The Dude Abides said...
dacarte3: How are you doing?
What a coincidence that this would be the day I poke back in here. After taking a panic break and re-gathering myself. I'm mentally in a better place.
So the symptoms and possible "disease" that I was concerned about
I've come to accept could be the cause.
I'm going to a neurologist Thursday and then from there a CT Scan or MRI.
Because I've come to accept it more I'm not as embarrass to say. But my concern is Acromegaly.
10-12 most common symptoms of this and I'm experiencing 3.5 of them. Now I know what you are thinking "wait you are experiencing only 3.5 common symptoms out of 10-12 of a really rare disease and you think you might have it?".
Yes and here's why.
First let's list the symptoms I'm NOT experiencing (yet):
1. Large, growing hands/fingers.
2. Large, growing feet
3. Large growing ears
4. Large growing nose
5. growing outward jaw (under bite)
6. Headaches (a very relevant omission as it's super common)
7. chin changing shape to be more "lantern" shape
8. a noticeably deeper voice
9. Skin tags
So all these symptoms I'm not experiencing is a good thing, however the symptoms I am experiencing:
1. a growing/bossing brow ridge
2. a bossing forehead
3. a bossing right temporalis bone
4. and the "half" in 3 and half: TMJ like symptoms (which is not uncommon in Acromegaly because the growth of face and skull shift things out of alignment.)
So I'm very confused. It's a rare condition but logically you can't rule rare conditions because somebody has to get them or the condition wouldn't exist, however it's super odd that I have a few unique symptoms but missing many many more.
Or is it because I'm recognizing it "early" so all of the symptoms have not yet manifested? Who knows.
But there's no other explanation out there except maybe Paget's Disease to explain these 3.5 symptoms.
Therefore I going to get a CT scan, so if there is a pitutary tumor I can take the necessary steps to get it removed.
I just don't know what else this disease (lyme) can directly and indirectly do to me. Nothing surprises me with lyme. Nothing.
Not trying to throw a pity party here but how can one human have lyme, ALS-like symptoms (rare), morgellons (yes that's right morgellons, the other super duper rare condition), and now quite possibly this (rare). I'm mean this is just bonkers.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Mycoplasma (Labcorp) - Score: 595
ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Borrelia, Babesia, Bartonella and Mycoplasma (treating everything to be on the safe side): May 2016 - Dec. 2016; 8/2017 - Present