I did the dapsone protocol for 1 year. Followed that with 6 month PZA protocol (I think the PZA was hitting the bart). The thing is Dr H now does the dapsone dosing at 200mg (but for shorter duration), I topped out at 100mg. I've heard he was having more success at the 200mg dosing. I've been on LDN for a while as well, I think it has helped but it's hard to say for sure.
Yeah, I think levaquin was a great drug for the bart infection I'm dealing with, I'd never herxed to that level, it's unfortunate I couldn't manage it. Then again I was also quite worried of all the potential side effects, and with herxing at that level I wouldn't have been able to distinguish between herx/serious side effect. And like you mention, depending on your situation sometimes you have to go more slowly with treatment, not only because the herxing is so strong, but because one can't afford to miss work or other life responsibilities. All about
pacing, it's a marathon!
Haha, 100% same, I evolved slowly in my views on alternative therapies. The conventional allopathic therapies proved helpful but herbal combos have been quite efficacious as well. I haven't done hbot but it seems to really help some patients. In my view it's good to look at the variety of tools in the toolbox and use whatever we can to help us manage pain, sleep, boost immune system and body, and finding ways to treat the infections. Tricky cases can require more experimentation.
Traveler is the best! and such a great resource. One well-respected llmd suggested I try higher doses of magnesium malate and magnesium threonate (the threonate supposed to be good for neuro symptoms). I just throw that out there, I figure you might already been on mag supplements but never hurts to share ideas
It's my pleasure to share anything I can, I've always tried to learn from other patients and am grateful that so many have been so
open in sharing treatments, experiences, support. It's been a godsend, without other patients I'd still likely be undiagnosed and stuck in hell.
Feel free to email me anytime!