Hey Girlie, thanks for the tip there, I read about
the risks and will discuss with my doc.
"Question: Is the spinal cord ischemia the same as the transverse myelitis? (ie is one just describing what it does (ischemia) and the other is the medical name (transverse myelitis)"
They are different, Spinal ischemia is very rare but is effectivlely the same as cerebral ischemia. To my understanding Transverse myelitis is effectively inflammation of the spine. It can be partial (so only one area) or it can cover the entire length of the spine. There are many possible causes for it, ranging from auto-immune reactions to bacterial infections. Read an article on the link between Bart and TM
With regards to my thoughts on TM, I was delayed in getting to the hospital after I started to lose feeling. It also started in a very localised area and we where travelling, i figured it was a pinched nerve, so by the time i realised it was a real problem (ie, lost complete feeling in my saddle area) two days had already passed.
When I did get checked they found a lesion on the lower part of my spine which they said matches up with what they would expect based on the symptoms, they then started to hunt for the cause of the lesion and after a few days they deemed it "probably spinal ischemia" (so it was a diagnosis of exclusion i assume). Now as the prognosis for spinal ischemia is very poor they started hunting for the root cause of the spinal ischemia to avoid a recurrence. They ruled out blood pressure, heart defects, cholestorol etc etc and eventually they deemed it idiopathic (which is a term I have learnt to hate) and prescribed a ton of aspiren.
I was very lucky, as the area affected did not affect my movement and had only a minimal effect on my bladder, an event higher up on the spine could be deadly!
Now regarding the lesion, one of the potential causes would be inflammation, as is typical in MS, I did ask them at the time but they said they cannot confirm if there was any inflammation at the time of the event or not, so felt like a dead end.
Hence the interest for me in the link between Bartonella and Transverse Myelitis
My lesion is visible within the spinal chord itself (so its kind of in the middle, excuse my horrid lack of knowledge here) and is probably about
the size of a 20 euro cent coin (or a globe of that circumference).
Bartonella confirmed - 2018