anyone have excessive sweating and chills??

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joee
Regular Member


Date Joined Dec 2011
Total Posts : 180
   Posted 5/23/2018 2:45 PM (GMT -6)   
So about 4 months ago after I did my first protocol with rifabutin I started with severe sweating and chills with shortness of breath and increased heart rate/pounding. Sweating so badly during the day its miserable and at night unbearable. I change my clothes several times a night and get no sleep because I constantly am sweating with chills mixed in. Like a sweat rolls over me, pours off of me, every 5 minutes. And every so often I get whole body tremors. Yuck!!! 4 months of this!

I mentioned it to my dr concerned that I was relapsing babs. She blew me off.

Here I am 4 months later and no better. A different practitioner in the practice saw me about a month ago and said no babs, just inflamed nerves. So I went on maintenance to calm things down.

At the same time my blood sugar was out of control (type 1 diabetic here). I was taking twice the insulin and getting nowhere.

I thought the other day, maybe my thyroid is finally calling it quits. I have hashimoto antibodies, nodules, and only half a thyroid from previous surgery, with pain in the thyroid I have left. So anytime now it will go.

Well over the weekend I was relaxing watching a movie and felt like crap...with sweating/tremors/chills,racing heart and painful thyroid. I got really concerned about it all and decided hey ck your blood pressure you may be in a thyroid storm. Lo and behold it was 238/113 with a resting heart rate of 120! Called my primary in the middle of the night and off to the ER he sent me.

I was admitted as an inpatient and they got my blood pressure somewhat under control and changed all my settings on my insulin pump and sent me home saying my thyroid was okay. I was out of heart attack/stroke danger so I was allowed to leave. My free t3 was elevated though. (heres a good thing tho: everyone who was in my care team was knowledgeable about lyme, very supportive. No eye rolling, no rude comments or saying chronic lyme doesn't exist. But we know how lyme is and they did too, not sure what is causing my problems...lyme or something else entirely. Yay for the ER and the rest of the hospital staff for getting it, right??)

The day after I left the hospital, I was back in the er the next night with the worst migraine/throwing up of my life. I hadn't had a migraine like that since 1988!!! They did a ct scan in case I had a bleed or something else hideous from the high pressure I had, but thankfully all was clear. Gave me pain meds, nausea meds, let me rest until my head felt better and sent me home.

Saw my endocrinologist yesterday and she feels it is in fact my thyroid even tho all other labs are normal. She is rerunning all of them. My primary, who I saw today, isn't sure what is going on, but he said don't do anything else until we get the blood pressure stable and see what the endo decides on the thyroid. So at least we can pick through the symptoms and try one thing at a time.


Me, I am clueless right now and so sick of this sweating. Sweating out in public in the amount I do is really embarrassing. When your hair and clothes gets soaked standing in the grocery store line, that's weird to everyone around me. The only place I don't sweat is my underarms because I guess the deodorant is working really good. (I should be a poster child for secret deodorant..hahah)

So I was just wondering if any of you have had the sweats, chills, tremors and out of nowhere blood pressure spike. One dr in the er told that the blood pressure spike, chills, sweats and blood sugar problem was because I was very sick from lyme and my body is producing cortisol as a body in stress will do. She felt it would calm down after my pressure got under control and the lyme flare eased up.

My blood pressure meds have calmed the pounding/racing heart and shortness of breath, but nothing else.

So lyme peeps, who among you has had this sweating this bad? What was it from? Did you get it resolved? Did you have dangerously high blood pressure too?

Thanks everyone for any input you are willing to give!!!

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2305
   Posted 5/23/2018 6:49 PM (GMT -6)   
Bumping for more views

Donjr
Regular Member


Date Joined Apr 2018
Total Posts : 187
   Posted 5/23/2018 9:36 PM (GMT -6)   
Please keep us posted I pray for you, love you and your healing is coming!!

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 2047
   Posted 5/24/2018 9:01 AM (GMT -6)   
joee,

I'm sorry you're suffering so much. I'm pretty sure one of the coinfections can cause the high blood pressure. I googled looking for more info and came across a mention on another forum that hypercoagulation (thickening blood) can lead to high blood pressure. I saw your post yesterday and wanted to look some things up in Buhner's coinfection books but never got around to it. I'll try to look it up today.

How did your doctor determine "no babs just inflamed nerves"? The infections (all of them) cause nerve inflammation. "Just inflamed nerves" sounds like a doctor who attributes symptoms to "just stress."

Trust your gut, joee. You know your own body better than anyone but God Himself. I don't like the sound of those doctors. Sounds like your symptoms are pretty serious, and those doctors sound dismissive and careless.

Are you doing any herbs right now? What abx treatment are you on right now - for which infections?

Post Edited (WalkingbyFaith) : 5/24/2018 8:08:21 AM (GMT-6)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33967
   Posted 5/24/2018 10:37 AM (GMT -6)   
That sounds awful, joee. What are you taking with the Rifabutin?

To answer your question: I have intermittent sweats during the day...they last only a few minutes...it's like a wave that comes over me.
Sometimes they're preceded by shivering. I've not been able to determine if the shivering is the 'chills' that comes with these infections....because all my life I've never had the chills with the flu. So, don't really know what the 'chill's feel like.

For me when I'm shivering...it definitely feels nerve related.

It will happen when I'm cold, but also from anything stimulating - like hearing a good song...or watching something emotional on t.v.

joee - before the Rifabutin was started...did you not get these chills and shivering?
Is this the first time you have treated bart?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

joee
Regular Member


Date Joined Dec 2011
Total Posts : 180
   Posted 5/24/2018 11:30 AM (GMT -6)   
thank you everyone,

walkingbyfaith...thanks for the info about the thick blood. I have buhrners book. I will look it up. The first practitioner in the practice said no babs. The second said she couldn't be sure, but it could be the nerves were inflamed so she wanted to let things calm down and then pick through the symptoms again.

Girlie,

With the rifabutin I was taking,omnicef and minocin m/w/f for two weeks. On the first week I also took tindy on thursday and friday.

Plus xylitol/lactoferrin for the first week of each round.

I herxed so bad on the first two rounds of rifabutin that the 3rd round I reduced my dose by half on the second week but the first week didn't take it at all. By the 4th round I hardly herxed and only on the last day of each week.

I was doing 2 weeks on 3 off.

This was the first and last protocol of bart. Just 4 cycles. No more since.

I worry that the rifabutin has done some nerve damage. My primary said he would look it up and do some research about that.

I have had the sweats before. I can't remember the details or when I had them, but I know it was during the beginning of all of my symptoms and then on and off again throughout. Then I treated for babs and sweated so bad with herx for a week and then it all went away.

Sometimes the chills come first and sometimes after. I also have full body trembling thrown in there even if I am not sweating or cold. Sort of like if you ever had surgery and when you wake up your body is like shaking all over. The trembling is exactly like that and last about 15 minutes. The chills are weird, sometimes downright cold with goosebumps other times it is just a prickly sensation all over my body and then goosebumps come.

I had a hospitalization followup with my primary dr yesterday. He spent some time with the blood pressure stuff, but then moved on to the lyme and sweating/chills. He doesn't want me to do anything right now, like add meds in to calm the nerves (think lyrica-that wasn't the one but I can't remember the name of the one lyme dr wanted to put me on but I refused because of the warning on the label). He feels I am not stable enough to be adding in new protocols with dangerous side effects. He wants to get the blood pressure settled in the next few weeks tweeked and wait for my endo results to come back, or he said it may be hard to know what is what if we start throwing stuff out there. He also felt that I could have dysautonomia (sp?) and he said the lyme may be in remission but that may remain from nerve damage. ugh. hope he is wrong.

The ER doctor also threw in there the scary scary stuff and talked to me about a tumor on my adrenal glands. If I had this there is no treatment. Lovely. So he went away and of course the ugly tears came then I collected myself and stopped thinking about it. But I did see that my endocrinologist added bloodwork for that at my followup appt. My primary reassured me that if I had that tumor or anything else really, really bad causing sweating and blood pressure problems that my blood pressure would not respond to medicine and for me it has. So for now I have stepped back from the ledge. Well my primary pulled me back from the ledge with his reassurance. hahah

Oh lyme and company, you are always such jerks, why can't you just go away and leave us all alone already. hahahah

Thanks everyone!! I'll keep you posted but please chime in if you have any other comments!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33967
   Posted 5/24/2018 11:35 AM (GMT -6)   
So you treated Babesia first...then went on to Bart...and now what are you taking?

What meds are in the maintenance protocol?

Is the maintenance protocol just to stabilize and then you'll go back on to a 'regular' protocol again?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33967
   Posted 5/24/2018 11:44 AM (GMT -6)   
"I had a hospitalization followup with my primary dr yesterday. He spent some time with the blood pressure stuff, but then moved on to the lyme and sweating/chills. He doesn't want me to do anything right now, like add meds in to calm the nerves (think lyrica-that wasn't the one but I can't remember the name of the one lyme dr wanted to put me on but I refused because of the warning on the label). He feels I am not stable enough to be adding in new protocols with dangerous side effects. He wants to get the blood pressure settled in the next few weeks tweeked and wait for my endo results to come back, or he said it may be hard to know what is what if we start throwing stuff out there. He also felt that I could have dysautonomia (sp?) and he said the lyme may be in remission but that may remain from nerve damage. ugh. hope he is wrong.

The ER doctor also threw in there the scary scary stuff and talked to me about a tumor on my adrenal glands. If I had this there is no treatment. Lovely. So he went away and of course the ugly tears came then I collected myself and stopped thinking about it. But I did see that my endocrinologist added bloodwork for that at my followup appt. My primary reassured me that if I had that tumor or anything else really, really bad causing sweating and blood pressure problems that my blood pressure would not respond to medicine and for me it has. So for now I have stepped back from the ledge. Well my primary pulled me back from the ledge with his reassurance. hahah"

There is surgical removal of tumors on adrenal glands. I looked into it when my cortisol was high and my Dr. had me get a CT of my adrenals.
Definitely can be removed. And it is often benign.

Re: dysautonmia from nerve damage. You'd think that would have happened prior to now...as you've been treating for awhile now.

Was it Gabapentin? I tried it...and it didn't help..but they wanted me to take another one with it...(another epilepsy drug)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5099
   Posted 5/25/2018 2:01 PM (GMT -6)   
about the adrenal part- I supect from experience that this is attributing to your ills.

These infections can attack the whole endo system- thyroid, adrenals, pancreas/sugar use all at once. All three are tied together. Treating the infection is not enough. The system needs help itself too.

Adrenals react to infection. Higher cortisol output increases "Liver sugar dumping" and then lowers thyroid.

Each gland can have its own separate issue too - but it will effect the others as well.

Add to your list:
1)You see a number of conventional Drs- have they done a basic morning cortisol test (its the only one they know of)?
2)Look up ZRT labs for adrenal cortisol 24 hr test. Its about 150-200, can order test directly, its your saliva that you send back.

Propranerolo is the only combined BP and ant-tremor Rx med out there. Its works when you need it, while your still ill. It saved my job. I never stopped working but almost had too from tremors.
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in Jan 2016. Flares ended after. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.
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