Neuropathy is fine at night but progresses as day goes on

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Nellie2929
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Date Joined May 2018
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   Posted 5/20/2018 7:06 AM (GMT -6)   
So far my only lyme symptoms are tingling hands (emg diagnosed carpal tunnel and ulnar neuropathy both mild)
I have some neck pain as well.


If I wear the braces at night it seems fine. I do get weird sensations on my arms sometimes but lately they've been ok. My feet are the worst and get worse as day goes on. Foot pain and burning on outer edge of feet. Some toe numbness but it hasn't been bad lately. Is it normal for it to be ok when you wake up but then get progressively worse. Feet tingle but its random. Had emg on legs that came out normal.

mpost
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Date Joined Feb 2015
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   Posted 5/20/2018 7:40 AM (GMT -6)   
yes it is normal to wake up feeling little pain then things to progress. when u sleep your pain receptors go numb, so u do not feel pain as you do when u are awake.

it takes 30min-1h to un-numb yourself from sleep and start feeling pain again.


are these all your symptoms ? some tingling hands and neck pain ? who does not have neck pain these days, with all the sitting and computer work. Half of my colleagues have neck pain and they do not have lyme disease...

consider yourself lucky that these are all your symptoms. i would NOT treat your lyme if this is all you have. i also remember you do not really have a positive lyme test either...

also if u really have calpar and ulnar neuropathy, these are mechanical. i mean your nerves are compressed at some points and that causes the neuropathy. so if this is really diagnosed properly (for example with Phalen maneuver) then that is not caused by lyme disease as it is a physical/mechanical problem in your arms.

so negative lyme test and only symptom numbness caused by a nerve compression - that is NOT lyme and i think it would be a mistake to start long term antibiotics only with this presentation.

i know, shocking, not everything wrong on this planet is due to Borrelia ;-)

Noah2112
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Date Joined Dec 2017
Total Posts : 119
   Posted 5/20/2018 9:29 AM (GMT -6)   
I think physical therapy for your wrist injury is your solution here. I had a friend who had carpal tunnel, she's a freelance writer and typed all day. She recovered completely with physical therapy but she had to stop typing at all for almost an entire year to give her wrists a chance to heal.

astroman
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   Posted 5/20/2018 9:41 AM (GMT -6)   
Nellie2929 - "So far my only lyme symptoms are tingling hands (emg diagnosed carpal tunnel and ulnar neuropathy both mild)I have some neck pain as well."

No other common lyme symtoms? are you sure you have lyme? test results that correspond to it at all?

Without lyme neck and hand tingling both together are a sign of further up nerve impingement including neck and thoracic outlet. Specific PT places treat this.
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in Jan 2016. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.

Nellie2929
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Date Joined May 2018
Total Posts : 22
   Posted 5/20/2018 9:44 AM (GMT -6)   
This is why I feel like I need a good llmd. I am not surprised that u have carpal tunnel and ulnar neuropathy. From june 2017 to march 2018 I was boxing and kickboxing 4 times a week and I'm not easy on myself. When the rest of the weird symptoms started is when I questioned lyme. I had plantar fasciitis starting last june/July. It got progressively worse and I continued to aggravate it by not listening to my body. By December I could barely walk without shoes and my left foot was getting shooting pains. Went to podiatrist in Feb 2018 and he sent me to PT. After 5 or 6 sessions I noticed weord sensations going up my legs. March 9th was my last day of boxing because I got tingling up my arm through my shoulder. This is when I had my emg on my arms. Then a few days later the tingling escalated into my legs and numbness as well. I immediately suspected lyme and went into freak out mode. Changed my diet in a day and was incredibly anxious.

My western blog igm showed band 41 but not positive
My western blog igg was band 41 positive and band 66 and band 93 were faint. I question lyme because of band 93. Llmd first said it has nothing to do with lyme and said see a neurologist. Well I did that and my brain mri is clear. I did see a neurospinal doc who did the semg and all the areas of my back that were red were areas that could be causing this stuff. I do get some tingling in my face and ears clogged l, stiff neck but I have also been super stressed. I went from exercising and being me to it all crashing down in a week. Just seems weird that I have all these pinched nerves. Arm specialist did the tinsel tests and confirmed they are pinched. Foot doc suspects tarsal tunnel. I also know lyme mimics lots. Just seems odd that it all happened at once.

Nellie2929
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Date Joined May 2018
Total Posts : 22
   Posted 5/20/2018 9:46 AM (GMT -6)   
The neurospinal doc did a thoracic outlet test and suspects that as well.

Nellie2929
Regular Member


Date Joined May 2018
Total Posts : 22
   Posted 5/20/2018 9:48 AM (GMT -6)   
I guess this is why I'm confused and feel like a indeed a better llmd who doesnt just want to try some antibiotics and see what happens. That to me just seems crazy

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1997
   Posted 5/20/2018 9:50 AM (GMT -6)   
Your symptoms sound like bartonella to me - foot pain, stiff neck, numbness and tingling. I have them all.

I disagred with mpost saying not to treat if that's all the symptoms you have. It will only get worse with time.

Nellie2929
Regular Member


Date Joined May 2018
Total Posts : 22
   Posted 5/20/2018 9:54 AM (GMT -6)   
Do yours come and go? My llmd explained you can have carpal tunnel and ulnar neuropathy and it can be aggravated by lyme

Nellie2929
Regular Member


Date Joined May 2018
Total Posts : 22
   Posted 5/20/2018 9:56 AM (GMT -6)   
Is there a best way to treat bartonella?

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1997
   Posted 5/20/2018 10:14 AM (GMT -6)   
Nellie2929 said...
Do yours come and go? My llmd explained you can have carpal tunnel and ulnar neuropathy and it can be aggravated by lyme


Yes. My symptoms came and went and new ones emerged from 2009 to 2015. In 2015, I got sick with bronchitis and my immune system crashed. I've never recovered since. I was also being exposed to mold at home and at work. The mold exposure contributed to my demise.

Symptoms of Lyme and coinfections often come and go until something happens that pushes the immune system off a cliff, like surgery, intense stress (emotional, mental, or physical), an acute illness, grief, divorce, mold or other toxin exposure, etc.

I had carpal tunnel like symptoms in 2012. I also started having strange bone pain in my feet. When I would get up to walk, it would feel like the bones in my entire feet were going to break and collapse. If I kept walking it would wear off. It went away after a couple of weeks and came back later but felt different. My ankles felt weak and I avoided heels and unstable shoes. The bottoms of my feet would feel sore, like I'd been walking on rocks. Those foot symptoms came and went for years until they came and stayed.

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1997
   Posted 5/20/2018 10:20 AM (GMT -6)   
Nellie2929 said...
Is there a best way to treat bartonella?


That is an excellent question and one that I don't think anyone has an answer to yet.

Search bartonella treatment in the search feature. We've had quite a few threads on this in the past few months.

Some treat with antibiotics, some with herbs, some with both. Others use other alternative treatments like rife, bvt (bee venom therapy), etc.

What works for one may not work for another.

Nellie2929
Regular Member


Date Joined May 2018
Total Posts : 22
   Posted 5/20/2018 10:36 AM (GMT -6)   
This is why I question lyme and other coinfections. I definitely had alot going on and was super stressed, not sleeping well, drinking too much wine and not eating well. My vitamin d was deficient (better now) and it seems like my body crashed. I will research the bartonella treatments.
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