Looking for LLMD in Rhode Island, Connecticut or Massachusetts

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wadicat
New Member


Date Joined May 2018
Total Posts : 4
   Posted 5/20/2018 11:23 AM (GMT -6)   
Greetings! I've been under treatment from an LLMD in RI who is going to be retiring soon. I'm looking for a replacement LLMD who keeps current with the science of Lyme.

I'm particularly interested in any doctors who are using the drug combination (ceftriaxone/doxycycline/daptomycin). See https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5095124/pdf/fmicb-07-01744.pdf. This combination works in vitro to kill persisters.

I had the bull's eye in July 2016, was prescribed 14 days of doxy by my well-meaning but totally ignorant GP. Relapsed in August 2017, treated with doxy, cefdinir and palaquin by LLMD. Relapsed again in April 2018, being treated with amox and cefdinir by LLMD. I take a ton of supplements, which don't seem to be enormously helpful.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32685
   Posted 5/20/2018 12:49 PM (GMT -6)   
Hi wadicat - I see you've posted before, but you weren't official welcomed to our community! Sorry!


There are a few LLMD's prescribing the persister drugs - Dapsone....Daptomycin...Dasulfiram...PZA...

I don't know know who is prescribing daptomycin in particular.


Were you symptom free each time you stopped antibiotics?


I see you haven't been treated for bartonella or babesia specifically. Was that ever discussed?

Hopefully, someone will be along and can email you some LLMD names who may do the Daptomycin.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Cberg
Regular Member


Date Joined Jul 2017
Total Posts : 50
   Posted 5/20/2018 2:27 PM (GMT -6)   
Hi wildcat I'm from this area I know some mds that treat lyme however idk about the persister drugs

wadicat
New Member


Date Joined May 2018
Total Posts : 4
   Posted 5/20/2018 5:57 PM (GMT -6)   
thanks Cberg and Girlie...I showed negative on blood tests for bartonella or babesia and don't have the classic symptoms. Of course, the blood tests are notoriously inaccurate and I have never had a biopsy, so I can't be sure.

After stopping antibiotics, I no longer had joint pain, sensitivity in the feet, brain fog or headaches but I was still weak and easily fatigued (which is a common side-effect for me from antibiotics).

From reading the scientific literature (I have a phd in a scientific field), it's clear exactly what drugs work in vitro to destroy all forms of the bacteria. It's not clear what drugs work in vivo, however I'm willing to try. I've got 3 small kids, professional job, and I'm a single mom so I really need to cure this disease.

Any help much appreciated. I'd like to find an LLMD who is prescribing the persister drugs. I'm willing to travel cross country if I need to, but east coast would be preferable. Please email me! smile

Kct
Regular Member


Date Joined May 2016
Total Posts : 183
   Posted 5/20/2018 6:03 PM (GMT -6)   
I know of a LLMD in Worcester area that takes insurance.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32685
   Posted 5/20/2018 6:39 PM (GMT -6)   
wadicat said...
thanks Cberg and Girlie...I showed negative on blood tests for bartonella or babesia and don't have the classic symptoms. Of course, the blood tests are notoriously inaccurate and I have never had a biopsy, so I can't be sure.

After stopping antibiotics, I no longer had joint pain, sensitivity in the feet, brain fog or headaches but I was still weak and easily fatigued (which is a common side-effect for me from antibiotics).

From reading the scientific literature (I have a phd in a scientific field), it's clear exactly what drugs work in vitro to destroy all forms of the bacteria. It's not clear what drugs work in vivo, however I'm willing to try. I've got 3 small kids, professional job, and I'm a single mom so I really need to cure this disease.

Any help much appreciated. I'd like to find an LLMD who is prescribing the persister drugs. I'm willing to travel cross country if I need to, but east coast would be preferable. Please email me! smile


I do know on that prescribes the Dapsone, but not sure about the daptomycin.
If you're interested, you could email me.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1604
   Posted 5/21/2018 5:22 AM (GMT -6)   
Try Lyme Center of New England in Cumberland. But booked out into October.

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2123
   Posted 5/21/2018 4:39 PM (GMT -6)   
Hi Kct,

Would you mind emailing me the llmd in Worcester that takes insurance so I can add it to our list. Sometimes people here in Western Mass are asking about an llmd but there arnt too many here.
i would appreciate it.

Take care.

JohnnyG113
New Member


Date Joined Nov 2017
Total Posts : 11
   Posted 5/23/2018 10:15 AM (GMT -6)   
Honestly the Lyme Center of New England with Susan Neuber NP is worth every cent to me. (I'm from/live in RI as well). As mentioned she's booked way out but there is a reason for it.
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