MS actually Lyme

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kimbo62
Regular Member


Date Joined Apr 2015
Total Posts : 100
   Posted 6/10/2018 11:48 PM (GMT -6)   
I have read where people with MS were actually found to have Lyme spirochetes in their brain autopsies. Has anyone read this? I’ve read a few articles and now I can’t locate them. Does anyone have a link that states this?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33968
   Posted 6/10/2018 11:56 PM (GMT -6)   
Maybe there’s something here

lymeinfo.net/multiplesclerosis.html
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

kimbo62
Regular Member


Date Joined Apr 2015
Total Posts : 100
   Posted 6/11/2018 12:01 AM (GMT -6)   
Thank you Girlie

Noah2112
Regular Member


Date Joined Dec 2017
Total Posts : 130
   Posted 6/11/2018 10:31 AM (GMT -6)   
MS is a real disease, and while there are probably many people who were diagnosed with MS incorrectly who actually have Lyme, there are a lot more people who really do have MS. It doesn't help that symptoms and even the brain MRIs can look similar for both conditions. Whether a bacterial infection like Lyme may somehow cause an autoimmune condition such as MS to develop, nobody knows. The mechanisms behind MS are poorly understood and the subject of much research, my aunt has had it for a decade or two.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33968
   Posted 6/11/2018 10:56 AM (GMT -6)   
Noah - has your aunt been tested for Lyme and seen a LLMD ?


Lyme causes symptoms of other autoimmune diseases - not just Lyme.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Noah2112
Regular Member


Date Joined Dec 2017
Total Posts : 130
   Posted 6/11/2018 4:16 PM (GMT -6)   
My aunt does not have Lyme disease. She's been treating MS with the appropriate immune regulating medication for decades and it's been keeping her going. I don't know all the details of her treatment or condition because it's a bit of a sensitive subject, but that side of my family is quite familiar with what Lyme can do, my cousin had it for years before making a full recovery when she was a kid.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33968
   Posted 6/11/2018 4:58 PM (GMT -6)   
The problem with MS vs Lyme - is there is no real definitive test for diagnosing MS....
It's based on symptoms plus plaque on the brain - right?

So, I'm not sure how anyone would know if it was 'just' MS and not lyme.

I was sent to a Neurologist to rule out MS , Parkinson's, ALS... but his questions were pretty much based on signs/symptoms (reflexes, EMG, etc)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Loutucky
Regular Member


Date Joined Nov 2014
Total Posts : 434
   Posted 6/12/2018 6:49 AM (GMT -6)   
I do not believe that the body just attacks itself for no reason at all which is what we are told happens in autoimmune diseases. There is a cause for everything and I personally think that in my situation it is an infection of some sort causing the issue. The body is attacking the infection and creating the autoimmune process.

Medical scientists are now finding out that many people diagnosed with MS have underlying chronic EBV infection or CPN (Chlamydia Pneumonia) infection.

I was diagnosed with MS and later found out that I had/have CPN, neuro-lyme, bartonella and babesia. I will never believe that MS is a "real" disease for me but a combination of symptoms which are REAL and must have a cause.

I made the choice to refuse the immune modulating drugs which would relieve my symptoms by blocking my overactive immune system from attacking whatever the cause is. I pray I made the right decision as I continue to treat my infections.

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2474
   Posted 6/14/2018 9:25 AM (GMT -6)   
Loutucky said...
I do not believe that the body just attacks itself for no reason at all which is what we are told happens in autoimmune diseases. There is a cause for everything and I personally think that in my situation it is an infection of some sort causing the issue. The body is attacking the infection and creating the autoimmune process.


I very much agree with this. Well stated.

Since we are a lyme board, we see that lyme can cause many different type of "diseases" - MS, ALS, arthritis, mental issues, etc. Obviously, we talk about that a lot here because it's a lyme board.

However, there are many pathogens that wreck havoc on us. Lyme is a big one for sure. But I think we often times miss the role of viruses too (as well as other pathogens). I read a book this year that really helped me to appreciate the other factors causing our health problems nowadays. It also helps explain one reason why somebody who is on long term abx but is not fully improving (perhaps they have a viral issue that isn't being addressed by the abx). Of course, there can be other reasons too (coinfections, mold, etc). But we focus a lot on lyme, lyme, lyme (and the big name coinfections)- when it can be multiple pathogens that need to be addressed. So complicated.
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