The Tick That Changed Our Lives - Listen to LMFM Ireland Radio Documentary - May 8th 2018

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mpost
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Date Joined Feb 2015
Total Posts : 1519
   Posted 5/10/2018 4:48 AM (GMT -6)   
This 60 minute radio programme documents the Laffey sisters experience both in Ireland and in Germany. Siobhan and Clodagh will give heart breaking accounts of their daily struggles in coping with this debilitating disease. This programme will also feature interviews from their parents Michael and Eleanor who struggled at times watching their young daughters' health spiral out of control. It will also hear from Dr Jack Lambert who is a Consultant in Infectious Disease at the Mater Hospital Dublin and UCD and Dr Carsten Nicolas who founded the BCA Clinic in Augsburg Germany where Siobhan and Clodagh are being treated. Ann Maher, who also suffers with Lyme Disease will speak about Tick Talk Ireland, a voluntary run support group for people living with Lyme.


Recording: /www.lmfm.ie/on-air/shows/documentaries/documentaries/the-tick-that-changed-our-lives/

Story of the sisters diagnosed with Lyme Disease
/www.independent.ie/regionals/droghedaindependent/news/story-of-the-sisters-diagnosed-with-lyme-disease-36859946.html

Girlie
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Date Joined May 2014
Total Posts : 32559
   Posted 5/10/2018 11:58 AM (GMT -6)   
so 4 years and still treating...did I get that right?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1519
   Posted 5/10/2018 12:46 PM (GMT -6)   
yeah. at this level and with our weapons, it seems all we can get is a draw....

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32559
   Posted 5/10/2018 1:18 PM (GMT -6)   
mpost said...
yeah. at this level and with our weapons, it seems all we can get is a draw....


I listened to it in spurts....it seemed like their treatment was somewhat broken up...and maybe not as comprehensive as most of us do?

What did you think?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1519
   Posted 5/10/2018 3:21 PM (GMT -6)   
Girlie said...

I listened to it in spurts....it seemed like their treatment was somewhat broken up...and maybe not as comprehensive as most of us do?
What did you think?


stats and polls do not lie:
/www.healingwell.com/community/default.aspx?f=30&m=4008659

cure/remission rate is 9%.

with current treatments 91% of us will not get to remission.

again, what i said earlier. i am aiming for a draw ... gaining time and waiting for researchers to pull their act together...

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32559
   Posted 5/10/2018 3:50 PM (GMT -6)   
Where are you getting those stats: cure/remission 9%
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1519
   Posted 5/10/2018 9:04 PM (GMT -6)   
i just looked what ppl responded.

Have you Been Cured of Lyme Disease

2
Yes - completely - 9.1%
0
Yes - and most symptoms are gone - 0.0%
13
No - but I feel better - 59.1%
4
No difference - 18.2%
3
I feel worse even after treatment - 13.6%

/www.healingwell.com/community/default.aspx?f=30&m=4008659

i know it may be inaccurate but still, from ppl i saw coming here i'd say most, the vast majority still has symptoms even after years of treatment.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32559
   Posted 5/10/2018 10:41 PM (GMT -6)   
mpost said...
i just looked what ppl responded.

Have you Been Cured of Lyme Disease

2
Yes - completely - 9.1%
0
Yes - and most symptoms are gone - 0.0%
13
No - but I feel better - 59.1%
4
No difference - 18.2%
3
I feel worse even after treatment - 13.6%

/www.healingwell.com/community/default.aspx?f=30&m=4008659

i know it may be inaccurate but still, from ppl i saw coming here i'd say most, the vast majority still has symptoms even after years of treatment.


Yah but the ones who are healed aren’t on much if at all.

They may post once in awhile to let people know they’re doing well but not on here regularly.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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