Anyone can do it with his muscles?

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OriolCarol
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   Posted 6/2/2018 5:44 AM (GMT -6)   
There is a genetic disorder that can do muscle rippling, but i can do it now, after lyme.... anyone has this? If i flex my muscles a little, but not too much, they move like waves....

I'm not this boy, but i can do the same.

Minute 0:14
/m.youtube.com/watch?v=b7Ub5TZVpCQ

Girlie
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Date Joined May 2014
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   Posted 6/2/2018 10:52 AM (GMT -6)   
When my muscles were twitching like crazy...there was one really bad one on my left arm..and it was more of a slow twitch...and I could see the muscle move...and then it would hold that spot for a couple of seconds...and then go back to normal.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

astroman
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Date Joined Mar 2014
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   Posted 6/2/2018 11:07 AM (GMT -6)   
I can do this- if I try. That video has minimal information to it- the guy does not state if he's trying to do this or if its an involuntary muscle spasm. The guy in the video has very well defined calf muscles, as I also do, that alone might make this easier to do vs someone with average chicken legs.

If this just happens involuntarily- than obviously its not normal.

If muscles are imbalanced, hypersensitive and or and firing wrong, the rippling can happen without trying. - I've had that too.

borrelioburgdorferii
Regular Member


Date Joined Feb 2017
Total Posts : 209
   Posted 6/2/2018 5:52 PM (GMT -6)   
When I'm at my twitchy-est, yes I get these sometimes. I had one on the top of my forearm that kept going for like a day and a half. Otherwise, sometimes on other parts of the body, such as in face muscles or digestive tract, it seems like a twitch then a retraction that stays depressed like it's paralysed, I had one for the past day or two in my left cheek of my face, like bells palsy, like a facial muscle was stuck in a closed position. I feel like when these buggers are most active, dying or reproducing or both, they short circuit all the normal neurotransmitters, resulting in neuropathies of emotional, physical and muscular nature.
Tick bite/EM rash +10 years ago
Active, athletic, with past concussions.
1st known bite: tick infested area, flu, chills, fever, neuro symptoms.
Treat with ABX/herbs recently (2-5 years now).
Get symptom free with strict diet: paleo/keto/IM fasting
Have done Buhner's Protocol, Doxycycline, Amoxicillin, Supplements.
IgG via IgeneX 31-IND, 41++, 58+ (Sep-2016)
IgM via IgeneX 31+, 41-IND (Sep-2016)

bluelyme
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Date Joined Nov 2015
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   Posted 6/3/2018 3:19 PM (GMT -6)   
looks like magnesium deficiency caused by possible m.s.i.d.s. affecting nerve conduction

OriolCarol
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Date Joined Dec 2017
Total Posts : 547
   Posted 6/3/2018 4:07 PM (GMT -6)   
Thank you guys smile i'm bite relaxed now... twitching isn't soo intense but polyneuropathy is worse...

I'll try mag tab sr... burrascano recommend it.

It's weird what this bugs can do it with our nerves... and frustratig when doctors don't know anything about it... dirty emg etc...

OriolCarol
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Date Joined Dec 2017
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   Posted 6/9/2018 7:03 AM (GMT -6)   
/m.youtube.com/watch?feature=youtu.be&v=nSx9DSGvy50

I'm the boy that appears in the video. It's what i can do with my muscles but EMG is clean and shows no atrophy , but i can induce fascicilations and muscle rippling.

In my calves i can do the same but the quality of the video doesn't show it clear.

/m.youtube.com/watch?v=yKRUC_4ymrc

Post Edited (OriolCarol) : 6/9/2018 7:25:03 AM (GMT-6)


astroman
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   Posted 6/10/2018 9:08 AM (GMT -6)   
OriolCarol said...
/m.youtube.com/watch?feature=youtu.be&v=nSx9DSGvy50

I'm the boy that appears in the video. It's what i can do with my muscles but EMG is clean and shows no atrophy , but i can induce fascicilations and muscle rippling.

In my calves i can do the same but the quality of the video doesn't show it clear.

/m.youtube.com/watch?v=yKRUC_4ymrc


I see nothing abnormal about the way your contracting your muscles here. Muscles in the legs have several layers and have "firing sequence" which will have a ripple effect. Normal.

The more lean and muscular developed someone is the more this is noticeable in the legs. So its even more noticeable in some other people.

One can still have muscle issues, and muscle adhesion (stuck to each other to some extent)- this is not really going to show up in a video, but will be more apparent due to uneven left to right firing order and loss of range of motion.

OriolCarol
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Date Joined Dec 2017
Total Posts : 547
   Posted 6/13/2018 5:46 PM (GMT -6)   
Astroman. Here you can watch it better. I'm obsesed about it because i don't remember i could do it in the past... it's like if my nerves would be hyperezcitabillity...

I link it with denervation and i'm.... I think i'm losing muscle.

/m.youtube.com/watch?v=WMuv4i9Fdpw&feature=youtu.be

Girlie
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Date Joined May 2014
Total Posts : 32549
   Posted 6/13/2018 6:21 PM (GMT -6)   
You're not trying to contract your muscles, right?
They're just doing this on their own?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

OriolCarol
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Date Joined Dec 2017
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   Posted 6/13/2018 6:27 PM (GMT -6)   
No Girlie, it happens when i contract my muscles but it's like if they were hyperexcitabillity.... fine movements and it happens... and i couldn't do it in the past.... i can induce fasciculations and muscle rippling...

Girlie
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Total Posts : 32549
   Posted 6/13/2018 6:36 PM (GMT -6)   
OriolCarol said...
No Girlie, it happens when i contract my muscles but it's like if they were hyperexcitabillity.... fine movements and it happens... and i couldn't do it in the past.... i can induce fasciculations and muscle rippling...




I don't think inducing fasciculations is normal...I can't do it when I'm flexing my muscles.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

OriolCarol
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Date Joined Dec 2017
Total Posts : 547
   Posted 6/13/2018 6:48 PM (GMT -6)   
If i hit my muscles i can induced fasc either sad but emg is clean..

OriolCarol
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Date Joined Dec 2017
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   Posted 6/13/2018 8:41 PM (GMT -6)   
Do you see atrophy in this movements Girlie? I'm very distressed and it's hitting me harder...

Astroman, here you can see the rippling effect better.

Missouri
Regular Member


Date Joined Sep 2017
Total Posts : 335
   Posted 6/14/2018 10:30 AM (GMT -6)   
when I am having twitching issues I can induce some of them too. Mainly facial ones, but leg ones too.

It's super hard to describe, but I get a sensation about 1 second before the twitches start. If I am able and want to; I can move the muscle and sometimes disturb the twitch cycle before it starts. (of course it starts twitching 5 minutes later anyways).

Vice versa I can sometimes start a twitch by moving a certain way. It only works when I am symptomatic.

Girlie
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Date Joined May 2014
Total Posts : 32549
   Posted 6/14/2018 11:39 AM (GMT -6)   
OriolCarol said...
Do you see atrophy in this movements Girlie? I'm very distressed and it's hitting me harder...

Astroman, here you can see the rippling effect better.


I do see the atrophy - the dents....or whatever you call them.


I have the same thing.

My calf muscles were large (for a girl) - and my husband was always joking that he wished he had mine. (seriously)

Now, there's that indentation and overall they're smaller. I use a tape measure and occasionally measure them to see if they've changed. So far they're stable - so not getting worse.
But, my right calf is 1/2 " smaller in diameter than my left now.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

OriolCarol
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Date Joined Dec 2017
Total Posts : 547
   Posted 6/14/2018 12:09 PM (GMT -6)   
And how is possible girlie that the emg is clean every time sad

Neurologist say that it's my fibers that are more excitable but i don't know... i'm afraid

OriolCarol
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Date Joined Dec 2017
Total Posts : 547
   Posted 6/14/2018 1:45 PM (GMT -6)   
This bugs are disgusting... and i'm mg deficiency... maybe i need parenteral MG.

OriolCarol
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Date Joined Dec 2017
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   Posted 6/14/2018 5:31 PM (GMT -6)   
I'm sad with myself... i hit my muscle feets and they fasciculate.... i don't have hope... i'm not mental strong...
I hate it because i feels like if i've lost myself, my life and my future... i can't see a better future and it's frustrating...

If i hit my muscles and they fasciculate, does it mean there is atrophy? Sorry because i'm saying it every time but i'm suffering a lot with it.

Girlie
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Date Joined May 2014
Total Posts : 32549
   Posted 6/14/2018 7:04 PM (GMT -6)   
OriolCarol said...
And how is possible girlie that the emg is clean every time sad

Neurologist say that it's my fibers that are more excitable but i don't know... i'm afraid


I don't know. I never had the word 'clean' or 'dirty' on mine.

But, everything was apparently "A-OKAY" according to the Physiatrist who did the test.

I asked for the report...but didn't get much details.
I think I'm going to call and ask for more information.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
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Date Joined May 2014
Total Posts : 32549
   Posted 6/14/2018 7:08 PM (GMT -6)   
OriolCarol said...
I'm sad with myself... i hit my muscle feets and they fasciculate.... i don't have hope... i'm not mental strong...
I hate it because i feels like if i've lost myself, my life and my future... i can't see a better future and it's frustrating...

If i hit my muscles and they fasciculate, does it mean there is atrophy? Sorry because i'm saying it every time but i'm suffering a lot with it.


Just take a tape measure and and see what each one is and write it down...then try not to dwell on it...and check it again in another month. Don't keep examining it everyday...you'll make yourself crazy.


I have muscle atrophy ... but it's not progressing...it happened...it's not 'happening' anymore.
That could be the same for you....and it will take a long time for it to repair...you haven't been treating for very long.

Mine has stopped...but there are areas that I still haven't built up the muscle to where it was before.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

OriolCarol
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Date Joined Dec 2017
Total Posts : 547
   Posted 6/15/2018 12:24 AM (GMT -6)   
I'll do it Girlie, but i can not understand how is possible to have atrophy without appear in a EMG... Neurologists are rudes....

Girlie
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Date Joined May 2014
Total Posts : 32549
   Posted 6/15/2018 12:29 AM (GMT -6)   
OriolCarol said...
I'll do it Girlie, but i can not understand how is possible to have atrophy without appear in a EMG... Neurologists are rudes....


Well, you don't think it's possible to have muscle atrophy even if the nerves are firing on all cylinders?


I don't know what's all involved...but I would think you can get muscle atrophy even if the nerves are working.
Also...maybe the emg/ncs only shows a severe issue with the nerves...but you may have something not that bad....IDK.

But, I don't think ruminating on it is a good idea.

Are you exercising? Do you have the energy to do that? Even just short walks...gotta keep the muscles moving.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

astroman
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Date Joined Mar 2014
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   Posted 6/15/2018 8:40 AM (GMT -6)   
".... I would think you can get muscle atrophy even if the nerves are working."

- yes true.

Nerves are only part of the battle with muscles, the other half is muscle chemistry which can bne altered by infection, methalation ect.

And nervous system tension/anxiety can deteriorate muscles from cutting off circulation. This can be/is a downward spiral itself. More tension = tight muscles > less circulation > starving muscles > atrophy and or more tightness > .....starts over again.

Constant thinking/worrying about it can increase symptoms.

A calm mind and self myofacial muscle tension release is a good starting point. I still had to do this after ABX, since muscles have learned memory, not much different than bent plastic sitting in the sun too long, will take a new "set" to its new position, even if its the wrong position, which becomes the new normal.

Just killing the critters is not a gaurentee that your muscles will erase their past "ill" memory. I have proven this theory myself. The length of time ones muscle were "ill" is what makes the difference. Yes , I have corrected most of it 2.5 years post ABX.

People with lyme less than 1-2 years or so who went through "critter eradication" which made everything normal again, is not a fair comparison to long term lyme (a few years plus).

Those foam fitness rollers may not provide instant relief, but they do instantly provide better circulation, which will have long term benefits- its technically muscle detoxing, out with the old blood and in with the new (plus nutrients).
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in Jan 2016. Flares ended after. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Twenty years of Hashimoto adds to the enjoyment.

Post Edited (astroman) : 6/15/2018 11:35:18 AM (GMT-6)


Girlie
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Date Joined May 2014
Total Posts : 32549
   Posted 6/15/2018 10:30 AM (GMT -6)   
Thanks, Astro.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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