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Girlie
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Date Joined May 2014
Total Posts : 32549
   Posted 6/7/2018 8:59 PM (GMT -6)   
dacarte3 said...
Interesting. I'm reading this lady's very detailed Acro blog journal. After her surgery, even after the structural symptoms stopped and reversed she still had many other health issues. Matter of fact maybe even more.

And guess what her symptoms are that are lingering, or getting worse, or popping up brand new? It's not structural acro symptoms but lyme symptoms.

So much so that she even mentioned Chronic Fatigue Syndrome. A big red flag for lyme.

We know lyme causes non-cancerous tumors, lumps, lipomas around the body. Why not the Pituitary gland? We know lyme causes dysfunction of the pit gland when it comes to thyroid (hyper and hypo) and adrenals, so why would lyme conveniently stop there and not affect the pit gland/liver with GH and IGF?

Just some interesting connections here.....makes you go ummm


Yup - it certainly could
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

dacarte3
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Date Joined Feb 2016
Total Posts : 1897
   Posted 6/8/2018 5:21 AM (GMT -6)   
Girlie said...
dacarte3 said...
lymelearner said...
Before I was diagnosed with Lyme and purely searching on the internet, it always came up with rare super dangerous things for me too, and that was very hard to deal with considering Lyme was upping my anxiety.


I know. But the brow bossing and forehead bossing,....there isn't much that explains those issues problem.

And if not very much explains that except Acro, one must take the necessary steps to check that out.

It's just logical (not anxiety).


Dacarte - isn’t it possible that Lyme has messed with your pituitary gland resulting with an increased production of GH? We do know that Lyme affects other hormones - like thyroid, adrenal, sex hormones.

Too bad you cant easily get your GH level tested right away instead of waiting for a ct or mri scan


Yes Girlie it is possible. But the only thing that's strange is there's all kinds of information talking about lyme (or anything) making too much thyroid hormone but nothing about it making too much GH UNLESS it's a tumor.

It's strange you would think the Pit gland would maybe produce too much GH just by malfunctioning and not ONLY because of tumor, ALWAYS. But I'm finding nothing.

However, I'm already ahead of you. I reached out to my LLND to get a lap test to check the levels.

Even if the MRI comes back all clear to finally put it to rest I want the levels checked. And with "normal" doctors (especially if the MRI is all clear) you have to give them some convincing reason and persuade them to check it. I don't want to go down that road.

With my LLND she'll just do it because I simply want too. That's the upside of LLNDs understanding lyme enough to know "check everything".

Even if I did the levels first and they were normal, I know it doesn't make sense, but it wouldn't put my mind 100% at ease (maybe 80%). I know not logical but it's true for my piece of mind.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Borrelia, Babesia, Bartonella and Mycoplasma (treating everything to be on the safe side): May 2016 - Dec. 2016; 8/2017 - Present

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32549
   Posted 6/8/2018 10:05 AM (GMT -6)   
Dacarte - I totally get where you’re coming from - I’ll tell you my story about my pit gland.

In 2013 before I was diagnosed with Lyme - I was fortunate that my Dr took my symptoms seriously and she kept sending me for lab work to try to find out what was wrong with me.

After many weeks of testing a 24 hour urine cortisol showed high levels.
She sent me to the endocrinologist who then sent me for another lab test to rule out a pituitary tumor.
(Low dose dexamthasone test)
My cortisol was in normal range indicating my pit gland was fine.

Well I didn’t stop there - I paid for an mri to look make sure there wasn’t a tumor on my pit gland.
They didn’t see one - but they did see that my pituitary stalk is slightly deviated to the left (“of unknown significance”)

I also paid for a CT scan of my adrenals

Finally, I did another 24 hour urine cortisol test (a repeat of the original test that showed high levels and started the investigation in the first place
It came back normal.

I have to say that I do think about what is causing my pit stalk to deviate to the left...
And is something I want to mention to my LLMD in April.

My previous LLND didn’t think it was anything to worry about and if I was symptom free I might agree but I still have a few symptoms that are concerning so I keep thinking about that darn pit stalk deviation.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1897
   Posted 6/8/2018 10:43 AM (GMT -6)   
Girlie said...
Dacarte - I totally get where you’re coming from - I’ll tell you my story about my pit gland.

In 2013 before I was diagnosed with Lyme - I was fortunate that my Dr took my symptoms seriously and she kept sending me for lab work to try to find out what was wrong with me.

After many weeks of testing a 24 hour urine cortisol showed high levels.
She sent me to the endocrinologist who then sent me for another lab test to rule out a pituitary tumor.
(Low dose dexamthasone test)
My cortisol was in normal range indicating my pit gland was fine.

Well I didn’t stop there - I paid for an mri to look make sure there wasn’t a tumor on my pit gland.
They didn’t see one - but they did see that my pituitary stalk is slightly deviated to the left (“of unknown significance”)

I also paid for a CT scan of my adrenals

Finally, I did another 24 hour urine cortisol test (a repeat of the original test that showed high levels and started the investigation in the first place
It came back normal.

I have to say that I do think about what is causing my pit stalk to deviate to the left...
And is something I want to mention to my LLMD in April.

My previous LLND didn’t think it was anything to worry about and if I was symptom free I might agree but I still have a few symptoms that are concerning so I keep thinking about that darn pit stalk deviation.


So I'm pretty much going to go through the same steps as you. Imaging and blood test. Though I haven't found anything on a non-tumor situation, where the Pit gland creates too much GH, why wouldn't it if it's malfunctioning? It can malfunction and produce too much and too little of other hormones such as the thyroid, so why would the abilities of malfunction just halt for too much GH? Because it's well known for too little GH to be produced, causes osteoporosis and other bone density problems. I just don't buy the opposite can't happen. Sort of like Hypo/hyper-GH similar to hypo/hyper thyroid.

Anywho, like you I need my mind at ease with an all clear (imaging and blood). Because I will, like you, will still do blood work because a tumor is not the only possible way too much GH can happen in my non-expert opinion.

But what's got me in limbo is the "shifting". Acro doesn't work on a shift. Not to mention no growth of hands, feet, lips, nose, ears, tongue. If there was some "growth" on the left but just not perfectly symmetrical on the growth, then I can understand. But zero left side growth and then to go even further a left side "shifting in" correlating exactly with the "shifting out" on the right.

The shift slant and protrusion/buckling it causes, just makes it all super weird.

But as confusing as all of this is, one thing that is not confusing, with rock solid certainty, the shift/slant is 100% happening.

Someone reading this post may think, well there you have it, what are you worried about. I'm worried because while I can explain most of the structural changes with pretty good confidence, my confidence in the forehead shift and buckling theory is not as rock solid.

TMJ specialist do call it "side bend and drop" and that is the very motion it's going. It's actually a great description because it's not a shift in perfect parallel with the ground but a "drop" too (because you know, gravity). So that "drop" down causing shifting and buckling of the frontal bone?

Do not know now, but will know soon.

I'll post my results.

Thanks for reading and chiming in guys and gals. Your listening hears and input is very comforting as there is no one to really talk to about lyme and all of systemic wide issues it causes.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Borrelia, Babesia, Bartonella and Mycoplasma (treating everything to be on the safe side): May 2016 - Dec. 2016; 8/2017 - Present

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1897
   Posted 6/9/2018 9:02 AM (GMT -6)   
MRI schedule for Thursday.

I'm in a good head space right now. Realizing that what ever is the cause, whether it's Acro, or terrible dental health (misalignments, spaces in teeth, overbite, all my life and never took care of it) is finally catching up to me they are both highly treatable and resolvable.

And no level of stress, worry, and over thinking now is going to make whatever it is, magically not be whatever it is.

Also some of my hypothyroid symptoms are flaring, most likely due to recent stress, so it's my body letting me know to chill out.

Have a great weekend lymies.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Borrelia, Babesia, Bartonella and Mycoplasma (treating everything to be on the safe side): May 2016 - Dec. 2016; 8/2017 - Present

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32549
   Posted 6/9/2018 10:07 AM (GMT -6)   
dacarte3 said...
MRI schedule for Thursday.

I'm in a good head space right now. Realizing that what ever is the cause, whether it's Acro, or terrible dental health (misalignments, spaces in teeth, overbite, all my life and never took care of it) is finally catching up to me they are both highly treatable and resolvable.

And no level of stress, worry, and over thinking now is going to make whatever it is, magically not be whatever it is.

Also some of my hypothyroid symptoms are flaring, most likely due to recent stress, so it's my body letting me know to chill out.

Have a great weekend lymies.


Great attitude dacarte!
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4879
   Posted 6/9/2018 11:37 AM (GMT -6)   
Girlie said...
dacarte3 said...
Interesting. I'm reading this lady's very detailed Acro blog journal. After her surgery, even after the structural symptoms stopped and reversed she still had many other health issues. Matter of fact maybe even more.

And guess what her symptoms are that are lingering, or getting worse, or popping up brand new? It's not structural acro symptoms but lyme symptoms.

So much so that she even mentioned Chronic Fatigue Syndrome. A big red flag for lyme.

We know lyme causes non-cancerous tumors, lumps, lipomas around the body. Why not the Pituitary gland? We know lyme causes dysfunction of the pit gland when it comes to thyroid (hyper and hypo) and adrenals, so why would lyme conveniently stop there and not affect the pit gland/liver with GH and IGF?

Just some interesting connections here.....makes you go ummm


Yup - it certainly could


I have quite a few lipomas. I'm pretty lean so they are obvious. I always wondered if I could have something like those but more internal too. ?

Funny I was never able to find much online info about lipomas and lyme. My LLMD didnt have much to say about lipomas. There is even a lipoma forum/site but its limited in info.

Its like a circulation issue that casualness it I think. There just a flat ball of fat and crud that should not have accumulated in the first place.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4879
   Posted 6/9/2018 11:44 AM (GMT -6)   
dacarte3 said...
"

But it's crazy how we lymies have to become biologist and doctors with our research and knowledge throughout the years. I swear at this point I could be given a PHD in many these disciplines (hyperbole).


Yes, its nuts. There should be some type of hybred Dr/biologist for the public, but we have none.

Even trying to find a Dr who understand muscle chemistry is impossible. I went to one who treated one of the #1 athletes of the world. This Dr was a stubborn, ill-informed, old school, ego-driven ***** who said lyme does not exist! Even with all the muscle diseases, the specialty Drs in that area are not very knowledgeable - i've seen them.

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1897
   Posted 6/11/2018 3:30 PM (GMT -6)   
Thursday can't get here quick enough.

I hope catching it "early" is beneficial. There's supposed to be something like a 90% success rate if it's early and tumor is small, where they can completely remove it.

Success rate meaning the full removal in 90% of the cases results in no need for lifetime of medication.

The problem arises when it's not early (vast majority of the cases) and the tumor can't be fully removed.

I hope me recognizing the start of a few symptoms but nothing too crazy yet means it's early.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Borrelia, Babesia, Bartonella and Mycoplasma (treating everything to be on the safe side): May 2016 - Dec. 2016; 8/2017 - Present

Post Edited (dacarte3) : 6/11/2018 3:40:34 PM (GMT-6)


dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1897
   Posted 6/14/2018 7:47 AM (GMT -6)   
Girlie,

When you got your MRI, did you get it with contrast?
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Borrelia, Babesia, Bartonella and Mycoplasma (treating everything to be on the safe side): May 2016 - Dec. 2016; 8/2017 - Present

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32549
   Posted 6/14/2018 9:52 AM (GMT -6)   
dacarte3 said...
Girlie,

When you got your MRI, did you get it with contrast?


Yes I did - I think because the pituitary is so small and any cysts/tumors would be difficult to identify.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1897
   Posted 6/14/2018 1:27 PM (GMT -6)   
Girlie said...
dacarte3 said...
Girlie,

When you got your MRI, did you get it with contrast?


Yes I did - I think because the pituitary is so small and any cysts/tumors would be difficult to identify.


Okay I did too. I was just wreary about injecting a chemical into the blood stream. But you and another lyme friend said they did it too. Was just worried about if having lyme makes not so great things happen with that injection.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Borrelia, Babesia, Bartonella and Mycoplasma (treating everything to be on the safe side): May 2016 - Dec. 2016; 8/2017 - Present

Mind body spirit
Regular Member


Date Joined Jun 2018
Total Posts : 50
   Posted 6/14/2018 2:23 PM (GMT -6)   
I’m sorry you are going through it.
Stay positive!

Not to diminish any of your experience in any way.
It is taught in many medical schools about the psychosomatic ability of the human mind, Especially when reading the physicians home journal. It is common to think we have any number of concerns or conditions, especially when we are facing challenges.

I have had deep experience with thinking I have any number of things.
Know and remember that Lyme is called the great imitator for a reason.

That being said, I have been hospitalized for brain encephalitis twice in 8 years. My head got so big I could not put on a baseball hat. The back of my head was so swollen I could not look behind me. My brow was swollen and the bumps either side of my external occipital protuberance were uneven, inflamed and very swollen.

I had (have) Lyme and 10 different coinfections.

I changed everything starting with what I put in my body. No gluten, wheat, grains, dairy, preservatives.
I eat as many natural anti inflammatories as possible, home made fire cider has really helped. I had a relapse when I had one beer and a little bit of bread and sugar. Took me a month to get the feeling to return in the back of my head from just a little slip up.

Hang in there!
Change everything and take care of that dome
Ticks>headaches>bells p>Lyme>abx+Av,ozone h20,c silver,Mms,healthy then more ticks,trigeminal neuralgia,b fog,Stage 4 Lyme w 10 coinfections. 30 days iv rochephin. Buhner+,90 day live foods,bowel then parasite cleanse,cacao,mg,b-12, enzymes,Vit c,vinegar fire cider. No sugar,wheat,dairy. Probiotics,uv therapy,magnets,dry brush,sauna,cold showers,walking,advaita,egoscue,emf free.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32549
   Posted 6/14/2018 3:21 PM (GMT -6)   
dacarte3 said...
Girlie said...
dacarte3 said...
Girlie,

When you got your MRI, did you get it with contrast?


Yes I did - I think because the pituitary is so small and any cysts/tumors would be difficult to identify.


Okay I did too. I was just wreary about injecting a chemical into the blood stream. But you and another lyme friend said they did it too. Was just worried about if having lyme makes not so great things happen with that injection.


I read A celebrity’s wife had a bad reaction to the gadolinium and then I started to look into that - and that freaked me out.
Can’t remember who the celebrity is.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32549
   Posted 6/14/2018 3:29 PM (GMT -6)   
It’s Chuck Norris
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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