How quickly do your symptoms return?

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Fronton
Regular Member


Date Joined Sep 2014
Total Posts : 443
   Posted 5/19/2018 12:16 PM (GMT -6)   
I am interested to know how quickly your symptoms creep back in after stopping abx?

I am currently testing the waters myself and I have been off of abx for 29 days and so far so good. I will probably reintroduce this coming Monday, though.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33965
   Posted 5/19/2018 12:23 PM (GMT -6)   
I’m envious


How long will you be back on? M/w/f for a week?
Or three in a row?


Are you going to keep stretching it out ie next time go 35 days..,then 40 days..etc?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1527
   Posted 5/19/2018 1:46 PM (GMT -6)   
Fronton said...
I am interested to know how quickly your symptoms creep back in after stopping abx?

I am currently testing the waters myself and I have been off of abx for 29 days and so far so good. I will probably reintroduce this coming Monday, though.


i have one week since i stopped. no symptoms returned so far.
but that is way way too early to call it a win. must wait for at least 6 months in my opinion, to get some clues about where i stand.

Fronton
Regular Member


Date Joined Sep 2014
Total Posts : 443
   Posted 5/19/2018 1:48 PM (GMT -6)   
mpost said...
Fronton said...
I am interested to know how quickly your symptoms creep back in after stopping abx?

I am currently testing the waters myself and I have been off of abx for 29 days and so far so good. I will probably reintroduce this coming Monday, though.


i have one week since i stopped. no symptoms returned so far.
but that is way way too early to call it a win. must wait for at least 6 months in my opinion, to get some clues about where i stand.


Yeah, I agree. That's why I think I may just continue this coming Monday.

And Girlie no, I don't want to push my luck!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33965
   Posted 5/19/2018 4:24 PM (GMT -6)   
mpost said...
Fronton said...
I am interested to know how quickly your symptoms creep back in after stopping abx?

I am currently testing the waters myself and I have been off of abx for 29 days and so far so good. I will probably reintroduce this coming Monday, though.


i have one week since i stopped. no symptoms returned so far.
but that is way way too early to call it a win. must wait for at least 6 months in my opinion, to get some clues about where i stand.


mpost - are you symptom free now?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Aurora2013
Regular Member


Date Joined Jun 2017
Total Posts : 92
   Posted 5/19/2018 4:35 PM (GMT -6)   
Fronton,

If I am late taking a dose of any of my antibiotics/antiparasitics, my neuropathy starts to rage. The longest I have been able to go with a reduction in meds (I am paying for it now) was one week. During this week I felt the best that I have felt in five years. I am truly envious of anyone that can stop taking their meds and not have an immediate spike in symptoms.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5099
   Posted 5/19/2018 11:07 PM (GMT -6)   
They didn't.

Two years four months since last ABX. No flares or symptom increase since then.

Still slowly getting better, rebuilding muscles. Not everyone get back to 100%, time will tell.
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in Jan 2016. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.

Post Edited (astroman) : 5/19/2018 10:14:30 PM (GMT-6)


mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1527
   Posted 5/20/2018 12:29 AM (GMT -6)   
Girlie said...


mpost - are you symptom free now?


i have itchy eyes but i treat with levocetirizine oral and eye drops with crhomolyn sodium. plus hi dose vitamin C . all these 3 help stabilize mast cells. it seems to be working as i have minimal symptoms left.

oh i still take 2 capsules of oil of oregano in the morning 55% carvacrol, so 2x181mg = 370 on empty stomach. yes i know i must stop after 2 weeks of this. plus i take some herbs like shiitake maiake capsules, monolaurin, ashwaganda, etc... i have some support treatment. in 3 days ill receive massive herb package from germany with all sorts of things. ill take these for 3-4 months and hope i do not relapse again.....

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33965
   Posted 5/20/2018 1:30 AM (GMT -6)   
How long did you go before you relapsed?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1527
   Posted 5/21/2018 11:52 AM (GMT -6)   
one week since end of antibiotics. this is all it took. i've got my brain fog back sad
not complete, but about 50% of what it used to be 9 months ago.

i have great confidence that in two weeks time it will be completely back plus i'll get all the rest of the symptoms

8 months of abx treatment, complete waste of time...

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33965
   Posted 5/21/2018 12:11 PM (GMT -6)   
mpost said...
one week since end of antibiotics. this is all it took. i've got my brain fog back sad
not complete, but about 50% of what it used to be 9 months ago.

i have great confidence that in two weeks time it will be completely back plus i'll get all the rest of the symptoms

8 months of abx treatment, complete waste of time...


Waste of time? At least you know you got 'there' and can get 'there' again.

Did you not ease off the abx...ie pulse them every few weeks for a few days before completely stopping?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1527
   Posted 5/21/2018 3:10 PM (GMT -6)   
Girlie said...

Did you not ease off the abx...ie pulse them every few weeks for a few days before completely stopping?


no :/ is that it ? pulsing ? rolleyes

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33965
   Posted 5/21/2018 3:22 PM (GMT -6)   
mpost said...
Girlie said...

Did you not ease off the abx...ie pulse them every few weeks for a few days before completely stopping?


no :/ is that it ? pulsing ? rolleyes


Well, I think it's a good idea...to just keep stretching out the time off, no?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Hypatiac
New Member


Date Joined Mar 2018
Total Posts : 18
   Posted 5/21/2018 7:20 PM (GMT -6)   
Well, I do not even feel good with antibiotics even though it has been 2 months and 20 days. All my symptoms are like day one. I have no idea how would I feel if I stop taking them. It is both good and bad(for myself) to know that abx. works for other people.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33965
   Posted 5/21/2018 10:28 PM (GMT -6)   
Hypatiac - it can take awhile.

For me nothing came quickly - my symptoms (close to 40) are ever so slowly leaving - I’ve been down to under 10 for a long time now.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1527
   Posted 5/22/2018 1:59 AM (GMT -6)   
Hypatiac said...
Well, I do not even feel good with antibiotics even though it has been 2 months and 20 days. All my symptoms are like day one. I have no idea how would I feel if I stop taking them. It is both good and bad(for myself) to know that abx. works for other people.


my symptoms started to disappear after 2 months. but this is the 2nd time i tried antibiotics, first time i did i was very very sick and adding antibiotics did not change things in good at all.
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