“First and foremost his Visual Snow Syndrome (static in vision, after images, trails, light sensitivity etc). I’d like to know if Lyme disease can manifest itself as visual snow. This is his main concern and all the doctors he has visited (including Lyme literate) have never heard of it. So this leaves me to wonder is this from Lyme or not? I know that not everyone with this condition has LD. If he had this treated, he would feel mostly normal as he DOES NOT feel sick at all. As a 4th year optometry student, I don’t know much about
Lyme, but even doctors at my school that have evaluated him say that Lyme disease usually causes eye problems such as anterior or posterior uveitis or scleritis; they never seen visual snow be caused by Lyme.”
Light sensitivity is a not an uncommon symptom - we have members who have it.
I’m surprised a LLMD hasn’t seen that symptom before.
Also the vision problems have been reported by members here as well.
“2) He has some facial numbness on the left side of his face that comes and goes every 3-4 weeks. This doesn’t seem to be too much of an issue for him anymore. This came with the visual snow so I wonder if this is just a migraine problem like most of the neurologists he’s seen think it is.”
Bell’s palsy is a common symptom - presenting as facial numbness, sometimes pain, and muscle weakness.
“3) Now I know that igenex is considered by many to be the gold standard in Lyme testing but is it possible that false positives do occur? I’ve read a few articles online that said they had a very high false positive test rate and that even healthy people had Lyme specific bands show up on their test. I’m not trying to argue with anyone about
the accuracy of igenex, rather I am looking for advice and education on the subject. His co-infections came back negative which I know isn’t determinant but a positive result would have helped persuade me that Lyme is the culprit. ”
The Lyme WB is known to have false negatives not false positives - Igenex lab is one of the better labs to test at.
People sometimes test positive and don’t appear to have symptoms - because their immune system is keeping it in check.
“4) He has been eating healthier since he started antibiotics 1.5 months ago. After a month of doxycycline he’s now on a month of azithromycin and hasn’t experienced any change in symptoms. While he’s doing his best to cut out gluten, dairy, sugar, and alcohol, when he does have them, he experiences no issues with them at all. Most people I’ve read about
have major problems with these. Does it affect everyone differently?”
Yes it does. I don’t feel any different on GF, SF, diet.
What was the dosage of doxy?
So my question is - What prompted him to do a Lyme test if he only has eye issues and cheek numbness?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
Post Edited (Girlie) : 5/21/2018 9:09:56 PM (GMT-6)