Does this sound like Bartonella or related infections?

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joblo5767
New Member


Date Joined May 2018
Total Posts : 5
   Posted 5/18/2018 3:49 AM (GMT -6)   
Hey, based on these symptoms, should I get tested / see a LLMD?

6 years ago:
(Striae) marks on back for several weeks/months. (Have not returned)
Depersonalization,
seizure-like activity in brain (EEG data)
Anxiety, OCD symptoms

5 years ago:
body tremor / weakness,
fatigue

4 years ago:
Tinnitus. Have got 2 more types since onset. Got worse 2 years ago, and again 6 months ago
Also have highly sensitive right ear

For last few years:
Every few months, my gums inflame in same spot for no apparent reason. Lasts about a week
Chronic post-nasal drip, sticky spit in throat
Suddenly developed habit of night time urination, sometimes twice
Very hot when I wake up, hard to fall back to sleep, not sweating

Within last year:
Worsening of mental symptoms (also came off SSRI though)
Heart palpitations (seemingly constant stronger beat)
Infrequent slight brown tinted urine (Not UTI)
Infrequent cold sensation in bladder (Not UTI)
infrequent cloudy urine (Not UTI)
Sometimes mild urinary incontinence post urination
Sore sole of left foot (1 month, lasted for several days, then infrequently)
Frequent unexplained slight chesty cough with phlegm
Visual snow in certain lights
Last week (10th May) had unexplained pain in jaw for several days
Recently (March) had brief episode of finger moving on it’s own



Current mental health issues: Depersonalization, anxiety, depression, OCD, racing thoughts, constant earworms, rage, brain fog, long- and short-term memory impairment

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2108
   Posted 5/18/2018 3:58 AM (GMT -6)   
Hi and welcome to our forum,
I would seek out an llmd and get you could get tested through Igenix .

We can help you find an llmd here or you can go to:

ilads.org/ilads_media/physician-referral/

/www.lymedisease.org/find-lyme-literate-doctors/

If you would like responses from members on llmd's you would have to enable your email in your profile and the start a new thread/post "Seeking an llmd in your area" or you can email me and I can check our list for your area.

I have Bartonella and many of your symptoms are the same.

I am not a medical doctor so it would be best to get diagnosed by an llmd.

I am sorry you are having these symptoms and I do wish you the best of healing and soon.

Take care Others will be along to chime in.

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 622
   Posted 5/18/2018 6:45 AM (GMT -6)   
I also have Bartonella and have a lot of the same symptoms. Not as much anxiety stuff but lots of the brain fog, short term memory issues, bathroom use during the night, sore feet, fatigue, etc.

You might be dealing with more than on infection though so definitely see an LLMD as goshawk mentioned.
Very sick starting around 07/2016
Started treatment 03/2017
Bixain & Cefdinir - 3 months - plateaued
Then Biaxin & Minocycline - 3 months - did not improve
Tinidazole - 500MG 2x a day - 2 weeks
Mepron 5mL 2x a day Zithromax - 3 months - no improvement
Cats Claw, Gou Teng, CSA, Japanese Knotweed - 6-9 months - no improvement
CURRENTLY TAKING:
*Cordyceps
*Rifampin- 300mg
*Biaxin

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1679
   Posted 5/18/2018 7:14 AM (GMT -6)   
I have bart, Lyme, ehrlichia, and mold. I have had many of the same symptoms.

Coinfection testing is even more unreliable than Lyme testing - lots of false negatives.

elvin
Regular Member


Date Joined Apr 2018
Total Posts : 86
   Posted 5/18/2018 7:31 AM (GMT -6)   
By "ear worms" do you mean that songs get stuck in your head? I have the same but I've never attributed it to bartonella. Sounds plausible though.

acarined
Regular Member


Date Joined Jul 2015
Total Posts : 175
   Posted 5/18/2018 9:54 AM (GMT -6)   
Yes, I've had all of those, and also the earworms...it had never occurred to me that it could be Lyme related. Two LLMDs diagnosed me with Bartonella by symptoms, the testing is unreliable. Here's what I take for bart when not on antibiotics:

Vitamins A, C, D
Magnesium, zinc & copper (my levels are blood tested), selenium
P5P, methylated B12 & folate, taurine
NAC, ALA
Herbs: Sida acuta, houttuynia, cat's claw, knotweed, andrographis, berberine, turmeric
Clove oil (topical, soles), oregano oil
Plaquenil, cytomel
Sleep: GABA, melatonin, lithium orotate

I take other supplements as well, those are what have helped me most with bart. This is to give you some ideas, do your research before taking anything, you might have different needs or not tolerate these same substances.

joblo5767
New Member


Date Joined May 2018
Total Posts : 5
   Posted 5/18/2018 3:04 PM (GMT -6)   
Thanks so much for the replies! Great info.

I do suspect an infection but just wanted some more opinions. I think I am going to get tested first, and then maybe proceed with a doctor, as opposed to the other way around. There aren't any great LLMDs around me anyway (Dublin).

I am going to do the Galaxy Diagnostics tests: Triple Draw ePCR Bartonella, IFA, IgG + ELISA for Lyme + PCR for other co-infections). It seems like that is the most reliable test. If I get any positives I guess I'll either try treating myself or move in with my Dad in Texas ( I assume there are some good LLMDs around there)

What do you guys think? Thank you so much for your time

borrelioburgdorferii
Regular Member


Date Joined Feb 2017
Total Posts : 209
   Posted 5/19/2018 5:19 AM (GMT -6)   
I have earworms too. Your symptoms sound very Lyme-y. Or more specifically Lyme n Co-esque.
Tick bite/EM rash +10 years ago
Active, athletic, with past concussions.
1st known bite: tick infested area, flu, chills, fever, neuro symptoms.
Treat with ABX/herbs recently (2-5 years now).
Get symptom free with strict diet: paleo/keto/IM fasting
Have done Buhner's Protocol, Doxycycline, Amoxicillin, Supplements.
IgG via IgeneX 31-IND, 41++, 58+ (Sep-2016)
IgM via IgeneX 31+, 41-IND (Sep-2016)

sebreg
Veteran Member


Date Joined Jun 2015
Total Posts : 807
   Posted 5/19/2018 9:22 PM (GMT -6)   
Previous manifestation of striae on back plus all those neuro symptoms def leads me to think bartonella is involved. Possibly coupled with some other chronic infections like lyme. They rarely travel alone, especially if there is heavy symptom manifestation. A vast array of symptoms like this across various body systems can often be driven by chronic infection(s).

I think it's a good idea to get further confirmation via testing (Galaxy is good from what I've heard). But even if you get a negative I wouldn't let that rule out bartonella. It sounds like such a classic case and none of the diagnostics are perfect for these infections.

I'd def start checking out treatment options, hopefully you can connect with a solid llmd!

Another thing I've always liked as indirect confirmation of underlying infections: trialing various broad spectrum antimicrobials. If you get a flare in symptoms after trying them (herxheimer) that is another signal of underlying chronic infections.

Post Edited (sebreg) : 5/19/2018 9:25:10 PM (GMT-6)

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