Psilociraptor - "classic Lyme"???

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WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1662
   Posted 5/15/2018 8:16 AM (GMT -6)   
Psilo,

I read your response to Dahlias' question about Lyme/bart, and I have a question for you.

You said:

"I tested negative for bart and most of my symptoms are pretty classic Lyme. But I've gotten bladder and gut stuff. Heart pains for sure. I'll admit her symptoms don't sound THAT much like Lyme (ie neuropathy and arthritis), but it's different for everyone."

I have classic signs of bart but negative tests. I have positive DNA Connexions test for Lyme and ehrlichia and positive band 41, 66, Ind 39, but I can't tell what, if any of my symptoms are from Lyme.

What does Lyme with no bart look/feel like? Do you have babesia, or no?

Psilociraptor
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Date Joined Jul 2016
Total Posts : 1227
   Posted 5/15/2018 9:06 AM (GMT -6)   
I just meant the symptoms that are frequently reported in the literature. Ie the triad of arthritis/musculoskeletal pain, carditis, and neuropathy (CIDP). I don't suppose it looks this same way in everyone but those are typically the major systems talked about in Lyme disease. I've had a lesser degree of all kinds of stuff from kidney area pain, to liver area pain, to just feeling like crap in indescribable ways, bone pain, vascular pain, to a tumor etc. They all feel pretty connected but who can say for sure if they're "just Lyme". Lyme could certainly explain them all without even factoring in coinfections. But we're just shooting in the dark here. I've also tested positive for babesia duncani and ehrlichia through Igenex. Very low titres. None of my symptoms really seem to scream that that is my issue. But who knows. Heck... maybe it's not even tickborne illness. Maybe it's this tooth that's been bothering me for 4 years that no dentist can figure out lol.

That's sort of the problem with these diseases. Their symptoms are very nonspecific and overlap a ton. But Lyme has been pretty well described to cause peripheral neuropathy, carditis, and arthritis, so that's why i refer to my major symptoms as being pretty "classic Lyme". Not because I think other bugs can't cause these symptoms or because Lyme can't cause other symptoms. Just gotta go with occams razor and take the simplest explanation.

Psilociraptor
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Date Joined Jul 2016
Total Posts : 1227
   Posted 5/15/2018 9:13 AM (GMT -6)   
I don't know that I answered your question in this coffee ramble lol... But more specifically I have nerve pain that feels like someone lit my nerves on fire. Just burning stinging pain in my hands and legs (fortunately has mostly resolved). When I'm having an acute flare it feels like electrical shocks in specific nerves. Sharp pains in my muscles along my arms mostly. Pains like someone is trying to squeeze my heart until it pops. My heart "hiccups" sometimes. When I relapse after stopping antibacterials it starts as electrical shocks in my nerves and then really intense pains in what feels like my bones. Then it spreads to my blood stream and feels like my blood has been dosed with cayenne. Any time I touch anything the loss of circulation causes my body to scream in pain. It sucks lol. But on antimicrobials i basically just have a few heart hiccups every now and then, some lingering achiness in my legs, and very very very rare muscle pains

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1662
   Posted 5/15/2018 1:15 PM (GMT -6)   
Psilociraptor said...
I don't know that I answered your question in this coffee ramble lol... But more specifically I have nerve pain that feels like someone lit my nerves on fire. Just burning stinging pain in my hands and legs (fortunately has mostly resolved). When I'm having an acute flare it feels like electrical shocks in specific nerves. Sharp pains in my muscles along my arms mostly. Pains like someone is trying to squeeze my heart until it pops. My heart "hiccups" sometimes. When I relapse after stopping antibacterials it starts as electrical shocks in my nerves and then really intense pains in what feels like my bones. Then it spreads to my blood stream and feels like my blood has been dosed with cayenne. Any time I touch anything the loss of circulation causes my body to scream in pain. It sucks lol. But on antimicrobials i basically just have a few heart hiccups every now and then, some lingering achiness in my legs, and very very very rare muscle pains


Thank you, Psilo. I typed a response earlier and lost it. I forgot what I said, though.
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