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Dahlias
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Date Joined Jun 2017
Total Posts : 523
   Posted 7/12/2018 7:45 AM (GMT -6)   
How common is it here to be put on Cortef? What's the general consensus on its usefulness and safety?

I got a call after a blood test saying that my PA is calling that in for me. I left a message asking why, but I guess it's because my cortisol levels are on the very low end of normal. I guess that's supposed to be from stressed adrenals?

I understand that this can help with energy, which would be nice. I've also read that some people have stopped making cortisol naturally and had a hard time getting off if it. Anyone use a more natural method for addressing this?

opugirl
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Date Joined Nov 2012
Total Posts : 3922
   Posted 7/12/2018 10:53 AM (GMT -6)   
bump
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July 2007 - Deer tick bite w/ physician confirmed EM Rash - given 10 days of Doxy
October 2012 - My world gets rocked January 2013 - My world turns upside down
March 2013 - Igenex +, start treatment with LLMD, LLND, and herbalist
August 2013- Finished all abx, continuing with herbs and homeopathy, Feeling good!
July 2014- Off all treatment since Jan 2014, just taking vitamins

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 34617
   Posted 7/12/2018 12:47 PM (GMT -6)   
While steroids are contrandicated with these infection - low doses of cortisone is sometimes necessary and shouldn't cause the immune suppression like the higher doses used for autoimmune diseases. (and the dose you were previously on for your allergic/anaphylactic reaction)


Is it something like 5 mg?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
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Date Joined May 2014
Total Posts : 34617
   Posted 7/12/2018 12:49 PM (GMT -6)   
Dhalias - did you just recently have a cortisol test...or are they finally looking at the lab work that was requested at the initial consult?


The low dosage shouldn't stop your body from producing cortisol...but higher doses are hard to get off of.
Even with a low dose...I think i'd still wean off it...just to be on the safe side.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Dahlias
Veteran Member


Date Joined Jun 2017
Total Posts : 523
   Posted 7/12/2018 12:56 PM (GMT -6)   
It's 10 mg, and it's based off a recent test.

Could that have anything to do with the swollen lymph nodes? This is part of a test she ordered after she noticed that. TSH, T3, T4 etc. were fine.

I was surprised to have low cortisol, given that I still wake up in a panic some nights. I really don't understand all this stuff at all.

Post Edited (Dahlias) : 7/12/2018 12:06:27 PM (GMT-6)


Girlie
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Date Joined May 2014
Total Posts : 34617
   Posted 7/12/2018 1:05 PM (GMT -6)   
Dahlias said...
It's 10 mg, and it's based off a recent test.

Could that have anything to do with the swollen lymph nodes?

I was surprised to have low cortisol, given that I still wake up in a panic some nights. I really don't get all this stuff at all.


Total of 10 daily?

Sorry for all the questions...but.... what prompted a recent test? fatigue?


Interesting - I had a lot of panicky wake ups early on...and I thought that was a cortisol surge - but maybe that is what happens when we are low? we get surges?

IDK.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Dahlias
Veteran Member


Date Joined Jun 2017
Total Posts : 523
   Posted 7/12/2018 1:07 PM (GMT -6)   
Sorry, I was editing for clarity while you were responding. It was the swollen lymph nodes that prompted the test.

Yes, 10 daily.
"This too shall pass. It might pass like a kidney stone, but it will pass."

Lyme, babesia, mycoplasma pneumonia. Diagnosed May 2017. Neuro symptoms began September 2017. Treating 11 months so far.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 34617
   Posted 7/12/2018 1:36 PM (GMT -6)   
Dahlias said...
Sorry, I was editing for clarity while you were responding. It was the swollen lymph nodes that prompted the test.

Yes, 10 daily.


Interesting - I wonder what the link is with swollen lymph nodes.

Are you taking it in divided doses - 5 mg twice ?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Dahlias
Veteran Member


Date Joined Jun 2017
Total Posts : 523
   Posted 7/12/2018 1:39 PM (GMT -6)   
Maybe there's no link -- I have no idea.

The whole 10 mg is for morning.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 34617
   Posted 7/12/2018 1:44 PM (GMT -6)   
Dahlias said...
Maybe there's no link -- I have no idea.

The whole 10 mg is for morning.


Certainly won’t hury to try the Cortef. I think it’s something you’ll know right away if it’s helping.

Let us know how you feel - and if it helps with your panic attacks during the night.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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