ACK!! Add Candida Lusitaniae and Reactivated EBV to the list! Help?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Rare Squirrel
Regular Member


Date Joined May 2018
Total Posts : 38
   Posted 5/17/2018 6:24 PM (GMT -6)   
I just got more test results and it appears that the strain of yeast I've been fighting is Candida Lusitaniae and according to my doctor I also have Reactivated EBV. I'm a little confused though because there was no IgM result, so how can she be sure it's reactivated? Here were the results:

EBV, Chronic/Active Infection
EBV Early Antigen Ab, IgG >150.0 High
Normal Range U/mL 0.0 - 8.9
Negative < 9.0
Equivocal 9.0 - 10.9
Positive >10.9


EBV Ab VCA, IgG >600.0 High
Normal Range U/mL 0.0 - 17.9)
Negative <18.0
Equivocal 18.0 - 21.9
Positive >21.9


EBV Nuclear Antigen Ab, IgG 130.0 High
Normal Range U/mL 0.0 - 17.9
Negative <18.0
Equivocal 18.0 - 21.9
Positive >21.9


I mean the symptoms I have make sense, but then with Lyme, Mycoplasma, Chl. Pneumonaie and EBV the symptoms all seem to overlap so who knows. Even the Candida can have similar symptoms! From what I'm reading, the lusitaniae strain is pretty rare though and seems to be correlated with more severe types of infections so I'm a little worried. I've been on Fluconazole since December (150mg daily) so still testing positive for yeast is really annoying! Also I've seen everything from there's no treatment for reactivated EBV other than supportive care, to many people die from this and need stem cell transplants (ummm, sounds a bit extreme). I am allergic to antivirals (broke out into hives and had trouble breathing from 1 single dose of Valtrex! and Zovirax/Acyclovir made me swell and had the worst gastro disturbances!) so I can't take any of those to help.

I'm starting to get the sinking feeling that I'm a lot sicker than any of the doctors realize and am going to end up in the hospital soon. One drop of A-Myco, 1 dose of Pyridoxal-5 Phosphate and 1 dose of Molybdenum set off a horrible reaction with muscle pain/spasms, nausea, gas and major cramping that I couldn't tolerate. Right now my ND wants me to just take Molybdenum(250mcg) and Pyridoxal-5 Phosphate (50mg) while she investigates alternative Candida treatments. But I don't want to take either if they are going to cause such pain again. 250mcg of the Molyb seems like a high dosage and I have seen other posts by people who had the same muscle pain, spasms and stomach upsets that I did so that makes me not want to ever touch it again. I know she's trying to work with my genetic challenges (I have MTHFR, COMT and CBS gene mutations) but I feel like right now I'm too sick to do anything other than attempt to knock out the candida.

Also my PCP and Infectious Disease doctor are trying to tell me that I don't have Lyme based on my tests because I only had IgG 23 and 30 and IgM 23. But the fact that my Elisa test was positive and that these bands showed up on 2 separate Western Blot tests (with 23 being specific for Lyme), along with my symptoms AND I remember having a bulls eye like rash should have them reconsidering that diagnosis shouldn't it? My ND isn't even questioning it, especially with a CD57 of 50 but we all know how MD's can be about Lyme. I have an appt with my PCP on Monday and would like to present some good Lyme information to her so that I can at least get her support as I go through this. Does anyone have some good links with information that MD's are likely to see as credible?

I'm still so overwhelmed and exhausted and getting really tired of the eat this, don't eat that, take this, don't take that things I'm being told! Thank you!

EDIT: Just discovered that my ND now wants me to take Monolaurin 300mg per day gradually working up to 900mg 3x a day! ACK!!! Has anyone taken this or had any experience with it? I'm seriously NOT wanting to buy or take ANY more supplements right now out of fear of what my screwed up body will put me through when I do!

Post Edited (Rare Squirrel) : 5/17/2018 7:27:47 PM (GMT-6)


Donjr
Regular Member


Date Joined Apr 2018
Total Posts : 187
   Posted 5/17/2018 9:32 PM (GMT -6)   
Garlic kills candida YouTube it it works

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2305
   Posted 5/18/2018 4:51 AM (GMT -6)   
Band 23 is specific to Lyme. You need treatment.

Candida can take a while to heal from, I have done well on Super Garlic, no sugar and mostly gluten free.

Sorry you are going through this and please trust your instincts on your health.

Its unfortunate that many M.D's and Infectious Disease M.D's don't yet understand how to diagnosis and treat Lyme and Co properly. Many people suffer because of this.

I understand it can be overwhelming with diet , medicine, protocols etc, but it can make a difference in getting well again.

Healing isn't always easy.

I wish you the best and hope you find answers and relief from symptoms soon.

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1664
   Posted 5/18/2018 6:27 AM (GMT -6)   
Stop wasting your time trying to educate your PCP and ID ducks. If its not in their CDC or IDSA treatment guidelines or medical journals they won't believe it. Contact you local lyme support group and see if they can recommend a Lyme friendly PCP in your area. Then fire your existing one like I did.

Rare Squirrel
Regular Member


Date Joined May 2018
Total Posts : 38
   Posted 5/18/2018 7:04 PM (GMT -6)   
From my understanding there are not any Lyme friendly PCP's anywhere in WA or OR! I'll keep digging but this whole thing is beyond ridiculous. I can't understand the how, why, when. where or any sense in this controversy in the slightest.

I will definitely look into the garlic, thank you for that! I have Celiac so I'm already gluten free and have switched out sugar for stevia. My ND has agreed to allow me to try one more oral medication for the Candida but she wants to test weekly and if it doesn't work she's putting me on an IV treatment. Hopefully adding the garlic will give the Voriconazole the boost it needs to do the job...although looking at this med and the list of side effects is already scaring me! I may try the garlic on it's own the first week and see what happens.

I actually saw my Rheumatologist today and showed her the results and my jaw dropped when she waved off the EBV saying that there was no IgM number to show that it's a current infection and that all this shows is a past infection. OMG really? I just don't get it. They can see how sick I am, yet do NOTHING to help. It's insanity!
Lyme positive ELISA but Neg WB IgG bands 23 & 30, IgM 23 (by CDC standards)
Mycoplasma IgG 1434
EBV Reactivation:
Early Antigen Ab, IgG >150.0 U/mL
EBV Ab VCA, IgG >600.0 U/mL
EBV Nuclear Antigen Ab, IgG 130
Candida Lusitaniae Positive
Bartonella & Babesia Neg but Highly Suspected
Celiac Disease and Gastric Sleeve
Hyper-Hypersensitivity making treatment nearly impossible!
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, August 21, 2018 9:24 PM (GMT -6)
There are a total of 2,995,334 posts in 328,257 threads.
View Active Threads


Who's Online
This forum has 161325 registered members. Please welcome our newest member, OP_princess.
278 Guest(s), 14 Registered Member(s) are currently online.  Details
Nick_69, Melissa D., oceanfisher58, ppm guy, JohnMorales, hogo2000, Hummingbird22, Pratoman, ks1905, Chutz, LauraBB, T.S. Eliot, fjdrill, borborygmi