Thank you, Missouri! I am in Kansas, just a couple of miles from your state ;). I'm sorry to hear about your ordeal, but I'm glad you seem to have it figured out!
If you don't mind, what are/were your twitches like? Mine are every few seconds in my feet and calves and maybe a couple dozen times a day in random places all over my body. The vast majority of them in my feet and calves I can only see, not feel, so they aren't that big of a nuisance. I probably wouldn't have ever even gone to the doc if I didn't scare the crap out of myself by googling ALS, but I'm very glad I went and I really hope that tick disease is the cause.
Thank you for the info! I'm currently in the middle of a 20 day cycle with Doxycycline. Hopefully I have more luck with it than you did. I don't think I'm going to seek out an LLMD just yet, I reckon I should wait and see how this round of antibiotics goes.
I can't remember if my twitching started in the tongue, or the face, but I think it was one of the two.
I the beginning it was just a nuisance oddity that would happen once or twice a day. After about
6 months, I was twitching at least 10 seconds every 5 minutes almost 24/7. My face would twitch all day. Lots of leg, arm, and torso twitching at night. I don't believe I ever twitched in two places at the same time, not sure though. There would be hot spots - usually eyelid and thigh were the longest standing hot spots, but also tongue, glutes, fingers, feet, and calves all took their turn being a hot spot for a month or more. At it's worst I was experiencing Myoclonic jerks- which are Parkinson like limb jerks on an almost daily basis. Those were the scariest for me.
You are very very lucky you cannot feel the twitches. I can, and it will disrupt anything you are doing , including in the middle of speaking a sentence. For me the twitches immediately break my focus of anything I am trying to work on. It makes you wonder if the person you are talking to notice your twitches.
Hopefully the Doxycycline works for you. If not, at least you know the options.
Please let me know if this answered your questions or shoot any more you may think of.