Okay, just to possibly help someone I'll post occasionally how this treatment is going, must say I've had some surprizes ... I feel more tinglies and stretchy/sunburnish feelings with the doxy/rimfampin....in comparison to the samento... It's not really fair to the samento though, because before it even really got a chance to show what it can do, I ended up in the hospital for a secondary infection in my bad leg, resulting in another prescript
ion....cephalexin 500 4 x per day, now this has really put a wrench into the treatment, I have been on major herxing overload, I have to lay off the doxy and remfampin because I know I will make myself horribly sick if I take it all....
The secondary infection is cellulitis, it was almost missed, glad I spoke up for the dr to take a look, I thank the Lord for that, and also the fact that he allowed me to speak up to limd (lyme illiterate medical doctor)
but even though he is lyme illiterate THANK GOD he went with the results being positive, instead of holding me to the standards of the cdc, in which case they would just have me to finish my life dying in this bed totally taken over by spirochetes.
aaaarrrgh so basically I have neuro lyme- lyme arthritis, possibly bartonella, and who knows what else...I am more or less stuck to this room where my adjustable bed is and my bedside commode, as I can no longer make it the 15-20 feet to the restroom...I do not go anywhere except church a couple times a month, I am so ready to get better....just a few months ago I could still do stuff as long as I had taken my 600 ibuprofen and tramadol 50, or flexeril...now since I am treating this, this past month it has really gotten bad, these spirochetes must have colonies of biofilm all over me, my leg and foot is swollen and stiff/tight, how in the world will I ever manage to deject these spirochetes/cysts from my muscles I have no clue...
the spasms look like convulsions, my whole body tightens up and it causes me to stiffen and lounge in whatever chair I happen to be in... The spasms are every single day now, apparently I have a spine full of lyme, yuk...The list of concoctions I am taking /drinking is quite extensive...it goes like this
doxy (of course)
detox/cleansing support formula
ordered more, but it hasnt come in yet...5mthf for my mthfr mutation
some stuff Dr Buhner says you must get if you have neurolyme, I don't remember what it is off-hand.
SO, hope i didn't offend anyone, just didn't know where to start...