I'm new to the lyme world. Received results from IGeneX a few weeks ago and corresponded with their doc, confirming lyme (several strong bands). I do not think I was tested for co-infections - just learned about those....
"Frozen shoulder" and an M.D. friend lead me to the test. Odd bodily things are making sense now: tinnitus (bad), occasional joint and muscle pain, blurred vision, some weight gain (inability to lose), sensitivity to temps, occasional single days of "flu"..... etc. I'm a fairly active person in my 50's, but feeling the "weight" of lyme, with a body that no longer moves around effortlessly. No telling how long the lyme has been lurking. We've camped in the midwest many times in the last decade.
I like to research and I'm a do-it-yourself person. I'm not a fan of pharma unless all other avenues are exhausted (or for life-saving purposes, of course). Our home has an herbal pharmacy. We have a generally healthy diet that does include caffeine and alcohol - though not to excess. We rarely have the need to see medical docs.
My initial research led me to decide that I would not jump on the antibiotic bandwagon, and instead would go the herbal route exclusively. I have Buhner's book and was planning on that protocol, along with looking into Oregano Oil (per latest Zhang paper). That said, and after reading that most people do take antibiotics, I'm feeling fearful that my plan may not work and feel compelled to find a LLMD (good luck in Central Tx), though I'm sure antibiotics is the standard ... and perhaps that is in fact what I should be taking, despite the destructive nature of it. Do I have the luxury of time to experiment and how would I even know if I was successful?
So. Now I'm overwhelmed, a bit fearful and sad. There is too much information to digest, and now I really don't know what the best course of action is. At least there is this group, and I know that I'll be gaining emotional strength and great information because of it. So thanks for being here. Any thoughts welcomed.
Hi Sahale, welcome!
Frozen shoulder was one of my first symptoms...actually it all started with excruciating pain one evening...with my left side (arm/hand) going limp and numb. ER worthy pain...
That quickly turned into frozen shoulder....but very very painful.
Over the next few months, I developed more symptoms...but just shrugged them off..not realizing they were all linked.
When I was finally diagnosed with lyme, I thought I had frozen shoulder PLUS lyme...but the frozen shoulder was a result of lyme and/or coinfections attacking my nervous system...which then resulted in frozen shoulder and serious muscle atrophy.
Re: abx vs herbals. Why not start on a herbal therapy and take a bit of time to decide if you want to go to a LLMD and go the antibiotic route. That way, you will be treating while you read, research and decide on what you want to do.
"Now I'm overwhelmed, a bit fearful and sad" This is normal, ....it is a nasty disease....BUT...you're not alone...we're here...and please keep asking questions...or just come here to vent if you're having a bad time...or to celebrate a good day...or part of day.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi