6)   
Denise - How long after starting the Neuro-Antitox did it start working ?

I bought it and was taking it twice (or maybe 3 x) daily - but after a week I didn’t notice any improvement.

I don’t have rage but was hoping for some brain/CNS detox.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Runninheid
Regular Member


Date Joined Sep 2017
Total Posts : 52
   Posted 5/11/2018 11:19 AM (GMT -6)   
Deejavu,

What is the max daily dose of Nuero Antitox Cns/Pns you have taken?

Thanks!

Heidi
DX Borrelia, Babesia, Bartonella and Ehrlichia June 2017
Symptoms since at least 2007
Started treatment June 2017
Antitox ll CNS PNS Artemisinin A BART A BAB Biaxin, Chlorella, Liposomal Glutathione Magnesium Omnicef Prothrivers Wellbrain, Tindazole, Tranquility, Uplift, Fish Oil, B Vitamins, Vitamin D, gluten free, sugar free, dairy free lemon water detox tea detox baths coffee enemas
30%-60%

Rare Squirrel
Regular Member


Date Joined May 2018
Total Posts : 38
   Posted 5/11/2018 3:52 PM (GMT -6)   
Girlie said...
Rare Squirrel said...
The problem with rage is that it isn't rational so rational advice is not going to help. It's like walking up to a toddler during a tantrum and telling him he isn't being rational and expecting him to sit up and say, oh ok, and then just stop. And I'm sorry but with all the just plain over the top BS we have to deal with having these diseases every single day, YES WE CAN ABSOLUTELY GET AWAY WITH RAGE AND ARE ENTITLED TO IT! You wouldn't tell someone with cancer that they need to stop whining about it and grow up would you? That's the equivalent of telling someone to swallow their feelings and never let them show. Doesn't sound very healthy to me.

Yes people can use meditation and other methods to try to cut down on the attacks of rage, but when they happen, they happen and there is no reason for anyone to make us feel bad about them happening! I'm sure that wasn't your intent, but that is how it came across and was a bit like adding insult to injury. I'd be more worried about someone NOT having rage when they have all of this going on and are living in a world that seems determined to keep us unsupported and suffering!


Well, as long as you don't hurt anyone...it's okay to vent.

What have you tried for it?


Ok yes, that is very true and if there are homicidal tendencies or any danger to other living creatures then it becomes a whole different matter! The only injuries so far have been to inanimate objects around my house (including a 20 year old microwave with an attitude problem that will no longer be able to start beeping at random times for no reason! haha) and some minor ones to myself of course. Never have I ever raised a hand to another living creature. Even my screaming and yelling is to walls and objects and usually when I am home alone, although I'm sure my neighbors think I am completely insane at this point!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32559
   Posted 5/11/2018 4:54 PM (GMT -6)   
Rare Squirrel said...
Girlie said...
Rare Squirrel said...
The problem with rage is that it isn't rational so rational advice is not going to help. It's like walking up to a toddler during a tantrum and telling him he isn't being rational and expecting him to sit up and say, oh ok, and then just stop. And I'm sorry but with all the just plain over the top BS we have to deal with having these diseases every single day, YES WE CAN ABSOLUTELY GET AWAY WITH RAGE AND ARE ENTITLED TO IT! You wouldn't tell someone with cancer that they need to stop whining about it and grow up would you? That's the equivalent of telling someone to swallow their feelings and never let them show. Doesn't sound very healthy to me.

Yes people can use meditation and other methods to try to cut down on the attacks of rage, but when they happen, they happen and there is no reason for anyone to make us feel bad about them happening! I'm sure that wasn't your intent, but that is how it came across and was a bit like adding insult to injury. I'd be more worried about someone NOT having rage when they have all of this going on and are living in a world that seems determined to keep us unsupported and suffering!


Well, as long as you don't hurt anyone...it's okay to vent.

What have you tried for it?


Ok yes, that is very true and if there are homicidal tendencies or any danger to other living creatures then it becomes a whole different matter! The only injuries so far have been to inanimate objects around my house (including a 20 year old microwave with an attitude problem that will no longer be able to start beeping at random times for no reason! haha) and some minor ones to myself of course. Never have I ever raised a hand to another living creature. Even my screaming and yelling is to walls and objects and usually when I am home alone, although I'm sure my neighbors think I am completely insane at this point!



Okay, definitely swing away at that nasty microwave. Time for a new one!!!
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4427
   Posted 5/12/2018 8:36 AM (GMT -6)   
Girlie said...
Denise - How long after starting the Neuro-Antitox did it start working ?

I bought it and was taking it twice (or maybe 3 x) daily - but after a week I didn’t notice any improvement.

I don’t have rage but was hoping for some brain/CNS detox.


Hi Girlie,

I don't remember exactly when it starting working (no pun intended!) because that was over 12 years ago. It could have been several weeks or so. I "do" remember that I took this formula for months (at least 4 months).

Heidi, I took 30 drops 3x a day for a total of 90 drops per day which is the recommended dosage from his book. I do know someone that went to Hansa and her ammonia levels were off the charts (she was misdiagnosed with fibro for over 30 years) and Dr. Jernigan had her take 4 or 5 times the recommended dosage. Her liver was shutting down due to high ammonia levels. He worked on her for 2 weeks just clearing out her ammonia before he started treating her for lyme.

What's important to remember is that ammonia doesn't only affect the brain. This exotoxin can affect the liver, kidneys, etc. Below I copied part of an article:

www.tiredoflyme.com/ammonia-a-lyme-disease-exotoxin.html

"Lyme Disease can contribute to excessive ammonia in a number of ways. The first is that Borrelia Burgdorferi, the Lyme bacteria, releases ammonia as an exotoxin within the body. Wherever the bacteria resides within the body, this can occur, and if it's in the brain, there is potential for damage to occur to neurotransmitter receptors. This opens up the door to Lyme induced depersonalization and other discrepancies of the brain.


Lyme Disease can also contribute to the accumulation of ammonia in the body by hindering the body's ability to remove ammonia. We learned earlier that the body removes ammonia through the urea cycle, a process initiated by the liver. However, in people with Lyme Disease, the odds increase that their liver and/or kidneys may not be working efficiently. Herxheimer reactions, which is the release of endotoxins in the body from dead spirochetes, more than likely have the liver and kidneys working overtime which can result in an inefficient urea cycle. If the body's urea cycle isn't converting ammonia into urea properly, this in turn can cause a back up or accumulation of ammonia in the body from any source whether it be basic protein metabolism, or a CBS gene mutation. This is where ammonia becomes troublesome as it is forced to enter the bloodstream, and from there, infiltrate and disrupt other parts of the body - symptoms begin to manifest.

This is just one reason why it is so important to detox and support the organs while treating Lyme Disease."

Symptoms of Ammonia Toxicity

"Symptoms of ammonia toxicity, like many of the other conditions that can affect people with Lyme Disease, have a tendency to overlap making it difficult to discern the cause. When the body can no longer process ammonia efficiently through the urea cycle, ammonia will begin to back up into the body and symptoms such as severe cognitive dysfunction, nervous system dysfunction, irritability, headaches, chronic fatigue, food intolerance, and in more severe toxicity cases, coma, and even death can occur."

Hope this helps,
Denise
12 years well ~ used Dr. Jernigan's protocol from his book about Biological Medicine (used Borrelogen, Microbojen and Neuro-Antitox).

I still detox even though healed and drink Green Vibrance. I come back to help others for others helped me when I was sick. Pay it forward! smile

http://javuviews.wordpress.com/2013/04/24/how-i-became-better-from-chronic-lyme

Runninheid
Regular Member


Date Joined Sep 2017
Total Posts : 52
   Posted 5/15/2018 11:19 AM (GMT -6)   
Deejavu, thank you for answering! I've been doing 30 drops 3x daily for two weeks now. I will just keep on trucking at that pace. Thanks!
DX Borrelia, Babesia, Bartonella and Ehrlichia June 2017
Symptoms since at least 2007
Started treatment June 2017
Antitox ll CNS PNS Artemisinin A BART A BAB Biaxin, Chlorella, Liposomal Glutathione Magnesium Omnicef Prothrivers Wellbrain, Tindazole, Tranquility, Uplift, Fish Oil, B Vitamins, Vitamin D, gluten free, sugar free, dairy free lemon water detox tea detox baths coffee enemas
30%-60%

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4714
   Posted 5/16/2018 2:50 AM (GMT -6)   
treat bart , holy basil helps lots and i had to nibble zanax and sequester myself during zhang treatment. its nice to have my emotions back

Charlie55
Regular Member


Date Joined Nov 2017
Total Posts : 68
   Posted 5/16/2018 5:13 AM (GMT -6)   
Alicethenut said...
This is the second ipad I have broken because of bartonella rage, I’m so tired of this, when I get even a little frustrated I want to hurl every object near me. How do you all deal with this? I feel like a toddler with no control of my emotions or actions.


CBD oil be a good choice for rage, it'll ease your mind. And depending what state you're in, medical cannabis, sativa might be a better choice since you'll still be able to function compared to indica. But indica will definitely ease your mind.

And not all CBD oil is created equally, high recommended to get a quality brand, that has terpenes and other cannabinoids to get the full synergistic effect.

Any pharmaceutical drug you use for rage will have serious side effects long term and soon as you get off any of these mind altering drugs, lot of people have suicidal thoughts. Hemp probably your best option or working out, as it does release endorphins and relieves stress. Whether it's just simply walking, playing a sport, or lifting light weights...

Rare Squirrel
Regular Member


Date Joined May 2018
Total Posts : 38
   Posted 5/17/2018 4:23 PM (GMT -6)   
Girlie said...
Rare Squirrel said...
Girlie said...
Rare Squirrel said...
The problem with rage is that it isn't rational so rational advice is not going to help. It's like walking up to a toddler during a tantrum and telling him he isn't being rational and expecting him to sit up and say, oh ok, and then just stop. And I'm sorry but with all the just plain over the top BS we have to deal with having these diseases every single day, YES WE CAN ABSOLUTELY GET AWAY WITH RAGE AND ARE ENTITLED TO IT! You wouldn't tell someone with cancer that they need to stop whining about it and grow up would you? That's the equivalent of telling someone to swallow their feelings and never let them show. Doesn't sound very healthy to me.

Yes people can use meditation and other methods to try to cut down on the attacks of rage, but when they happen, they happen and there is no reason for anyone to make us feel bad about them happening! I'm sure that wasn't your intent, but that is how it came across and was a bit like adding insult to injury. I'd be more worried about someone NOT having rage when they have all of this going on and are living in a world that seems determined to keep us unsupported and suffering!


Well, as long as you don't hurt anyone...it's okay to vent.

What have you tried for it?


Ok yes, that is very true and if there are homicidal tendencies or any danger to other living creatures then it becomes a whole different matter! The only injuries so far have been to inanimate objects around my house (including a 20 year old microwave with an attitude problem that will no longer be able to start beeping at random times for no reason! haha) and some minor ones to myself of course. Never have I ever raised a hand to another living creature. Even my screaming and yelling is to walls and objects and usually when I am home alone, although I'm sure my neighbors think I am completely insane at this point!



Okay, definitely swing away at that nasty microwave. Time for a new one!!!



Hahaha! I knew I liked you Girlie! Yeah, no longer will it wake me up beeping to make popcorn (the weird random beeping was usually accompanied by it scrolling through the list of microwave popcorn size options). I kept telling it I make my popcorn on the stove with coconut oil now but I guess it got mad about that. LOL

Have you ever tried Kratom? I find that the Bali form of Kratom tends to be relaxing as well as helping with pain. It's legal (for now unless the FDA gets their way) and you can get it at smoke shops or online. It's been compared to opioids for it's pain relieving capabilities but I get a sense of calm with it too. Look it up and see what you think. There's a salmonella scare going on at the moment but who knows how much truth there is to that and how much is an FDA scare. Even umm...dang that Lyme brain...Buhner... I think...when asked about Kratom said, great herb! I'll have to see if I can find that reference! smile

Editing because I found the link to the interview with Stephen Buhner where he was asked about Kratom: http://www.tiredoflyme.com/tired-of-lyme-interviews-stephen-buhner-about-healing-lyme-the-2nd-edition.html

Post Edited (Rare Squirrel) : 5/17/2018 4:34:31 PM (GMT-6)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32559
   Posted 5/17/2018 6:04 PM (GMT -6)   
Rare Squirrel - I haven't tried Kratom. But one of our members has posted about it: ChickenArise.


I think you have to be careful...cant you get dependent on it..like an opioid?


I also make my popcorn on top of the stove...but my husband doesn't like the coconut oil, so I use olive oil.
Then I put butter and nutritional yeast on it.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Rare Squirrel
Regular Member


Date Joined May 2018
Total Posts : 38
   Posted 5/17/2018 6:47 PM (GMT -6)   
Girlie said...
Rare Squirrel - I haven't tried Kratom. But one of our members has posted about it: ChickenArise.


I think you have to be careful...cant you get dependent on it..like an opioid?


I also make my popcorn on top of the stove...but my husband doesn't like the coconut oil, so I use olive oil.
Then I put butter and nutritional yeast on it.


I put browned butter on my popcorn and it's super yummy! You'll have to try it sometime. I also use Johnny's Seasoning Salt (with the pepper strained out, yes I am that weird! lol) on it but shhhh don't tell anyone!

I think you can get dependent on it so yes, you do have to be careful with it. But when you've got serious pain, it can be a serious help. And I'm sure there are quite a few of us with serious pain in this forum unfortunately. You do what you have to do to get by and if it's there and can help, I'm using it! I don't use it often since I am on pain medication, but when I ran out, it kept me from going through withdrawal until I was able to get my next script. I've been on the same dose of two 5mg percocet per day which barely even takes the edge off my pain (I also have degenerative disc disease) for over a year and my doc refuses to increase it so sometimes I need a little extra help too. But I always suggest looking something up and reading about it before trying it. Just because something is herbal, doesn't mean it's completely safe! But many of the side effects or adverse reactions seem to happen to those taking way more than what is recommended and even those seem to be short term problems.

Alicethenut
Regular Member


Date Joined Jul 2017
Total Posts : 21
   Posted 5/29/2018 4:11 PM (GMT -6)   
Rare Squirrel said...
The problem with rage is that it isn't rational so rational advice is not going to help. It's like walking up to a toddler during a tantrum and telling him he isn't being rational and expecting him to sit up and say, oh ok, and then just stop. And I'm sorry but with all the just plain over the top BS we have to deal with having these diseases every single day, YES WE CAN ABSOLUTELY GET AWAY WITH RAGE AND ARE ENTITLED TO IT! You wouldn't tell someone with cancer that they need to stop whining about it and grow up would you? That's the equivalent of telling someone to swallow their feelings and never let them show. Doesn't sound very healthy to me.

Yes people can use meditation and other methods to try to cut down on the attacks of rage, but when they happen, they happen and there is no reason for anyone to make us feel bad about them happening! I'm sure that wasn't your intent, but that is how it came across and was a bit like adding insult to injury. I'd be more worried about someone NOT having rage when they have all of this going on and are living in a world that seems determined to keep us unsupported and suffering!



Thank you for this comment, I appreciate you

Alicethenut
Regular Member


Date Joined Jul 2017
Total Posts : 21
   Posted 5/29/2018 4:16 PM (GMT -6)   
Charlie55 said...
Alicethenut said...
This is the second ipad I have broken because of bartonella rage, I’m so tired of this, when I get even a little frustrated I want to hurl every object near me. How do you all deal with this? I feel like a toddler with no control of my emotions or actions.


CBD oil be a good choice for rage, it'll ease your mind. And depending what state you're in, medical cannabis, sativa might be a better choice since you'll still be able to function compared to indica. But indica will definitely ease your mind.

And not all CBD oil is created equally, high recommended to get a quality brand, that has terpenes and other cannabinoids to get the full synergistic effect.

Any pharmaceutical drug you use for rage will have serious side effects long term and soon as you get off any of these mind altering drugs, lot of people have suicidal thoughts. Hemp probably your best option or working out, as it does release endorphins and relieves stress. Whether it's just simply walking, playing a sport, or lifting light weights...



I do use indica dominant strain of marijuana, it’s the most effective medicine i take to ease my symptoms, and it comes with no side effects, woo hoo!! Thank you for the advice.

Alicethenut
Regular Member


Date Joined Jul 2017
Total Posts : 21
   Posted 5/29/2018 4:23 PM (GMT -6)   
Girlie said...
Alicethenut said...
mpost said...
Alicethenut said...
This is the second ipad I have broken because of bartonella rage, I’m so tired of this, when I get even a little frustrated I want to hurl every object near me. How do you all deal with this? I feel like a toddler with no control of my emotions or actions.


yoga, meditation, etc... i think this is something that can be easily controlled with such techniques.
i would also be worried about responsibility. just because u have bartonella does not mean u can get away with rage. on the contrary, you need to work more to keep yourself together. but there is a hi risk that, since you know you have bart and since you know this may lead to rage, you will lower your bar and allow yourself to do things that you would not if you would just know u were healthy ....

so be careful, the mind is always playing tricks on us. get some meditation lessons (or use youtube and try yourself), they will help you enormously. breathing lessons are the easiest.



Thanks for the terrible advice!


What have you tried so far? Do you do anything for detoxing your brain?
Are you currently treating? Which infection?


I am treating babesia,bartonella,mycoplasma,lyme,Ehrlichia. I am currently taking bicillin, iv doxy, malarone, azythromicine. How do you recommend detoxing the brain? I was excercising but lately everytime I excercise I am disabled for hours from the pain. I drink a lot of lemon water too.
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