Who here has gotten rid of their depersonalization / brain fog / spacey feeling?

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lj23p
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Date Joined Feb 2018
Total Posts : 6
   Posted 5/17/2018 7:10 PM (GMT -6)   
I'm just curious because I see so many horror stories on forums like these. I know some people in real life who've had lyme / bartonella etc. and have had this symptom (6 to be exact), and all 6 got better with treatment and this symptom went away. I've been on Doxy for about a month, bactrim for about 2 weeks, and malarone for a few days. My symptoms began in late November '17. (DP/DR has been chronic, not intermittent)

My point is - despite a small sample size of people who I know in real life, it just seems like there are a bunch of people who I see that just can't shake this awful symptom which in turn obviously gives me anxiety about getting better. I just sort of wanted to see who has gotten better with treatment.

Also - most people (including my LLMD) seem to think that this is a result of brain inflammation. If this is true, any tips on what I can do to manage inflammation as best as I can while fighting off the bacteria?

EDIT: When I say brain fog I don't mean cognition issues. I'm totally fine when it comes to reading, remembering words, etc. I'm strictly talking about that drunk feeling / depersonalization / derealization

Post Edited (lj23p) : 5/21/2018 10:39:26 PM (GMT-6)


Girlie
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Date Joined May 2014
Total Posts : 32611
   Posted 5/17/2018 7:40 PM (GMT -6)   
My brain symptoms are a lot better - I still have some cognitive and short term memory issues but getting better with treatment and time.

I used to wake up each morning and not know what day of the week it was or what plans I had for the day.

You haven’t treated very long - it could take many months - and if it’s Bart causing it, then you’ll need to treat Bart after Babesia.

For the brain - you can try one of these: Nutramedix Pinella Brain/Nerve Cleanse or Jernigan’s Neuro Antitox CNS/PNS
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Dahlias
Regular Member


Date Joined Jun 2017
Total Posts : 456
   Posted 5/17/2018 7:51 PM (GMT -6)   
My brain fog / spacey feeling is mostly gone. Now it mostly only hits me when I go into a room with mold issues (and then it hits hard).

I do believe that inflammation was a major cause of my neurological issues. Treating the infections has helped the most of course, but I do think burbur and pinella helps, and my LLMD recommended this combination: Fish oil, curcumin and Vitamin C. I felt that those helped as well.
"This too shall pass. It might pass like a kidney stone, but it will pass."

Lyme, babesia, mycoplasma pneumonia. Diagnosed May 2017. Neuro symptoms began September 2017. Treating 11 months so far.

Mark FW
Regular Member


Date Joined Dec 2017
Total Posts : 93
   Posted 5/17/2018 8:13 PM (GMT -6)   
I’ve been treating for 5 months and have improved a lot. Stress plays a high factor with flair ups.

For me keeping BP below 120/80 with meds also helps.

I’ve met people that have struggled long term but they all have 1 thing in common. They’re were and are still very inconsistent in their treatment.

Best advice I’ve read is that it’s very hard to navigate out of this infection on your own. You just don’t have the level of judgement.
Symptoms started July/17
Elisa & WB inconclusive Oct/17
Clinically diagnosed Dec/17
2 months of doxy & tinidazole Jan/18
Cowden started March/18
Treating Bart with abx April/18

elvin
Regular Member


Date Joined Apr 2018
Total Posts : 86
   Posted 5/17/2018 8:19 PM (GMT -6)   
Try herbals, they are much more effective in my opinion. You will feel worse at first. Took me 6 weeks of mild herx until I felt mostly recovered.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32611
   Posted 5/17/2018 8:45 PM (GMT -6)   
elvin said...
Try herbals, they are much more effective in my opinion. You will feel worse at first. Took me 6 weeks of mild herx until I felt mostly recovered.


For every person who says herbals are more effective - there’s a person saying antibiotics are better.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4715
   Posted 5/17/2018 9:19 PM (GMT -6)   
bvt and zhang got it 4 me.

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1506
   Posted 5/18/2018 10:29 AM (GMT -6)   
Nascent Iodine used with a slow ascent from 3mg to 15mg along with Doxy and Fluconazole had the most impact on my brain fog and thyroid. It took about 3 months but I caught it relatively early and treated aggressively.

Post Edited (ChickenArise) : 5/18/2018 8:22:11 PM (GMT-6)


astroman
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Date Joined Mar 2014
Total Posts : 4879
   Posted 5/18/2018 10:40 AM (GMT -6)   
What creates brain fog can be way more complicated than just one thing..such as "brain inflammation".

Many assume they have brain inflammation or lyme in the brain. yes this is possible, but not necessarily the case.

What we do know brain fog can be related to:

-your digestive system which is connected to your CNS.

-hormones - thyroid / adrenals, brain amino acid methalation, and liver health

-related to sleep, or lack / quality of

-autoimmune

Blacktop
New Member


Date Joined Aug 2017
Total Posts : 3
   Posted 5/18/2018 12:59 PM (GMT -6)   
I had Lyme for almost thirteen years before treating. One of the symptoms that I hated the most and couldn't shake was major brain fog. I didn't feel an improvement until I went on IV rocephin. And then a long run of abx. Took away my brain fog and panic attacks. I still deal with memory problems and slight foggyness here and there but no where near what it was.

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1897
   Posted 5/18/2018 7:20 PM (GMT -6)   
Pinella is supposed to be really good. I've taken it when feeling these symptoms and I credit them for playing a big role in resolving the symptoms.

The first time the symptoms stayed away for almost 2 years and the second time about 7 months.

Taking pinella again in hopes it can do the trick again, hopefully for another 2 years.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Borrelia, Babesia, Bartonella and Mycoplasma (treating everything to be on the safe side): May 2016 - Dec. 2016; 8/2017 - Present

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1897
   Posted 5/18/2018 7:32 PM (GMT -6)   
astroman said...
What creates brain fog can be way more complicated than just one thing..such as "brain inflammation".

Many assume they have brain inflammation or lyme in the brain. yes this is possible, but not necessarily the case.

What we do know brain fog can be related to:

-your digestive system which is connected to your CNS.

-hormones - thyroid / adrenals, brain amino acid methalation, and liver health

-related to sleep, or lack / quality of

-autoimmune


Very true. Knowing the cause is key.

A decent way of doing it is understanding the other symptoms one may be experience at the same time.

For example, for me symptoms are worse right after eating. The inflammation occurring pretty quickly. Stuffy nose, phelm, and low grade fever accompanies it. Gives me more clues to cause. Sounds very gut/digestive related.

Been taking anti-fungals and pinella with some slow but steady progress.

So log what other symptoms you may be feeling as well, especially when these symptoms heighten. Log what you routinely do or don't do when it occurs, for clues, etc.

Lyme requires one to basically be Sherlock Holmes.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Borrelia, Babesia, Bartonella and Mycoplasma (treating everything to be on the safe side): May 2016 - Dec. 2016; 8/2017 - Present

Aerose91
Regular Member


Date Joined Feb 2016
Total Posts : 387
   Posted 5/18/2018 7:49 PM (GMT -6)   
Lj23p,

Dissociation is my first, and by far worst, symptom. It's been demonstrably bad for 6 years now. I'm not saying that to scare you, i was sick for 5.5 years before being diagnosed with bartonella. 3.5 of those years were post coma and STILL no one could diagnose me. You've caught it super early so i have no hesitation that you will fully bounce back.

Just putting it out there if you want to chat, feel free to email me. It's such a horrific symptom to live with 24/7, only people who have also experienced it can really understand how it's unlike anything else

lj23p
New Member


Date Joined Feb 2018
Total Posts : 6
   Posted 5/19/2018 11:18 PM (GMT -6)   
elvin said...
Try herbals, they are much more effective in my opinion. You will feel worse at first. Took me 6 weeks of mild herx until I felt mostly recovered.


Which herbs did you use to be specific?

gerdy
Regular Member


Date Joined Feb 2018
Total Posts : 86
   Posted 5/19/2018 11:39 PM (GMT -6)   
Hi lj23p,

I feel normal now; been taking 2 herbals since Monday (6 days), and I feel normal.

No herxing.

I take Neuro Antitox II that eases symptoms including no herxing, and then 15 minutes later I take Lymogen (recommended if Bartonella is a concern). There are different remedies if Bartonella is not a concern.

Then, I eat mostly salad and lightly cooked vegetables with a little protein but no meat.

This is working for me. I have energy and I'm feeling good.

mpost
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Date Joined Feb 2015
Total Posts : 1522
   Posted 5/19/2018 11:44 PM (GMT -6)   
yes i have. no neuro issues here. i had terrible brain fog, memory issues, spatial confusiom etc....

all gone after 8 months mino+rif+zithro

i am still not sure if it will get back. i just stopped abx and on herbs only. fingers crossed.

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1522
   Posted 5/20/2018 12:11 AM (GMT -6)   
elvin said...
Try herbals, they are much more effective in my opinion. You will feel worse at first. Took me 6 weeks of mild herx until I felt mostly recovered.


i relapsed badly while on herbals for 2 years.

my advice is if on any treatment, u see your health going down for months and months, and never go back, it means u are not going to be better, and change treatment and even the llmd if she is too stubborn to understand...

do not stay like me for 2 years on herbs thinking at "the healing power of plants" while the bacteria takes hold of your brain. i did not have brain fog before the herbs and i ended up like that and i barely managed to pull myself out of it.

i told my dr time and time again im getting worse and she was pumping B vitamins in me to "compensate"... she was treating herbs only... some doctors just live in denial at their patients' peril ...

emotions
Regular Member


Date Joined Mar 2005
Total Posts : 210
   Posted 5/20/2018 6:37 PM (GMT -6)   
Could you tell me more about your depersonalization and what that feels like?
1992-Pos.Western Blot
1996-Active mono
2004-Hash. thyroiditis
2012-Positive Lyme Dot-blot,pos EBV,CMV,Mycloplasma Pneum.
2014-Active EBV, pos CMV, pos Myco,Lyme-Elissa, Anaplasma,
Bartonella-FISH
2016-Pos chronic EBV,Pos. Bartinella FISH
Currently fatigue, sweats, H/A, dizziness, anxiety, memory loss/brain fog but plugging along. Taking herbs

elvin
Regular Member


Date Joined Apr 2018
Total Posts : 86
   Posted 5/20/2018 11:43 PM (GMT -6)   
Lj23p I started with colloidal silver and then oregano then a few buhner herbs. I finally started monolaurin only in feb and built up for several weeks. In the last few weeks I have switched to full spectrum coconut oil along with alternating oregano and cinnamon bark every other day.

I take apple cider vinegar and kelp everyday. I've just added niacin in the last week and that is stronger than everything else. I'm only up to 1/3 of a 250mg capsule. My whole regimen is just 6-8 capsules a day. Most symptoms are gone but I still herx mildly, although the niacin is pretty tough still.

I've done no diet changes other than when I had nausea. Also, I might switch the kelp for a low dose of iodine from a pill.

NW_Lyme_Guy
Regular Member


Date Joined Jul 2017
Total Posts : 33
   Posted 5/21/2018 12:09 AM (GMT -6)   
I seem to be on the other side of it for some time. My MD asserts the depression comes primarily from inflammation, but my ND seems to feel it was caused by the serotonin breakdown pathway going haywire. Either way, after 1 year of abc and 2 + on herbs feel like 80% cured. Hang in there.

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1522
   Posted 5/21/2018 3:18 PM (GMT -6)   
just wanted to add that my fog is back. took about 7 days of break after 8m of antibiotics....

elvin
Regular Member


Date Joined Apr 2018
Total Posts : 86
   Posted 5/21/2018 4:25 PM (GMT -6)   
I'm sorry to hear this mpost, I think that's probably what would happen to me as well if I get off my protocol. It always seems that my symptoms line up with bartonella and that would explain the quick relapse, I suppose.

elvin
Regular Member


Date Joined Apr 2018
Total Posts : 86
   Posted 5/21/2018 4:31 PM (GMT -6)   
Mpost, could it be that the oregano is killing something that the abx didn't get and you are herxing? I spent many nights herxing with body pains and crazy brain wondering if I was getting worse or better (herx). It turned out that I was getting better slowly but it took some time and I'm still at it somewhat. Maybe stay at it another week or so or reduce the oregano to see if it clears up? Maybe just one in the morning and one at night?

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1897
   Posted 5/21/2018 6:35 PM (GMT -6)   
mpost said...
elvin said...
Try herbals, they are much more effective in my opinion. You will feel worse at first. Took me 6 weeks of mild herx until I felt mostly recovered.


i relapsed badly while on herbals for 2 years.

my advice is if on any treatment, u see your health going down for months and months, and never go back, it means u are not going to be better, and change treatment and even the llmd if she is too stubborn to understand...

do not stay like me for 2 years on herbs thinking at "the healing power of plants" while the bacteria takes hold of your brain. i did not have brain fog before the herbs and i ended up like that and i barely managed to pull myself out of it.

i told my dr time and time again im getting worse and she was pumping B vitamins in me to "compensate"... she was treating herbs only... some doctors just live in denial at their patients' peril ...


I always promote ABX for the much needed haymaker punches. If health is deteriorating fast use ABX to assist. After that initial potent assault of ABX one can switch to herbs finish the fight and/or keep lyme at bay.

Can herbs only take some one from 0% to 100%, yes it's possible but herbs are a thousands japs versus ABX which are haymakers. With the former just a much slower process. "Death by a thousand cuts".

Doing both at some point during treatment is the way to go, for both bring things that the other does not to the table.

As much as I'm an herb guy, I've never got out of a lyme hole with only one or the other. ABX tends to get me out of the hole, while herbs keeps me out of it for as long as it can.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Borrelia, Babesia, Bartonella and Mycoplasma (treating everything to be on the safe side): May 2016 - Dec. 2016; 8/2017 - Present

elvin
Regular Member


Date Joined Apr 2018
Total Posts : 86
   Posted 5/21/2018 7:24 PM (GMT -6)   
dacarte3, were buhner herbs the only ones you used to try to get out of a lyme hole?
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