Neurology - gray area, Neurologists are worthless, ever see a Physiatrist (nerve/muscle/bone Dr)?

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astroman
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Date Joined Mar 2014
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   Posted 5/13/2018 1:41 PM (GMT -6)   
My past experiences: Unless I severed a nerve (havn't so far in life), these Drs have never done anything good for me......Am I alone here?? All they ever did was the emg(thats not it) electrode thing test to show my nerves where still connected despite having numbness in the past on both arms. And said I dont have MS, but fibro 'cause Lyme doesn't exist and my bulseye was just my imagination too.

I no longer have symptoms appear for no reason, no flares.

My nuero brain issues are better but will come back with stress so its most likely my long time adrenal issues that are not 100% yet - as I can resolve this in a few hours with adrenal therapy.

My damaged soft tissues are better , but I do have nerve impingment after certain workouts, I can release this but it needs to be repeated.

**My Question:What kind of Dr could possibly help me with this nerve impingment (muscles on nerves)?**

I just learned of physiatrist Drs, other Drs never mentioned these people. ASnyone have experience with them? ***

EDIT: forgot to add, I've seen many PT's Chiros and the like. I need a new approach from cookie cutter treatment. I've done a lot of my own PT with success.

I dont know if a physiatrist is just another fancy title or if they can actually help with nervous system/ muscle integration issues. I've never seen one.

Post Edited (astroman) : 5/13/2018 2:45:11 PM (GMT-6)


Notime4lyme
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Date Joined Dec 2017
Total Posts : 385
   Posted 5/13/2018 3:33 PM (GMT -6)   
Maybe a physical therapist... I don't know. Most of my neurological problems have also gone away- but some just seem to hang around. I was thinking of going to a neurologist to check for brain damage, but I'm not sure how much they could do for it if it's Lyme related.

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 2023
   Posted 5/13/2018 4:57 PM (GMT -6)   
astroman,

I know this doesn't address your question, but have you taken any herbs long term that are reputed to repair nerve damage? Lion's mane and Chinese senega root come to mind.

You are far more knowledgeable about doctors than I am, so I have no suggestions there.

Girlie
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Date Joined May 2014
Total Posts : 33876
   Posted 5/13/2018 5:30 PM (GMT -6)   
I was sent to a Neurologist to rule out the nasties: ALS, MS, Parkinson’s.

So for me it was important to see him.
He sent me to a Physiatrist for the EMG and NCS to see how my nerves were working and confirm that I didn’t have ALS
After diagnosing frozen shoulder - the physiatrist offered me a cortisone shot - that’s it.

Isn’t there some imaging that could be done to look for nerve impingement in specific areas.
They do that when you have carpal tunnel don’t they?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

astroman
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Date Joined Mar 2014
Total Posts : 5086
   Posted 5/13/2018 5:34 PM (GMT -6)   
".........reputed to repair nerve damage? Lion's mane and Chinese senega root"

Hmmm...Never heard of senega, Lions is common, still never tried either though.

I'll google those and see if they are thyroid compatible, as some odd herbs & shrooms are not.
thanks

-----------------------------------
(Tried two homeopathy mixtures , which did nothing. I've had b6 pooling issues in the past, so more b6for nerve repair is out of the question.)
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in Jan 2016. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.

Post Edited (astroman) : 5/13/2018 4:38:25 PM (GMT-6)


astroman
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Date Joined Mar 2014
Total Posts : 5086
   Posted 5/13/2018 5:42 PM (GMT -6)   
Girlie- yep , several EMG's are what I had years ago.

Whats this > NCS?

Nuero did rule out MS and Mathis Gravis (?) , before saying lyme does not exist (3 yrs ago).

Trick is finding a doc willing to image for impinged nerves. I might need to ask around the local community.
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in Jan 2016. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 2023
   Posted 5/13/2018 6:19 PM (GMT -6)   
astroman said...
".........reputed to repair nerve damage? Lion's mane and Chinese senega root"

Hmmm...Never heard of senega, Lions is common, still never tried either though.

I'll google those and see if they are thyroid compatible, as some odd herbs & shrooms are not.
thanks

-----------------------------------
(Tried two homeopathy mixtures , which did nothing. I've had b6 pooling issues in the past, so more b6for nerve repair is out of the question.)


Buhner talks about those two herbs. If I remember correctly, they need to be taken long term to be effective. You will not likely notice any changes right away.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33876
   Posted 5/13/2018 6:32 PM (GMT -6)   
astroman said...
Girlie- yep , several EMG's are what I had years ago.

Whats this > NCS?

Nuero did rule out MS and Mathis Gravis (?) , before saying lyme does not exist (3 yrs ago).

Trick is finding a doc willing to image for impinged nerves. I might need to ask around the local community.


Nerve Conduction studies - was done at same appt as the EMG. One is little needles, the other is pads put on your skin

An EMG measures the electrical activity of your muscles.

A nerve conduction study measures how well and how fast your nerves can send those electrical signals.

An Electromyogram is done to help find diseases that are related to muscle tissue damage, damage to the nerves, or problems related to gaps that may be found between nerves and the muscles. Usually, an EMG is requested if your physician thinks that you might have herniated disc. It is also requested to rule out ALS, or amyotrophic lateral sclerosis. It may also be requested for a certain illness called MG, myasthenia gravis. It will also help in finding weakness, paralysis, and even muscle twitching.

EMG: will show no electrical activity when the muscles are not being used. A smooth, wavy line will show on the recording if a muscle contracts.

NCS: will show that the nerves send electrical impulses to the muscles using normal speeds.

Abnormal individual:

EMG: Abnormal wave lines will show on the recording if the muscle contracts.

NCS: will show that the speed of nerve impulses are slower than average. Although as a person gets older, these impulses are generally slower, but if someone has a nerve problem the speeds that would show on the recording would be slower.



www.differencebetween.net/science/health/differences-between-emg-and-nerve-conduction-studies/
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5086
   Posted 5/13/2018 9:54 PM (GMT -6)   
Wow girlie. Nueros I saw were a joke.

For Ms and myasthenia gravis they just had me move around- and I had tremors. No other testing, I was surprised since I obviously was not right.

I'm guessing a nerve conduction study would have showed something - that must be with pads. I remember the needle down my leg test. That leg nerve was "hot" and I still cleared the test, weird.
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in Jan 2016. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.
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