My Lyme adventure

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New Member

Date Joined May 2018
Total Posts : 1
   Posted 5/23/2018 7:36 AM (GMT -6)   
Hi, I'm new to this site. Back when I believe I contracted Lyme, most of the doctors I went to were dismissive and I'm sure you know the rest of the story. My blood tests were inconsistent and seldom did I test positive for Lyme. In 2009 I had a major attack, precipitated by an overwhelming amount of personal distress. I was then diagnosed by four doctors with MS. The fourth one said no to MS but did not have any real workable answers, except perhaps Lyme. After struggling to get a Polychain Resistant (PCR) test done, the MS doctor literally and reluctantly told me the following: "At some point you had Lyme." She offered no real help, except to put me on a basic antibiotic which was of no help because this had now become Chronic Lyme. So in my search for help it took over 30 years to get a diagnosis and that was after a lot of testing with no answers. I believe I contracted this when I was 20, as I started having bizarre symptoms that I could not really articulate without sounding crazy.

As my body has changed because of pregnancies, and now menopause, I've come to realize that this Lyme bacteria has done quite a bit of damage to my organs. My weak point has always been digestion. I followed the bloodtype diet for a while and lost 23 pounds with no effort, but that was when I was younger. I still refer back to that literature for guidance and understanding of what I am now doing.

I've started the keto diet; still don't fully understand the science behind it, but in about three weeks or so, I've lost five pounds and I am three pounds from my immediate goal. It is challenging because as many of you have written low carbs and low sugar tend to starve the Lyme bacteria. In a non-infected person, this diet provides a wealth of homeostasis in the body, and other good effects. But in a person infected with Lyme, I think that the bacteria fights back to retain its presence in the body. It refuses to be evicted and can trigger the allergy/inflammation loop that many suffer from, which for me unfortunately effects the brain and puts me into strange dimensional thinking. I know it sounds very odd.

I do believe there is a gut/brain connection; therefore, I am hoping that by changing and limiting simple carbs, I am sending a healthy message to my brain for healing. I'm just a bit concerned in my case of the backlash from the Lyme bacteria; because once it goes to my heart, well, I figure I won't be posting anything anymore. LOL!

I was struggling with digestion, but since I cut out breads and pastas, my tummy does feel a lot better. I no longer have Acid Reflux, but I am still mini craving carbs at times. Maybe that's my internal plumbing fighting for me. I certainly hope so, because Western medicine has not helped me AT ALL.

When my daughter had a tick bite, she was about 13. Thank God for her awareness. I immediately had her treated with antibiotics and she has been fine for the most part. She's young and she doesn't let it get to her, as I believe she does have the aches and pains, like I have had for all these years.

The reason why I posted my story is because of the digestion issue. I do believe that is a first line of attack for Lyme sufferers, and I hope some light has been shed for others.

Regular Member

Date Joined Sep 2017
Total Posts : 52
   Posted 5/23/2018 10:33 AM (GMT -6)   
Welcome and thank you for sharing.

I am sugar free, gluten free, and low dairy. But I have found that if I cut out my morning rolled oats and evening quinoa, I get cranky and lethargic. I always thought it was an energy thing, but after reading your post, perhaps I am aggrevating the lyme. I wonder if that is good, or bad....
DX Borrelia, Babesia, Bartonella and Ehrlichia June 2017
Symptoms since at least 2007
Started treatment June 2017
Antitox ll CNS PNS Artemisinin A BART A BAB Biaxin, Chlorella, Liposomal Glutathione Magnesium Omnicef Prothrivers Wellbrain, Tindazole, Tranquility, Uplift, Fish Oil, B Vitamins, Vitamin D, gluten free, sugar free, dairy free lemon water detox tea detox baths coffee enemas

Forum Moderator

Date Joined May 2014
Total Posts : 33927
   Posted 5/23/2018 12:12 PM (GMT -6)   
Hi Deb, Welcome to our community!

Sorry it took 30 years for you to get a diagnosis....

Thank you for posting and sharing your information.
I'm not sure I agree about the theory of starving the lyme.

If the diet makes you feel better...then you're on the right track.

How long did your daughter treat for? Did she have symptoms?
If it was caught early, and treated effectively - I'm just wondering about her having aches and pains.

We encourage our new members to read through the information in the thread: "New to lyme?..Start Here! " It's packed with a lot of useful information.

Are you currently in treatment?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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