DNA testing companies "owning" your DNA?

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10LymeB
Veteran Member


Date Joined Feb 2017
Total Posts : 675
   Posted 5/19/2018 11:51 AM (GMT -6)   
So, a few of my friends have said they're afraid to do the DNAConnexions test because they don't want some random company owning their DNA. There is also this concern with the ancestry companies.

I don't even know. If a company "owns" your DNA, I'm assuming it's so they can test it, use it for whatever, etc. I mean, what's the worst they can use it for? Make a clone army? LOL. On the other hand, it's not like your DNA isn't spread out all over the world and all over your hairbrush. If a lab wants DNA, it's not hard to find. Of course, this may also fall into the spiritual consent area - that is, they don't want to consent to their essence being used without their permission. Let's think nefarious purposes...if a company owns your DNA, does that mean they technically have dominion over it? In a legal sense? Is it like signing your soul over to the devil?

Does anyone have any opinions on this?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 5/19/2018 11:53 AM (GMT -6)   
I think the concern may be that insurance companies could get their hands on the data and refuse insurance based on certain predispositions - like the breast cancer gene.. etc

Once your genetic data is “out there” who knows where it will turn up?

Omg - I sound like my husband ... lol
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
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astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4880
   Posted 5/19/2018 12:44 PM (GMT -6)   
Right now there are laws against health insurance discriminating based on genes. We all have some "bad" genes, and that does not mean they will be expressed some day (switched "on").

A company who "owns" your DNA does not have a patent or rights to it. For now it just lets them use it for further research. How do they know who "saw" / used your DNA first?- they dont.

I think the future holds more personal rights/freedom issues than some company knowing your DNA. Take "AI"- thats a threat. Driver-less cars are the first step to remove personal freedom, but city dwellers/hipsters and people who swallowed the "society pill" dont acknowledge this / are oblivious to it or don't care.

A car operating of GPS can purposely have travel / geographical operational limits. - As in, no longer driving out to the sticks, or down that minimally mapped BLM / forest road to your outdoor haven. I never have been and never will be a deep city dweller, so this concerns me.

The weirdest thing I've seen with these ancestry and /me data companies are the people who link it to social media. Some don't give a F about personal privacy or want everyone to know theirs for some reason?

Fact is, if the day comes that society / government want all this info on you along with your implanted chip......they will demand it, and you wont stop them unless you move to a remote part of the world. Glad I'm not twenty something.

Post Edited (astroman) : 5/19/2018 1:18:10 PM (GMT-6)


10LymeB
Veteran Member


Date Joined Feb 2017
Total Posts : 675
   Posted 5/19/2018 2:27 PM (GMT -6)   
Astroman,

It does seem like the ones who are afraid of DNA conspiracy are over the age of 40. LOL. I'm 43, BTW. I just don't know what to believe. I do not like everything automated. I'm too much of a control freak. I was a latchkey kid, I do things for myself smile

Girlie,

I get the insurance company thing. That makes sense. We live in a world where data is for sale, even if it's anonymous - just to sell us more crap we don't need. It sucks you can't trust anyone. One of my friends is scared to get lyme tested because she doesn't want her DNA sold. It's sad.
*43 yo - Treatment started Nov. 2016 - Bitten by mosquito in Paris 2013
* SIBO (improved with diet)
* Candida (improved with diet and Nystatin)
* Lyme - Babesia - Bartonella
* Hashimoto's (improved with NatureThroid)
* EBV
* HHV6
* Tinea Versicolor (improved with Sporanox)
* IBS (improved with diet and BPC 157)
* Infusio Jan. 2018 (http://www.kristensimental.com/lyme-hub/)

G-Ju
Regular Member


Date Joined Apr 2018
Total Posts : 36
   Posted 5/21/2018 5:21 PM (GMT -6)   
I did my DNA through MyHeritage, and I'm awaiting the results of my DNAConnexions (backed up to 5-6 weeks for results). I'm glad I did both. I also have blood drawn at the doctor/lab for my annual physicals, and I have no idea what they do with my left over blood.

As far as concerns about insurance companies getting information about my health via DNA compaines, I don't believe these DNA companies would spend the extra time, money and energy to pull medical DNA out of my saliva or urine unless I paid for it. Well, maybe they would if I was a wanted person or something. LOL I'm sure you saw that murderer who was recently tracked down and captured because family members had their DNA done. I think that was pretty awesome.

Having said that, I have no idea what they do with my left over blood, pee and saliva. As long as I know what I need to know, regarding my Lyme infection, I couldn't care less what they do with it. I would do anything to know what's going on with my health.

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