babesia,bartonella and Pots

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Tiffany729
New Member


Date Joined May 2018
Total Posts : 14
   Posted 5/13/2018 1:03 PM (GMT -6)   
Hi, I am new to this forum. I just wanted to see if anyone has the same symptoms and on the same medication. I have a lot of symptoms but my most serious are depersonalization, anxiety, joint plain, night sweats, headaches, dizziness (motion dizziness), ear plugged and loud noise in ears. I was diagnosed in January and have been on doxycycline till I realized that my dr had no idea what was happening. I went and saw a LLMD a few days ago. Here’s what he put me on-Biaxin-One tablet twice a day 500 mg
Amoxicillin-One tablet by mouth twice a day 875- 125 mg
Rifampin-One tablet by mouth twice a day 300 mg
Mepron 1 teaspoon two times a day seven 50 mg per 5 ML 210 ML
Also with probiotics/supplements. I am just starting to introduce one at a time. So far no reactions as I am very sensitive to medication. I am supposed to take them 2 x a day but I am starting out with 1x a day and slowly adding the 2nd dose.
Anyone else have ever been on these meds? Just curious how you did. Thank you!

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2112
   Posted 5/13/2018 5:46 PM (GMT -6)   
Hi and welcome to our forum,

Yes there are members here that have taken those medications and have had those symptoms.

Sorry you are having these symptoms.

Make sure since you have started treatment to detox. When we take ABX and it kills the bacteria, it can cause herxing . It can be an increase in symptoms or new symptoms appear.

Warm Epsom salt baths are helpful for most people. Drinking water with lemon juice in it as well.

We encourage all new members to read our "New to Lyme" stat here thread at the top of the page.

This site has information on Lyme and detoxing also: www.tiredoflyme.com/


Others should be along soon to chime in. Take care and I wish you the best of healing.

Tiffany729
New Member


Date Joined May 2018
Total Posts : 14
   Posted 5/13/2018 7:43 PM (GMT -6)   
Hi! Thank you for the kind words! I have been detoxing with epsom and lemon water for about 2 months now. Since starting the antibiotics I have been detoxing a lot more.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32617
   Posted 5/13/2018 10:44 PM (GMT -6)   
Tiffany729 said...
Hi, I am new to this forum. I just wanted to see if anyone has the same symptoms and on the same medication. I have a lot of symptoms but my most serious are depersonalization, anxiety, joint plain, night sweats, headaches, dizziness (motion dizziness), ear plugged and loud noise in ears. I was diagnosed in January and have been on doxycycline till I realized that my dr had no idea what was happening. I went and saw a LLMD a few days ago. Here’s what he put me on-Biaxin-One tablet twice a day 500 mg
Amoxicillin-One tablet by mouth twice a day 875- 125 mg
Rifampin-One tablet by mouth twice a day 300 mg
Mepron 1 teaspoon two times a day seven 50 mg per 5 ML 210 ML
Also with probiotics/supplements. I am just starting to introduce one at a time. So far no reactions as I am very sensitive to medication. I am supposed to take them 2 x a day but I am starting out with 1x a day and slowly adding the 2nd dose.
Anyone else have ever been on these meds? Just curious how you did. Thank you!


Hi Tiffany - welcome!

Out of your list of symptoms, I have or have had: anxiety, joint pain, night (and day) sweats, tinnitus (not the noise, but the pulsatile form)....plus more...about 30 more...

That's a strong protocol you are currently on. I am surprised that you are taking Rifampin and Mepron together. They aren't usually taken together as the Rifampin can make the atovaquone (mepron) less effective.

I have been on Rifampin,Mepron, biaxin, and amoxy - not all at the same time though.

Good to see you are detoxing. You should consider doing more though.
Some ideas:

- light exercise (even a short walk)
- dry brushing your skin prior to bathing or showering
- Brain detox: Nutramedix Pinella or Jernigan's Neuro Antitox: CNS/PNS II
- take a binder - must be a few hours away from your antibiotics, supplements

Are you taking probiotics? This is a must.

Here's a good site with detoxing ideas:

www.tiredoflyme.com/detox-methods.html
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32617
   Posted 5/13/2018 10:47 PM (GMT -6)   
You mentioned POTS in your title of this thread. What in particular do you experience?

I have it as well.

For me it's rapid heartbeat when I stand from sitting. Used to go up to 105 and occasionally 110.
Lately it's only going up to 95 - 98.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Tiffany729
New Member


Date Joined May 2018
Total Posts : 14
   Posted 5/14/2018 9:46 AM (GMT -6)   
I am also taking these: gluashield, cytoQuel, today-ease, biocidin, optic Cleanse,theralacrpo, SBC.

My heart rate is also low. My bp is higher when I sit to stand.

He told me about the rifampin and mepron but said even if the pharmacist says not to take them together to still take them. I pick the mepron up today as it was on back order.

I only been on the medication about 4 days and my anxiety went away. It was so bad that I couldn’t drive. He told me that i wouldn’t herx being on the supplements and I’ve only had arm/ leg pain the first night. Yes Dyer i felt a little off but today has been good.

Thank you for replying

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32617
   Posted 5/14/2018 10:37 AM (GMT -6)   
He said you wouldn’t herx? Not sure how he can say that - most people do even with good detox.

That’s great that your anxiety has already resolved. I hope you continue to have improvements.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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