So about 4 months ago after I did my first protocol with rifabutin I started with severe sweating and chills with shortness of breath and increased heart rate/pounding. Sweating so badly during the day its miserable and at night unbearable. I change my clothes several times a night and get no sleep because I constantly am sweating with chills mixed in. Like a sweat rolls over me, pours off of me, every 5 minutes. And every so often I get whole body tremors. Yuck!!! 4 months of this!
I mentioned it to my dr concerned that I was relapsing babs. She blew me off.
Here I am 4 months later and no better. A different practitioner in the practice saw me about a month ago and said no babs, just inflamed nerves. So I went on maintenance to calm things down.
At the same time my blood sugar was out of control (type 1 diabetic here). I was taking twice the insulin and getting nowhere.
I thought the other day, maybe my thyroid is finally calling it quits. I have hashimoto antibodies, nodules, and only half a thyroid from previous surgery, with pain in the thyroid I have left. So anytime now it will go.
Well over the weekend I was relaxing watching a movie and felt like crap...with sweating/tremors/chills,racing heart and painful thyroid. I got really concerned about it all and decided hey ck your blood pressure you may be in a thyroid storm. Lo and behold it was 238/113 with a resting heart rate of 120! Called my primary in the middle of the night and off to the ER he sent me.
I was admitted as an inpatient and they got my blood pressure somewhat under control and changed all my settings on my insulin pump and sent me home saying my thyroid was okay. I was out of heart attack/stroke danger so I was allowed to leave. My free t3 was elevated though. (heres a good thing tho: everyone who was in my care team was knowledgeable about lyme, very supportive. No eye rolling, no rude comments or saying chronic lyme doesn't exist. But we know how lyme is and they did too, not sure what is causing my problems...lyme or something else entirely. Yay for the ER and the rest of the hospital staff for getting it, right??)
The day after I left the hospital, I was back in the er the next night with the worst migraine/throwing up of my life. I hadn't had a migraine like that since 1988!!! They did a ct scan in case I had a bleed or something else hideous from the high pressure I had, but thankfully all was clear. Gave me pain meds, nausea meds, let me rest until my head felt better and sent me home.
Saw my endocrinologist yesterday and she feels it is in fact my thyroid even tho all other labs are normal. She is rerunning all of them. My primary, who I saw today, isn't sure what is going on, but he said don't do anything else until we get the blood pressure stable and see what the endo decides on the thyroid. So at least we can pick through the symptoms and try one thing at a time.
Me, I am clueless right now and so sick of this sweating. Sweating out in public in the amount I do is really embarrassing. When your hair and clothes gets soaked standing in the grocery store line, that's weird to everyone around me. The only place I don't sweat is my underarms because I guess the deodorant is working really good. (I should be a poster child for secret deodorant..hahah)
So I was just wondering if any of you have had the sweats, chills, tremors and out of nowhere blood pressure spike. One dr in the er told that the blood pressure spike, chills, sweats and blood sugar problem was because I was very sick from lyme and my body is producing cortisol as a body in stress will do. She felt it would calm down after my pressure got under control and the lyme flare eased up.
My blood pressure meds have calmed the pounding/racing heart and shortness of breath, but nothing else.
So lyme peeps, who among you has had this sweating this bad? What was it from? Did you get it resolved? Did you have dangerously high blood pressure too?
Thanks everyone for any input you are willing to give!!!