I was bitten about a month ago by a blacklegged deer tick, I found him, just not fast enough. Symptoms showed gradually, no crazy fever, just a couple headaches and some off balance/fog. Within a week I had the standard doxy regimen, which seemed to work initially. After several return visits, the doc also prescribed the CDC standard for Babesiosis of mepron/zithromax and full standard tick borne blood tests.
PCR and AB Panel w/reflex all came back 'normal' or 'negative'. Of course my balance/neurological symptoms are still there. Insomnia showed up about a week ago. To date I have shown none of the classic lyme symptoms, fevers are always low grade.
After getting past what I should have known and done to prevent this, my research led me here. I know my life is changed for good and I feel like I see the truck coming and I have to let it hit me.
Once I found the ILADS site, my symptoms match almost exactly the Bartonella-BLO write up in Dr. Burrascano's treatment guidelines paper. It was like he was writing about me. Unfortunately his approach is by no means standard or even seemingly recognized by traditional medicine.
My family doc has been more than helpful, but he is not knowledgeable on tick-borne and I am referred to an 'Infectious Disease' MD. Now that I see widely divergent schools of thought on treatment I am not thinking he will do much.
I need some perspective on what that means from people here that have much more experience than I do. I am still functioning, just have to be deliberate.
- Can someone explain to me what those test panels really are? Is a 'western blot' different that those?
- How quickly will my lifestyle simply go away? I like to work on cars in the garage and home DIY projects. Spend time out with wife and kids. Exercise.
-Do I have days, weeks, or months to try and tie up some loose ends before the symptoms will take over completely?
- Advice on logical next steps I should do at this stage based on real experience?
Apologies for the long post, as many of you have been here before I ask for your understanding and thoughts.
Hi Phil, welcome to our community!
"I know my life is changed for good and I feel like I see the truck coming and I have to let it hit me."
You have caught this early...and you have a very good chance to irradicate this infection....your life may be changed temporarily while you focus on your treatment/healing...but it won't necessarily change for good.
My advice is to find a LLMD a.s.a.p. and schedule an appointment...and get proper treatment.
In addition to contacting ILADS for a Physician referral, you can also start a new thread on here: "Looking for LLMD in/near _________" and fill in the blank with your
Also, you can contact me...I may have some LLMD's listed in your area.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi