Dacarte - I totally get where you’re coming from - I’ll tell you my story about my pit gland.
In 2013 before I was diagnosed with Lyme - I was fortunate that my Dr took my symptoms seriously and she kept sending me for lab work to try to find out what was wrong with me.
After many weeks of testing a 24 hour urine cortisol showed high levels.
She sent me to the endocrinologist who then sent me for another lab test to rule out a pituitary tumor.
(Low dose dexamthasone test)
My cortisol was in normal range indicating my pit gland was fine.
Well I didn’t stop there - I paid for an mri to look make sure there wasn’t a tumor on my pit gland.
They didn’t see one - but they did see that my pituitary stalk is slightly deviated to the left (“of unknown significance”)
I also paid for a CT scan of my adrenals
Finally, I did another 24 hour urine cortisol test (a repeat of the original test that showed high levels and started the investigation in the first place
It came back normal.
I have to say that I do think about what is causing my pit stalk to deviate to the left...
And is something I want to mention to my LLMD in April.
My previous LLND didn’t think it was anything to worry about and if I was symptom free I might agree but I still have a few symptoms that are concerning so I keep thinking about that darn pit stalk deviation.
So I'm pretty much going to go through the same steps as you. Imaging and blood test. Though I haven't found anything on a non-tumor situation, where the Pit gland creates too much GH, why wouldn't it if it's malfunctioning? It can malfunction and produce too much and too little of other hormones such as the thyroid, so why would the abilities of malfunction just halt for too much GH? Because it's well known for too little GH to be produced, causes osteoporosis and other bone density problems. I just don't buy the opposite can't happen. Sort of like Hypo/hyper-GH similar to hypo/hyper thyroid.
Anywho, like you I need my mind at ease with an all clear (imaging and blood). Because I will, like you, will still do blood work because a tumor is not the only possible way too much GH can happen in my non-expert opinion.
But what's got me in limbo is the "shifting". Acro doesn't work on a shift. Not to mention no growth of hands, feet, lips, nose, ears, tongue. If there was some "growth" on the left but just not perfectly symmetrical on the growth, then I can understand. But zero left side growth and then to go even further a left side "shifting in" correlating exactly with the "shifting out" on the right.
The shift slant and protrusion/buckling it causes, just makes it all super weird.
But as confusing as all of this is, one thing that is not confusing, with rock solid certainty, the shift/slant is 100% happening.
Someone reading this post may think, well there you have it, what are you worried about
. I'm worried because while I can explain most of the structural changes with pretty good confidence, my confidence in the forehead shift and buckling theory is not as rock solid.
TMJ specialist do call it "side bend and drop" and that is the very motion it's going. It's actually a great descript
ion because it's not a shift in perfect parallel with the ground but a "drop" too (because you know, gravity). So that "drop" down causing shifting and buckling of the frontal bone?
Do not know now, but will know soon.
I'll post my results.
Thanks for reading and chiming in guys and gals. Your listening hears and input is very comforting as there is no one to really talk to about
lyme and all of systemic wide issues it causes.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Mycoplasma (Labcorp) - Score: 595
ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Borrelia, Babesia, Bartonella and Mycoplasma (treating everything to be on the safe side): May 2016 - Dec. 2016; 8/2017 - Present