Day 56: worst health day yet!

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SickKitty2016
Regular Member


Date Joined Mar 2018
Total Posts : 52
   Posted 5/13/2018 10:22 PM (GMT -6)   
Mother's day: Worst herx yet.

*Please see signature below to answer antibiotic and treatment protocol*



I traveled for mother's day. 4.5 hours riding in the car one way.

I traveled on Friday and I may not be traveling back Tuesday, but maybe instead of traveling back Tuesday, I may just travel a week from Sunday due to severe herxing.

Only Change: I stopped my benzos and ssris.

I expirence many symptoms of Lyme- almost everyone. But the most overpowering one is weird and scary.

I've experienced it before, but not as much in one day.

Sudden tingling takes over body, then pain: then a warm feeling comes in. Almost like I'm vibrating so fast that I can't maintain muscle control. I get Shakey, or jittery. Can not stand feeling. Then dizzy, like my spirit is being ripped from my body. Anyone know what this might be? I always mainage to grab my weed before it gets bad. I'm afraid to-not medicate at this time.
positive for bands: Igm 41; IgG 93/83, 66, 58, 41, and 23.

Human herpes virus-6
Chlamydia pneumonia
Mycoplasma pneumonia

Day:56 of treatment
Protocol: cowden
Month 1: doxy
Month 2: cefuroxime

SickKitty2016
Regular Member


Date Joined Mar 2018
Total Posts : 52
   Posted 5/14/2018 2:28 PM (GMT -6)   
Bump?
positive for bands: Igm 41; IgG 93/83, 66, 58, 41, and 23.

Human herpes virus-6
Chlamydia pneumonia
Mycoplasma pneumonia

Day:56 of treatment
Protocol: cowden
Month 1: doxy
Month 2: cefuroxime

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1680
   Posted 5/14/2018 2:41 PM (GMT -6)   
Sounds like it could be some kind of seizure episode. I know some have had seizures. I have not.

Have you described these episodes to your LLMD?

SickKitty2016
Regular Member


Date Joined Mar 2018
Total Posts : 52
   Posted 5/14/2018 10:46 PM (GMT -6)   
WalkingbyFaith said...
Sounds like it could be some kind of seizure episode. I know some have had seizures. I have not.

Have you described these episodes to your LLMD?



I am being treated by a natropath, but yes. I've also have had seizures in the past. They said to take a break from medican until the herx lessons.

I'm going to switch the lead of my Lyme treatment doc, to another one that takes insurance.

Egh... Treatment and diagnosis stink

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32622
   Posted 5/15/2018 11:33 AM (GMT -6)   
SickKitty - just wondering how you're doing today? If you're feeling somewhat better.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Spanish
Regular Member


Date Joined Sep 2017
Total Posts : 137
   Posted 5/15/2018 1:44 PM (GMT -6)   
You dont think it could be withdrawal from the benzos? Ive had a siezure but nothing like this

SickKitty2016
Regular Member


Date Joined Mar 2018
Total Posts : 52
   Posted 5/15/2018 9:27 PM (GMT -6)   
Girlie said...
SickKitty - just wondering how you're doing today? If you're feeling somewhat better.


Today was terrible. I awoke in pain and confusion, along with the worst case of brain fog ever!! Today I managed to avoid seizures.

Bit I made it through the day. I think I had a ton of absence seizures.

SickKitty2016
Regular Member


Date Joined Mar 2018
Total Posts : 52
   Posted 5/16/2018 2:30 AM (GMT -6)   
Spanish said...
You dont think it could be withdrawal from the benzos? Ive had a siezure but nothing like this


I have no idea if it is the withdrawal. I've been slowly trying to get off of the stuff.

I'm a very late dessimated case, so, it could be that too. The benzos and ssris have maybe been preventing seizures from herxing also?

Psilociraptor
Veteran Member


Date Joined Jul 2016
Total Posts : 1228
   Posted 5/16/2018 3:21 AM (GMT -6)   
"Only Change: I stopped my benzos and ssris."

When was the last time you changed your antimicrobial regimen? If this was you're "only change" I hate to inform you but that's a pretty serious change. Both benzos and ssri's have serious withdrawals. Not all suffering is herxheimers. Be careful. SSRI's aren't something you just "take a break" from. Getting on and off is a serious decision. I'm confused as to why this was recommended to you when you're already dealing with the difficulties of treatment. I mean there's nothing wrong with quitting. It's just a difficult process you have to be prepared for. I can't say for sure whether this is the basis of your issues but those kinds of neurological symptoms as well as seizures are common withdrawal type symptoms.
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