Conference staring Dr. S Phillips and Dr. N Spector (by video), and Dana Parish in Danbury, CT

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Kitkate
Regular Member


Date Joined Jun 2014
Total Posts : 148
   Posted 5/17/2018 12:50 PM (GMT -6)   
Here is a link to their conference tonight in Danbury Ct.

https://news.hamlethub.com/danbury/neighbors/45220-lyme-connection-patient-conference-and-health-fair-coming-may-17

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33927
   Posted 5/17/2018 6:43 PM (GMT -6)   
Thank you for posting.

Here's another thread on it:

/www.healingwell.com/community/default.aspx?f=30&m=4014043
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

sierraDon
Regular Member


Date Joined Aug 2016
Total Posts : 288
   Posted 5/18/2018 7:03 AM (GMT -6)   
yeah, i attended last night - very glad i went. it was very inspiring talk by Phillips, Spector, Parish, Leone.

i am looking to see if there is YouTube posted of each of the presentors.

all of their talks left people with a lot of hope. Hope for new developments mainly with the new startup Phillips/SPector/Galaxy are involved to target bartonella/lyme. SPectors other research involved with Duke, Tulane, JH, identifying existing compounds that will better attack these pathogens. Spector mentioned some new technology for testing that was impressive, an imaging scan where say bartonella or babesia or lyme could visually seen in the body, so no pitfalls like what we currently have with antibodies or DNA/PCR testing...this would be a game changer if it comes to pass

Phillips spoke a lot about his current treatment approaches, a lot of what we heard here on the forum. nothing jumped out at me different than what i heard already. he likes to reserve the use of harder drugs like cipro, bactrim, rifampin for people that dont respond, to spare them of the harder side effects, and use drugs that have less of an impact on the body.

Leone was optmistic about the progress also with regard to TBD WOrking Group.

Overall i am glad i went, really left me inspired that this is going somewhere. the one lady from lyme connections said, that she has never felt this good about anything related to lyme in her 15 years of running LymeConnections.

I am a realist, and accept especially with startups, there are failures. but real hopeful about this one, as usual we all must carry on with current treatment approaches and wait for progress.

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 2040
   Posted 5/18/2018 8:23 AM (GMT -6)   
sierraDon,

Glad you went. Thanks for sharing.

Missouri
Regular Member


Date Joined Sep 2017
Total Posts : 397
   Posted 5/18/2018 8:44 AM (GMT -6)   
If anybody sees a release of the Dr. Phillips talk please share. His stuff is usually pure gold.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33927
   Posted 5/18/2018 11:19 AM (GMT -6)   
sierraDon said...


Phillips spoke a lot about his current treatment approaches, a lot of what we heard here on the forum. nothing jumped out at me different than what i heard already. he likes to reserve the use of harder drugs like cipro, bactrim, rifampin for people that dont respond, to spare them of the harder side effects, and use drugs that have less of an impact on the body.



Thanks for reporting back, Don!


I didn't realize that Dr. P didn't hit Bartonella with Bactrim or Rifampin right away.

Don't most people tolerate rifampin fairly well?
I can understand the Cipro.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

sierraDon
Regular Member


Date Joined Aug 2016
Total Posts : 288
   Posted 5/18/2018 12:50 PM (GMT -6)   
yes, the question and answer session was highly valuable, hope there is a video of that.

Girlie, yes it appears he has had success without using sulfa drugs, or rifampin. he states that he uses them but not as first line of defense, but for more resistant cases. he was real mindful of longer term issues with these drugs like liver/kidney, pancreatic issues, as well as the tendon issues with the fluoros. also, he doesn't like flagyl but prefers to use alinia. he doesn't like the black box warning with flagyl, and doesn't want to risk someone 10-15 years down the road developing cancer, atleast that is what he alluded too.

there was probably 200-300 people there at the talks. they did take video of the talks, i am sure they will be posted soon.
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