Can’t tolerate antibiotics, getting worried

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ltc1225
Regular Member


Date Joined Dec 2017
Total Posts : 29
   Posted 5/11/2018 2:25 PM (GMT -6)   
I have been treating my Lyme and suspected bartonella by my llmd for a little over 4 months and the antibiotic treatment that has included Bactrim and rifampin has made my symptoms much worse and I knew I could expect some really strong herxes. I was very sick for about 8-9 months before I found my llmd.

I have been trying so much to detox...epsom salt, activated charcoal, pinella and burbur detox, glutathione, the list goes on and on, but nothing seems to be helping with the herx pain. I’m afraid I won’t be able to even go back to college after this summer. I don’t know why I can’t seem to tolerate the antibiotics and nothing seems to calm down the herxes they just subside on their own eventually

The past two weeks of rifampin have been very rough...constant sweating, dizziness, muscle pain and spams, head pressure, insane fatigue especially after I take the rifampin, shin and leg pain, nerve pain, and stomach pain

My llmd just got me tested for the MTHFR gene mutation, has anyone run into this issue and tested positive? If so did your detoxing improve upon taking anything for mutation?

The only time I have felt better is a short break I took from antibiotics for 5 days, I’m considerimg stopping antibiotics all together because I can’t keep living like this anymore I can barely get out of the house and when I do, half the time I go home because I begin to feel sick. It’s really starting to affect my relationships and it’s hurting my relationship with girlfriend which is something I really don’t want to lose, she is very supportive it is just taxing on myself and our relationship

I see my llmd after this weekend and was going to talk to him about treating with herbs for a little while, has anyone tried this approach of switching to herbs successfully?

Thanks everyone sorry to spill out a lot

Post Edited (ltc1225) : 5/11/2018 1:42:32 PM (GMT-6)


Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2925
   Posted 5/11/2018 2:52 PM (GMT -6)   
i was in the exact same position as you taking daily abx for over a year and i was ready to jump off a building due to the constant bug die off.

you have a few choices. you can go to a pulsing protocol to lessen the effects of the abx or switch to herbs (though herbs may still cause extreme herxing if you take them daily).

this isn't unusual you aren't the first person that can't handle the toxins released from killing too many bugs via daily abx intake. the published pulsing protocol via ILADS is either 4 days on/3 days off or vice versa. Dr. J in DC only does pulsing and he says its meant to not only control herxing and give you a better quality of life but also to let your immune system do some of the heavy lifting.

i would definitely talk to your LLMD about pulsing. you can still treat and not feel like death warmed over all the time.

ltc1225
Regular Member


Date Joined Dec 2017
Total Posts : 29
   Posted 5/11/2018 3:11 PM (GMT -6)   
Rikky1 said...
i was in the exact same position as you taking daily abx for over a year and i was ready to jump off a building due to the constant bug die off.

you have a few choices. you can go to a pulsing protocol to lessen the effects of the abx or switch to herbs (though herbs may still cause extreme herxing if you take them daily).

this isn't unusual you aren't the first person that can't handle the toxins released from killing too many bugs via daily abx intake. the published pulsing protocol via ILADS is either 4 days on/3 days off or vice versa. Dr. J in DC only does pulsing and he says its meant to not only control herxing and give you a better quality of life but also to let your immune system do some of the heavy lifting.

i would definitely talk to your LLMD about pulsing. you can still treat and not feel like death warmed over all the time.


Thanks for the reply, I really need to improve my quality of life while treating so I’m going to have a detailed talk with him Monday about pulsing and herbs, thank you

Rare Squirrel
Regular Member


Date Joined May 2018
Total Posts : 38
   Posted 5/11/2018 5:28 PM (GMT -6)   
This was my greatest fear in starting treatment for these demon bugs! I expressed this concern to my doctor who suggested we start slow and at the very bottom with support for my body before even attempting to kill the infections. So we are starting by finding out what vitamins/minerals/nutrients I could be lacking, and looking into malabsorption issues (due to my sleeve and celiac) and supporting my digestive system first. A LOT of misery seems to come from a digestive system that is not working properly or has been damaged or is completely out of balance! Having my genetic info has been helpful as well so that we can see what gene mutations I have that may need to be addressed and she can customize her recommendations.

Also when on antibiotics...keep an eye out for yeast problems. Yeast (especially for me) causes all kinds of abdominal pain, gas, and just all around misery so maybe taking a break from the antibiotics and treating for yeast is a possibility to help calm your system back down. We are discovering that it's likely I have some resistant yeast that may need more aggressive treatment before we can even start attempting to treat the other infections. When you talk to your doctor, maybe you can ask to go back to the beginning and get all issues and symptoms out there and maybe even more testing to find out if there are other problems that could be complicating things. Lay it all out with honesty about what you can or can't tolerate too! Saying things like, if I have nausea or pain or muscle spasms, what should I do? How can that be treated so I don't feel like jumping off a bridge?

I do have the MTHFR mutation so we are working with that but since I'm newly diagnosed and just starting, I can't say for sure yet what works or not. Right now I'm on a trial of something called molybdenum and we are setting up hyperbaric chamber treatments. My doctor has found that they are awesome for helping with both pain and detox and says that many of her patients find them so amazingly helpful that they will actually go out and invest in their own chamber at home! Have you ever tried that? Personally I'm a bit of a claustrophobic with ear issues so I'm nervous about trying it but we have a test treatment set up for the 23rd with a shorter milder pressure to see how I do. But if it helps at all with pain and detox, it's going to be very worth it!

I am very stubborn and with all the misery I'm already in, I refused to jump into any kind of treatment that could potentially make me feel worse without first building a strong support system. That not only includes talking to friends and family about who can be there for me when I need them and for what, but also other things, like medications to relieve symptoms, heating pads and ice packs etc, making sure my doctors keep informed and are fully supportive of all of my decisions, just everything I can think of so that I do not have to suffer 1 second longer or more than I absolutely have to. Because I firmly believe that it is going to make the difference between me making it through this or not!

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2925
   Posted 5/11/2018 8:08 PM (GMT -6)   
Rare your LLMD is smart in that everyone should start by stabilizing themselves before going into kill the bugs mode which really taxes your entire system. Buhner believes that taking herbs that directly kill the bugs isn't even necessary many times if the rest of your systems are working well as your body itself will get them under control. Didn't work for me but the advice is sound.

Quite a few folks do molybdenum and HBOTS here hopefully they'll chime in.

Dahlias
Veteran Member


Date Joined Jun 2017
Total Posts : 518
   Posted 5/11/2018 10:06 PM (GMT -6)   
Rikky1 said...
Rare your LLMD is smart in that everyone should start by stabilizing themselves before going into kill the bugs mode which really taxes your entire system. Buhner believes that taking herbs that directly kill the bugs isn't even necessary many times if the rest of your systems are working well as your body itself will get them under control. Didn't work for me but the advice is sound.


Very interesting. That's for sharing that.

Rare Squirrel
Regular Member


Date Joined May 2018
Total Posts : 38
   Posted 5/12/2018 3:36 AM (GMT -6)   
Rikky1 said...
Rare your LLMD is smart in that everyone should start by stabilizing themselves before going into kill the bugs mode which really taxes your entire system. Buhner believes that taking herbs that directly kill the bugs isn't even necessary many times if the rest of your systems are working well as your body itself will get them under control. Didn't work for me but the advice is sound.

Quite a few folks do molybdenum and HBOTS here hopefully they'll chime in.


She's a naturopath, not an MD so that's probably where the smart comes in. lol

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2302
   Posted 5/12/2018 4:30 AM (GMT -6)   
Hi and just want to say you have received great responses from other members .

Remember there are always other paths of treatment that may work for you if another one does not.

There is a lot of support here when you need it, so feel free to keep asking questions and reaching out.


I was able to switch from ABX to herbals and I am coming along ok, but you still can herx from herbals too. Just have to start slow.


If I did ever decide to go back to ABX , I would definitely follow the pulsing approach from what I have learned in the last few years from others here on the forum.


Take care
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